Akuqhelekanga kodwa Kunokwenzeka kwizingane kunye nentsha
Sibanzi
I-Fibromyalgia (i-FMS) yimeko yokubuhlungu engapheliyo ekuqhelekileyo ifunyanwe kubasetyhini abaneminyaka yobudala okanye ubudala. Nangona kunjalo, nabani na onokuyifumana-kwaye iquka abantwana kunye nentsha.
Kwizingane, esi sifo sibizwa ngokuba yi-juvenile fibromyalgia syndrome (JFMS). Unokuze ufumane i-primary child fibromyalgia syndrome. "I-Primary," kwimeko leyo, ithetha ukuba ayihambisani nesinye isifo se-rheumatologic njenge-arthritis okanye i-lupus.
Ukuba uhambelana nolunye uhlobo lwesifo, i-fibromyalgia ibizwa ngokuba "isibini."
Asizi into eninzi malunga ne-JFMS, kwaye oogqirha abaninzi abaqapheli ukuba abantu abaselula banako le mqathango. Nangona kunjalo, sifunda ngakumbi ixesha lonke kunye nokwazisa nokwamkelwa kuluntu lwezonyango lukhula.
Kuyatshwenyeka ukukrokrela ukuba umntwana wakho unayo i-JFMS okanye ukuba afunyanwe nawo. Zama ukukhumbula iingongoma ezibalulekileyo:
- I-JFMS ayisigulo sokugula
- iinketho ezininzi zokwelapha ziyafumaneka
- kunye nolawulo olufanelekileyo kunye nolawulo, umntwana wakho unokuphila ubomi obupheleleyo
Ngaphambi kokukhangela ulwazi ngokukodwa kwi-JFMS, kubalulekile ukufumana ukuqonda okuyisiseko kwe-FMS.
Kwi-FMS, inkqubo ye-nervous is misifres when it comes to pain. Ikhuphula iimpawu zentlungu kwaye ijika izibonakaliso ezifanele ukuba zingathandeki kwiintlungu .
Ngenxa yokuba intlungu ayiveli kwi-joint or muscle ethile, ingaba yiphina indawo emzimbeni nanini na.
Ubuhlungu buya kusuka kwenye indawo ukuya kwelinye, zihlale zihlala kwiindawo ezithile, okanye zombini. Ubunzima buyakwazi ukuguquka ngokusesikweni.
Zonke iifom ze- FMS zinokubandakanya ezininzi iimpawu eziye zahluke kakhulu. Kwamanye abantu, iimpawu zingaphelana ngokufanelekileyo, kodwa kwezinye iindawo zingaza zihambe.
Kuqhelekile ukubona umzekelo weentaba (iimpawu zeempawu ezinzima) kunye nokukhupha (amaxesha apho iimpawu zinciphisa okanye zingekho.)
Ngoxa i-FMS iye yanyangwa ngo-rheumatologist, njengoko abaphandi bafumene iinkalo ezininzi ze-neurological, sele ziqala ukuphathwa ngamathambo egazi.
I-FMS iphinda ifuthe kwi-immune system kunye nama-hormone. Oku kubangela impawu ezininzi ezingabonakala zingenzi nto kunye kwaye zingenza ukuba ukugula kubonakale kuyinqaba.
Iimpawu
Iimpawu eziphambili zeJFMS ziquka:
- Iintlungu kunye nobubele
- Ukukhathala
- Ukuphucula ukulala
- Ukuqina koMasa
- Intloko
- Ukuxhalabisa
- Imisipha
Izimpawu eziqhelekileyo zingabandakanya:
- Iingxaki zengqondo , kubandakanywa nobunzima bokugxila (ebizwa ngokuthi "i-fibro fog")
- Utywala / ukuhamba ngokukhanya
Amaninzi amaninzi e-JFMS afaka iimeko ezigqithisiweyo. Ngamanye amaxesha badideka ngenxa yeempawu zeJFMS kodwa kunokudinga ukufunyaniswa nokuphathwa ngokwahlukileyo. Izimo ezidibeneyo zibandakanya:
- Ukuxinezeleka
- I-irritable bowel syndrome (IBS)
- Ukuphazamiseka kokulala (ngaphandle kokuphucula ubuthongo), ngokukodwa ukuphalala kwe-apnea , imilenze yokuphumla imilenze, kunye nexesha lokuhamba
Izizathu kunye neengozi
I-JFMS ayiqhelekanga. Abaphandi baqikelela ukuba phakathi kweesibini kunye neepesenti ezimbini zezingane ezikhulile esikolweni zingaba nazo.
