Ukujamelana neSifo sikashukela se-1 njengoMdala
Kwenzeka ntoni xa ufumanisa ukuba unesifo sikashukela se-1 njengomntu omdala? I-LADA-latent autoimmune isifo sikashukela kubantu abadala, ngamanye amaxesha esibizwa ngokuba yi-diabetes 1.5, sinokubetha kamva ebomini kunokuba luhlobo lwe-1 lwe-diabetes .
Cinga ukuba uneminyaka engamashumi amabini, i-thirties, okanye i-fortyties okanye i-fiftyties. Uqhubela phambili endleleni okhethiweyo ebomini, nokuba ngaba ngumsebenzi oqingqiweyo, ubudlelwane, umtshato, abantwana okanye zonke ezi ngasentla.
Ngokukhawuleza, ulahlekelwa isisindo, unxaniwe kunye nesekuhlambela ngalo lonke ixesha, kwaye unomuzwa wokuthi awunawo amandla. Uvele nje uziva ulungile.
Ufumanisa ukuba uthayibhile isifo sikashukela, kunye nehlabathi lakho lijikelele, ubuncinci uze ufumane uxhaso lokulawula isifo sikashukela phakathi kwayo yonke into enokuyenza ebomini.
Akukho zininzi izibonelelo kubantu abadala abaxilongwa ngesifo sikashukela se-type 1. Uninzi lweencwadi kunye neenkxaso zijoliswe kubantwana kuba uthayipha 1 ukubetha abantwana kunye nentsha. Kungekude kudlulileyo, thayipha i-1 yeswekile yesifo sikashukela eyaziwa ngokuba " yintsholongwane yeswekile ."
Uvakalelwa njani ukubetha nesifo esivame ukufunyanwa kubantwana? I-imeyile kunye namazwana avela kubafundi bathetha ngezinye zeengxaki zokujongana nokuxilongwa ngokutsha kohlobo 1 njengomntu omdala.
UMariya, ngeemvakalelo zokuzihlalisa kunye nomntu omdala uqala uhlobo lwesifo sikashukela
Ndifunyanwe ukuba ndine-diabetes yohlobo lwe-1 eneminyaka engama-42.
Ugqirha wam wayengakaze adibane nohlobo lomntu omdala ngaphambili kwaye ukhululeke ngokupheleleyo. Wayeka ingcali waza wathetha naye phambi kwam ngaphambi kokuba undixelele ngokuxilongwa kwakhe. Ukususela ngoko ndiye ndilawula ukulawula kweso sikashukela kwaye ndihamba ngexesha lokukhungatheka kunye necala xa ndiyiphutha. Ndihlala kwindawo encinane enyakatho yeWellington eNew Zealand, apho kungekho ndawo abahlengikazi besifo sikashukela.
Ukuba ngumsebenzi wexesha elizeleyo ndifumanisa kunzima ukudibanisa nomnye umntu onomhlobo 1 njengoko ezininzi iintlanganiso zesifo sikashukela ziququzelelwe phakathi emini. Isolation kunye.
UJason, enenkathazo yokukholelwa ukuxilongwa komntu omdala uqala uhlobo lwesifo sikashukela
Ndandifumaneka nje ukuba ndine-diabetes ye-type 1 namhlanje. Ndiyiminyaka engama-32 ubudala kwaye ndingenayo imvelaphi yentsapho yesifo sikashukela kwaye ndiyifom ebonakalayo enhle. Ndaya kudokotela kwiveki edlulileyo ukuze ndibe ngumsebenzi wokuba ndibe ndihleliwe kwinyanga engaphambili. Ngokungathandabuzekiyo, ndithatha uhlobo lomkhuhlane ngosuku ngaphambi kokuba kuqeshwe, ngoko ke xa ndaya kudokotela, ndiqhuba ukushisa malunga ne-100, eyayingaphantsi kwe-101.5 ngosuku olwandulelayo.
Ugqirha wambona i-glucose ephezulu emcinini wam, wagijima nezinye iimvavanyo, waza waphetha ukuba iswekile yam igazi yayiphakamileyo, kwaye ndandesifo sikashukela. Waqhubeka echaza indlela eyimangalisa ngayo, kwaye wabuza ngokuphindaphindiweyo ukuba ngaba ndiqinisekile ukuba akukho mlando kwintsapho yam. Wathi, "Kuvela phi na?" Watsho.
