Awunayo Imfuneko yokuhamba ngokuYodwa!
I-Fibromyalgia (i-FMS) kunye nesifo esingapheliyo sisifo (i-CFS okanye i- ME / CFS ) iimeko ezizimeleyo. Unokufumana kunzima ukuhlala uyingxenye yemisebenzi yentlalo, kwaye abantu abakujikelezayo bangayiqondi into ohamba ngayo. Uninzi lwethu kufuneka sishiye imisebenzi yethu, eyona isahlukanisa kwaye sinokuyongeza ubunzima bezezimali kwimpilo yethu.
Abantu abaninzi abane-FMS okanye i-ME / CFS nabo bacinezelekile kwiikliniki, kodwa nangona ungekho, kuqhelekile ukuhamba ngamaxesha angamavakalelo.
Ingaba unabo bahlobo nabanentsapho abanokuxhasa okanye unomuzwa wokuthi akukho mntu uxhasayo, unokufumana inzuzo kwiqela elixhasa. (Ukuba ucinga ukuba ucinezelekile, qiniseka ukuthetha nodokotela wakho malunga nalo!)
Kutheni iQela leNkxaso?
Bambalwa abantu abayayiqonda into efana nokuba neentlungu ezingapheliyo okanye ukuphelelwa lixesha lonke. Ukuba abazange bazibonele ngokwabo, kunzima ukuba baqonde ngokwenene ukukhungatheka obhekana nabo ngaloo mihla xa ungeke ukwazi ukucinga ngokucacileyo kwaye kunzima ukubamba ingxoxo elula.
Kwaye simele sijamelane nayo: abaninzi abantu abafuni ukuva malunga nendlela esiyiva ngayo sonke ixesha. Nangona bafuna ukuxhasa, abantu abasempilweni badla ngokukhululeka ukuthetha ngokugula.
Xa ujikeleze nabanye abantu abagulayo, nangona kunjalo, uxinzelelo loluntu ukuba ungathethi ngokugula alukho. Xa abantu abaneemeko bahlangana nomnye umntu onempawu ezifanayo ngokokuqala ngqa, kunokuba lukhulu gqitha ukwazi ukuba abawodwa.
Abaninzi bethu bakuthola kulula ukuthetha ngokucacileyo malunga noko sikujongene nabantu abaye bafumana.
Ukunyuka kwemizwelo kunye neentsikelelo ziqhelekileyo kuthi thina sisebenzelana nesifo esingapheliyo nesinokukhubazeka. Ngamanye amaxesha kunceda ukwazi ukuba awunabo kwaye omnye umntu ngaphandle koko ufumana oko utshoyo.
Kwakhona, ngenxa yobume babo, i-FMS kunye ne-ME / CFS yimiqathango omele ufunde ukuyilawula. Abantu abaye "bekhona, benze njalo" banokubakho okulungileyo kukukunceda ukufumanisa oko kukunceda kakhulu.
Ndingayifumana Njani Iqela?
Unako ukufumana amaqela amancedisi enkxaso kwi-intanethi kwaye, ngokuxhomekeke kwindawo ohlala kuyo, unokukwazi ukuwafumana kwindawo yakho.
Amaqela e-Intanethi aneempawu ezimangalisayo:
- bahlala bekhona
- akudingeki ukuba ugqoke kwaye ushiye indlu
- unako ukudibana nabantu bonke
Nangona kunjalo, banako ukungabikho. Ngokumalunga nanoma iyiphi iforum ye-intanethi inokutsala ama-troll ahlala khona ukuba aphephe. Ukungaziwa kwe-intanethi kunokukhuphaza kakhulu kunabanye abantu. Khangela amacandelo encoko okanye amaphepha kunye neemodareyitha eziqhutyayo ezigcina loo nto into encinci.
Ngaphambi kokuba ugxume kwiqela le-intanethi kwaye uqale ukwabelana ngolwazi oluququzelele, khangela uphepha imicu ukuze ubone ukuba ithowhi ibonisa ukuba ilungile okanye ayibi. Naka ingqalelo ukuba ngaba kukho izithuba ezininzi zogaxekile nokuba ngaba umlawuli onokukwazi ukujongana neengxaki.
Amaphephandaba kunye namaqela ezemidlalo angabonakala aphezulu, ngokunjalo xa kuthethwa ngamaqela avaliweyo okanye afihliweyo. Oku kunzima ukufumana, nangona kunjalo.
Gcina ukhumbule ukuba nayiphi na into oyithumela kuyo kwi-intanethi ingabuya ukuze ikukhohlise. Unokufuna ukuqwalasela igama lesibini lekhusi ukukhusela ubumfihlo bakho xa uthe waxhaswa ngumqeshi wangoku okanye oza kuba ngumqeshi, njengenxalenye yecala lomthetho, okanye ukuba ufuna isicelo sokukhubazeka.
Ukufumana iqela kwindawo yakho, kukho iGoogle rhoqo. Unokubuza nokuba ugqirha wakho, uhlolisise izibhedlele zasekhaya, kwaye ukhangele inkampani yakho yenkampani yomshuwalense ukuba ufumane ulwazi malunga nezixhobo zendawo kunye neenkqubo. Ukuba awukwazi ukufumana iqela lendawo, unokuqwalasela ukuqala enye.
Ngokudabukisayo, kuba badla ngokuqhutywa ngumntu onalezi zifo, amaqela enkxaso kuthiwa atshabalalise ngokukhawuleza xa aqala.
Ukuba akukho iqela elikufuphi ngokuthe ngqo kwi-fibromyalgia okanye isifo esingapheliyo sokugula, kwaye awufuni ukuqala enye, uzive ukhululekile ukuqwalasela amaqela enkxaso kwezinye iimeko ngeempawu ezifanayo. Oko kunokubandakanya intlungu engapheliyo, i-arthritis, i-lupus, okanye i-multiple sclerosis. Basenokumkela, ngakumbi kuba ezinye zamalungu azo ziba ne-fibromyalgia.
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