Siyazi ukuba i-JFMS ixhaphake ngokuqhelekileyo kwiminyaka yeshumi elivisayo, kwaye amantombazana angaphezu kwamakhwenkwe afunyaniswe nawo.
Uninzi lwabantwana abanalo mqathango banalo ilungu losapho olusondeleyo kunye ne-FMS yabantu abadala. Ngenxa yoko, iingcali zityhawula ukuba kukho ukuxhunywa kofuzo kodwa asikaze uphononise.
Ezinye iimeko zeJFMS zibonakala zibangelwa zizifo, ukulimala emzimbeni okanye ukuphazamiseka kwengqondo. Abanye (amatyala asemibini) kunokubangela inxalenye kwezinye iimeko ezibangele ubuhlungu obungapheliyo. Oku kukholelwa ukuba ngenxa yeenguqu kwiingqondo ezikwazi ukuhlaziya kwakhona indawo ezijongene nentsebenziswano yentlungu.
Ukuxilongwa
Akukho vavanyo legazi okanye i-scan ekwazi ukuxilonga i-JFMS, kodwa ugqirha wakho uya kufuneka enze iimvavanyo eziliqela ukulawula ezinye izizathu ezibangelwa iimpawu zomntwana wakho.
Ukuxilongwa kweJFMS ngokuqhelekileyo kusekelwe ekuhloleni ngokomzimba, imbali yonyango kunye neendlela zokuxilonga. Umntwana wakho kufuneka abe nazo zonke iinkqubo eziphambili kwaye ubuncinane ezintathu kwiinkqubo ezincinane ngezansi.
Imigaqo ephakamileyo
- Intlungu ebanzi kwiindawo ezintathu okanye ngaphezulu ubuncinane kwiinyanga ezintathu
- Ukungabikho kwesinye isizathu esibangela iimpawu
- Iziphumo zovavanyo eziqhelekileyo zeemeko ezifanayo
- Ubuhlungu kwiintlanu kwii-18 zeFMS
Imilinganiselo encinci
- Ukuxhalabisa okanye ukuxhatshazwa
- Ukukhathala
- Ukulala kakubi
- Iintsholongwane ezingapheliyo
- IBS
- Ukuzikhukhumeza kwe-soft-tissue
- Ubuhlungu obubuhlungu kakhulu ngomsebenzi wokwenyama
- Ubunzima obunzima ngokutshintsha kwimozulu
- Ubuhlungu obubuhlungu kakhulu ngenxa yokukhathazeka nokuxinezeleka
Abanye oogqirha bangasebenzisa imilinganiselo yokuxilongwa kwe-FMS ekhulile , efunyenwe ibe malunga nechanekileyo kwizingane njengemilinganiselo ye-JFMS.
Ukuba ugqirha wakho akaqhelanga neJFMS kunye nendlela efunyanwe ngayo, unokufuna ukufumana ingcali. Iingcali ze-rheumatologists zonyango ziqeqeshwe ngakumbi ekuqapheliseni nasekuxilongeni le meko.
Unyango
Indlela yokucetyiswa kwonyango yeJFMS yintlangano yamanyango amaninzi, kwaye ngokuqhelekileyo ibandakanya oogqirha abaninzi. Akukho nonyango yeJFMS, ngoko ke unyango lujoliswe ekunciphiseni iimpawu nokuphucula ukusebenza.
Ezinye unyango ziye zafundiswa ngokukhethekileyo kwiJFMS, kodwa oogqirha basebenzisa nezonyango eziye zafundwa kuphela kwi-FMS yabantu abadala.