Wandinika izixhobo zokuvavanya, kunye ne-insulin kwaye wandixelela ukuba ndigcine irekhodi yeshukela lam gazi kwaye ndizenze ijojo nganye ebusuku kwaye ndibuyele ngeveki. Ndenza uphando oluninzi kwiintsuku ezimbalwa ezalandelayo, ndafumanisa ukuba ngexesha lomkhuhlane, umzimba ngokuqhelekileyo ukwandisa ushukela wegazi .
Ngeli xesha, ndaqala ukubuza ukuxilongwa!
UChris, kwi-ups kunye ne-downs of management diabetes:
Ndineminyaka engama-32 ubudala. Ndandifumanelwa ukuba ndihlobo lwesifo sikashukela malunga neminyaka emithathu edlulileyo, emva kokuhlolwa kwegazi okungavamile emva kwesiganeko se- bronchitis apho ndaphathwa ngayo nge- prednisone . Umbono wam waphuma, ndaqala ukulahlekelwa ubunzima ... unxaniwe kwaye uyazi lonke ibali. Kuze kube ngoku, ndiphathe kakuhle kakuhle, kwanokunciphisa kakhulu imithi yam ngomlomo ngokutya kunye nokuzilolonga.
Ndiye ndavuka ndaza ndawela phantsi kweminyaka embalwa edluleyo. Ndandithiyile i-endo doc yam, ngoko ndandisanda kugqiba ukuyeka ukuya kuye ndiphinde ndiqale ukuya kuncinci.
Ndaxelelwa ukuba i-brand yami yesifo sikashukela yayingavamile, kodwa ngeli nqanaba ndiyazi kakhulu uhlobo lonyango endiyidingayo ukugcina i- A1C yam. Uloyiko lwam lukhulu luyehla kwaye lufanele luhambe kwi-insulin. Amalume omabini afa amancinci athile aphefumlelweyo ngohlobo lwaba-1 awakhula [njengabantwana]. Le nyaniso ayinanto yokundithuthuzela, kodwa ndizama ukugcina isimo sengqondo esilungileyo kunye nendlela yokuphila engenako uxinzelelo.
UDanielle, ukuxilongwa okwesabisayo, ukugqiba isigqoko se-insulin
Ndingumfazi oneminyaka engama-35 ubudala, ndafunyanwa ngoJuni ka-2000 kwiminyaka engama-27 ubudala. Ndineempawu ezininzi zokuthetha: ukulahleka kwesisindo, ukoma, ukusebenzisa indlu yokuhlambela ubusuku bonke, isidingo sokulala, umbono onobuqili kunye neengqumbo ezinzima zamahashe kumathole ami ebusuku. Ndandisoloko ndihamba ngorhwebo ukuya kuDkt ngo-Matshi kwaye ndifumana umkhuhlane / umkhuhlane omkhulu ... emva koko ndasebenza iiyure ezinde kwaye ndithi ndivakalelwa kukuba.
Ekupheleni kukaMeyi, ndaqala ukufumana ixesha eliphindwe kabini ngenyanga kwaye ekugqibeleni ndaya koogqirha. Wandibiza ngaloo mini emsebenzini kwaye wandixelela ukuba ndifike kwinqanaba lokuqala lonyango. Emva kokuqinisekisa ushukela wegazi ngo-520 kwaye uqiniseke ukuba andinayo i- ketoacidosis , bayandivumela ukuba ndihlale ekhaya kunokundingenisa esibhedlele. Ngomso wam, ndadibana ne- endocrinologist kunye nayo yonke imbali. Ndihlala kwindawo yaseBoston kwaye ndiyintsikelelo ngamanye oogqirha abagqwesileyo kunye nezibonelelo zonyango kwihlabathi. Ukususela ngo-2000, phantsi kweliso elilindileyo leqela leengcali ndazalela abafana abanempilo ngo-2002 no-2004.
Ndenze isigqibo sokugqoka ipompo ye-insulin ngo-2003 kuba andifuni iinaliti ezijikeleze indlu nezingane ezincinci. Ingcebiso yam engcono ... Ndibaninzi ... fumana ugqirha othembelayo. Ukuba icebiso lingazivumi kakuhle, fumana enye. Thatha zonke iingcebiso ezingaceliweyo kunye nengqolowa yetyuwa. Ndineentsipho zithetha izinto ezimbi kum.