Ngenxa yokuba iimpawu ezithile kunye nobunzima bawo ziyahlukahluka, unyango lufanele lufanelane nomntu. Izinyango zokwelapha ziquka:
- mayeza
- zondlo
- ulungiso lwenyama
- inkqubo yohlobo lokuzilolonga
- ngonyango yokuziphatha
- amaqela enkxaso
Amayeza ahlala equka ukungabikho komlutha wokulahla, ii- SSRI / SNRI ezixinzelelekayo , i-dose ephantsi ye-tricyclic antidepressants, i-muscle relaxants, i- anti-inflammatories ne-sleep aid.
Ezinye izongezo ezidumile zeFMS ziquka:
Ezinye izongezelo ezininzi zisetyenziselwa le meko ngokunjalo, kwaye ezinye zisetyenziswe ngokusekelwe kwiimpawu.
Ulwaphulo lwezonyango lunokunceda ukunweba nokuqinisa imisipha kunye nokuphucula ithoni ye-muscle, konke oku kunokukunceda ukunciphisa intlungu. Kubalulekile ukuba ukhethe umphathiswa wenyama oqonda i-FMS.
Ukuzivocavoca kuthathwa njengento ephambili ekuphatheni zonke iifom zeFMS. Nangona kunjalo, kufuneka ukuba ifanelwe kumgangatho wokunyamezela nomgangatho wokunyamezela komntwana. Ubungakanani kunye nobukhulu bokusebenza kufuneka bonyuswe ngokukhawuleza ukuphepha ukuphazamisa isifo.
Ukunyanga kwengqondo yokuziphatha (CBT) yonyango lwe-JFMS oluye lwafumana ingqalelo kakhulu kubaphandi. Kuquka ukufundisa umntwana malunga nezicwangciso zokuxhatshazwa ngokomzimba kwakunye neendlela zokulawula imeko, njengokuhamba, ukuziphatha kakuhle nokulandela imirhumo yonyango. Akunabo bonke uphando olwamkelekileyo, kodwa ukuxhaswa kweengxelo zikhomba kwi-CBT njengonyango olufanelekileyo lweJFMS.
Olunye uphando lubonisa ukuba inkqubo yoqeqesho kunye ne-CBT inokuba luncedo ngakumbi.
Amacandelo enkxaso , ngokukodwa ezo zijoliswe kwiqela elidala elifanelekileyo, unokukunceda ukukhusela iimvakalelo zokuzihlukanisa kunye nokuba "ngokwahlukileyo." Ukuba awukwazi ukufikelela kumaqela enkxaso, unokukwazi ukufumana enye i-intanethi efanelekileyo kumntwana wakho.
Ukufumana isicatshulwa esona sikhulu sezonyango zomntwana oneJFMS kuthatha ixesha kunye nokuvavanya. Kubalulekile ukuba bobabini abazali kunye nabantwana baqonde ukuba akuyiyo yonke into yokwelapha eya kusebenza kwaye kukho ukuba kubekho ukukhazamiseka endleleni.
Prognosis
Ukugxekwa kwabantwana abaneJFMS ngokwenene kubhetele kunabantu abadala abane-FMS. Abanye abantwana baphila kakuhle kwaye baneempawu ezinzima kakhulu njengabantu abadala. Abo bafumana kwaye banamathela kwiinkqubo zokwenza unyango / izicwangciso zolawulo abanakho ukuhlangabezana neendlela zokuxilonga emva kweminyaka embalwa.
Abanye, nangona kunjalo, banokuqhubeka beba neempawu ekukhuleni. Kwakhona kunokwenzeka ukuba iimpawu zihambe ngokukhululekile, kuphela ukubuyela emva koko ebomini.
Kungakhathaliseki ukuba kwenzekani, kubalulekile ukukhumbuza kunokuba abantu abaninzi abane-FMS bekhokelela ngokupheleleyo, bevelisa, banomdla ubomi.
Mngeni
Abantwana abaneJFMS banokujamelana neengxaki ezininzi ngenxa yokugula kwabo. Bangavakalelwa "bakhululekile" kuba abafani nabahlobo kunye nabafundi abafunda nabo. Basenokuziva bekhulile kuba kufuneka bahoxise kwimisebenzi emininzi. Izifundo zibonisa ukuba zilahlekelwa zikolo ezininzi, ezinokubangela iingxaki zemfundo kunye noxinzelelo.