Iimpompo ze-Insulin ziyamangalisa kwaye ziza kuguqula ubomi bakho. I-carb count kwaye isebenza kakuhle kum. Ukucaphukisa kwam ... umsebenzi! Igazi lam isetyha liyehla ngokukhawuleza kangangokuba ndivame ukunqanda "ukusebenza ngaphandle." Ndihamba ndihambe ndize ndizame ukuhamba kangangoko kunokwenzeka kodwa ngamanye amaxesha ndivakalelwa. Kwakhona kunzima ukuchazela kumthandayo wakho into ojongene nayo. Ngamanye amaxesha umyeni wam uyacaphukisa xa ndifumana ukusabela kwe-insulin kuba ndivumela ukuba ndilahle kakhulu. Kuxakeka ukuba uxanduva lonke ixesha.
U-Paula, ngokungafumani kakuhle kwaye akaqondi kakuhle:
Ndingumfazi oneminyaka engama-59 ubudala kwaye ndizibuza ukuba ngaba ndinesifo sikashukela iminyaka kangangokuba sele ndifumanisa i-Type 1 ezine iveki ezedlulileyo. Ndiye ngapha nangakumbi kulezi nyanga zokugqibela endingazange ndicinga ukuba ziya kwenzeka kum.
Esi sisifo esinawo okanye sonke esinalo, kungekhona sigulo. Ukuba ngabagqirha bezonyango abazi kwaye abanako ukuxilonga into esilungileyo kum. Ndinayo, okanye ubuncinci ndiziva ndikhululekile kunye ne-endo enhle ethi uthi uye wabona abantu abaninzi baluhlobo oludala. Ndiye kwinqanaba le " honeymoon " okwangoku kwaye unethemba kuphela lokuba lizakuhlala ixesha elide. Isinyathelo esilandelayo emva kokunyuka kwenyanyane kundikrokra kumlinganiselo othile. Ixesha liza kuxela. Ndiyinto eninzi njengamaninzi kuni, akukho nkcazelo eninzi kubantu bakudala be-1.
UJeanne, ngenxa yokwesaba ngekamva:
Njengamaninzi kuni, ndijamelene namanyathelo alandelayo. Ndiyiminyaka engama-46, ndikhuthele kakhulu, ndihlala ndibonakalisa kakhulu (akuzange ndikhuluphele). Isishukela sam segazi esiphakamileyo sagqithwa ngokusebenzisa ukuhlolwa kwezempilo okungahleliyo emsebenzini. I-PA yenza intonga yomnwe kwaye yathi, "Ufanele ubize ugqirha wakho." Andizange ndiyazi ukuba wayethetha ngani - akazange azive engalunganga ngomzuzu omnye okanye enayo impawu eqhelekileyo. Andizange ndibe ne-stitch ebomini bam bonke, kwaye ngoku ndijamelene nokugula okungapheliyo.
Ndihlala ndicinga ukuba bajonga umsebenzi wegazi lomnye umntu. Ugqirha wam osisiseko wam kuqala ufumanise ngolu hlobo 1 kodwa wayefuna ukuqinisekiswa nge-endo, eyenzekayo. Ndiqalile nje kwiyeza elibizwa ngokuba nguActos kwaye andinayo into yokuba ndiyilindele ntoni. I-endo ithi ibanjwe kusasa (ndiyazi ukuba andinayo iminyaka emibili edlulileyo).
Umlingane wam iminyaka emithandathu uzama ukuxhaswa, kodwa akazi kakuhle into enokuyenza. Uhlala exelela ukuba uyazi "abantu abaninzi" abanesifo sikashukela kwaye ndiya kuba "kakuhle." Ndizama ngamandla ukuba ndingathathi umsindo kunye nokukhungatheka kuye. Ndaphinda ndafumanisa ukuba ndine- hypothyroidism kwaye ndikhona kwenye ipilisi.
Ndiziva ndihlehlekile ngoku kwaye ndiyesaba kakhulu ngekamva lam. Xa ndiya eofini ye-endo ndizungezwe ngabantu ababukeka bebuhlungu kwaye begule, kwaye andifuni ukuphela njengaye. Ndiqinisekile ukuba oku kuqhelekileyo - ukutshitshiswa kunye nokwesaba kunokukhubaza. Ukufunda kuyisitshixo ekunakekeni kakuhle, kodwa ngoku ndifuna ukuba ubomi bam budala bubuyele.