Ukongeza, banokuba nabantu abadala ebomini babo ababuza ukuba ngaba bayagula. Abantu banokuzijonga njengevila kwaye bezama ukuphuma emsebenzini. Impembelelo yengqondo yezi mpawu zingaba zibalulekileyo kwaye zingonakalisa amandla omntwana okujamelana nalo mqathango, ngokomzimba nangokomzwelo.
Ukuba umntwana wakho uphonsa isikolo esininzi, unokufuna ukuphonononga iindlela ezifana nokufundiswa, isikolo esikolweni, okanye ukufunda esikolweni.
Xa umntwana egula, ichaphazela intsapho yonke. Ukuyinkcenkcesha loo mbandela, kuba i-FMS ihlala isebenza kwiintsapho, abaninzi abantwana abaneJFMS banomzali ngeFMS. Kungenceda ukuba yonke intsapho ibe neengcebiso ukwenzela ukujongana neengxaki kunye nobunzima obandakanyekayo.
I-FMS yabantwana kunye ne-FMS yabantu abadala
Ngenxa yokuba asinalo ulwazi oluninzi ngokukodwa malunga ne-JFMS, wena kunye nodokotela wakho kuya kufuneka ukuba uthembele kwingcaciso kwifom yabantu abadala. Ziqheleke ngokufanayo, kunye nemibono embalwa engundoqo. KwiJFMS:
- Amanqaku amancinci amancinci ayadingeka ukuxilongwa
- Ukuphazamiseka kokulala kubonakala kunkulu
- Ubuhlungu buba nzima
- Ukugqithiswa kukungcono
- Ukuvuvukala kunokuba ngaphezulu
- Amanye amayeza ayifanelekanga kubantwana, okanye ama-dosage aphantsi angadingeka
- Ingqwalasela ekhethekileyo kufuneka ihlawulwe kwiintsebenziswano kunye noontanga kunye namalungu entsapho
Uphando lubonisa ukuba abantwana abaneJFMS abanokuxhalabisa okanye ukuxinezeleka kunzima kakhulu ukusebenza.
Njengomzali, kubalulekile ukuba ufunde indlela yokunyamekela umntwana wakho kunye ne-JFMS kunye nokubaxhasa ngokubanzi kwintsapho, abasebenzi besikolo kunye nabanye abantu abahlala kuyo. Ulwazi lwakho, inkxaso kunye nothando luya kuhamba ixesha elide xa kukufika ekuncedeni umntwana wakho aphile nale sigulo.
Imithombo:
Goulart R, et al. Revista brasileira de reumatologia. 2016 Jan-Feb; 56 (1): 69-74. Iinkalo zeengqondo zengcinezelo ye-fibromyalgia syndrome: ukuhlolwa kweencwadi.
Kashikar-Zuck S, et al. Ingxelo yonyango yeentlungu. 2016 Jan; 32 (1): 70-81. Uvavanyo olulinganiselayo olutsha oluhlangene nolwazi lokuziphatha kunye ne-neuromuscular yokungenelela kwintambo ye-fibromyalgia yabantwana.
Tesher MS. Iingxelo zonyango. 2015 Juni; 44 (6): e136-41. I-fibromyalgia yobuncinane: indlela eyahlukeneyo yokunyanga.
I-TV, kunye ne-al. Umbhalo wezonyango. 2016 Feb; 169: 181-7.e1. 2010 I-American College yeRheumatology yabantu abadala abasebenzisa i-fibromyalgia inqobo kwi-girls intsha kunye ne-teenage fibromyalgia.
I-Tran ST, kunye no-al. Ukunyamekela kwe-arthritis kunye nophando. 2016 Juni 22. [I-Epub phambi kokuprinta] Iziphumo zokuqala zengqungquthela yokuziphatha engqondweni-yokuziphatha kunye ne-neuromuscular intervention intervention training for childhood fibromyalgia.