Jill, ngokufunyaniswa ngephutha njengoluhlobo lwe-2 lweswekile
Ndafunyaniswa ukuba nguTyhu 2 wesifo sikashukela eminyakeni eyi-10 eyadlulayo eneminyaka engama-23, emva kokuba umzala wam onomhlobo 1 uvavanye ushukela ngelixa sasimise inkampu kwaye yayingu-513. Andiyi kulibala loo mini okanye loo nombolo nje ngokuba ndihlala . Ndaya kubagqirha ngokukhawuleza ukuba ndibuyele ekhaya. Kwakuyivunguvungu yokuqeshwa kunye neemvavanyo. Ndabekwa kuzo zonke iintlobo ezahlukeneyo zemithi yomlomo (Avandia, Metformin ... ..) kwaye baya kusebenza ixesha elithile, ngoko i-inshurensi yam yayiya kutshintsha kwaye ndiza kuqala ukugqithisa nodokotela omtsha.
Ngesinye isikhathi ndahamba ngokupheleleyo nayiphi na imithi, kuba andinakukwazi ukuhlawula iindleko zazo. Ndaphelela ukulahlekelwa ngamapounds angama-50-60 ngaphezu kweenyanga ezi-7. Ndandibukeka kakhulu, ndandicinga ukuba kungenxa yokuba ndandisetyenziselwa ngakumbi (ndandisanda kuqalisa ukuba ngumyeni wam ngoku), ndijonge oko ndadla. Emva koko ndatshintsha imisebenzi kwaye ngoku ndinomshuwalense omkhulu kwaye ndafumana ugqirha we-Endo ukuba ndikhululekile kakhulu.
Ndagcinwa ngokupheleleyo kwi-insulin kwaye ndafumana ubukhulu bam emva koko emva koko! Bandixelele ukuba ndinesifo sikashukela 1.5 ...... .Ndididekile ngoku! Kuloko kube ngumzabalazo kum ukuba ndivume ukuba ndifuna ukutshintsha indlela yam yokuphila, ngenxa yesi sifo.
Ndiza kutshatyalaliswa kwinto yonke kwaye ndizama kanzima ukuhlala kumkhondo! Ndiqala ipompo yam insulin kungekudala, andiyikuvuyela ngakumbi! Andiyi kusayi kunika 4-6 ukukhwaza ngosuku. Ndinombuzo ...... Ngaba kukho nawuphi na umntu okho nantoni na enje?
UKaren, ngenxa yokungabi nolwazi lwabanye kwiindawo zonyango:
Ndiminyaka engama-48 ubudala kwaye ndafumanisa ukuba ndine-1.5 i-diabetes. Andiyi kulibala loo mini kuba kwakuyiminyaka yam yomtshato. Ndandifuna ukuhlolwa ngenxa yokuba ndilahlekelwe ngama-pounds angama-20 kwiiveki ezi-3. Ndacinga ukuba i-thyroid yam isenza nje okanye into ethile. Ndandisazi ukuba amaqondo am nexinzelelo ayenyuse emsebenzini, kwaye ndandidla ngokubanzi. Ndandifake ubungakanani 4 kwaye ndiziva ndihle kakhulu. Ndiyathetha ngomntu ophethe i- hypothyroidism eyayibukele yonke ikhalori iminyaka, le nto yayilungileyo.
Ugqirha wam osapho wabuya emva kokuvavanywa kwegazi waza wandixelela ukuba ndandesifo sikashukela. Ndacinga ukuba wayedlala. Uthi i-A1C yam yayingaphezu kwe-15 kwaye izinga lam ishukela legazi lokuzila ukutya lali malunga ne-450. Ndandithanda, "Ngoko, oko kuthetha ukuthini?" Ndandimangele. Emva kweentsuku ezine esibhedlele kunye nentlanganiso malunga nabahlengikazi abane kunye nomqeqeshi wesifo sikashukela, bonke bathi, "Unqabile ukuba unesifo sikashukela. Ngaba unesiqiniseko sokuthi ulapha ngesifo sikashukela? "Ndandicinwa ngokungahambi kolwazi ukuba abahlengikazi bezonyango bazi ngesifo sikashukela.
Isifo sikashukela / umongikazi wezandla wafika kwigumbi lam kunye neesithathu zokutya ezi-3 okanye ezi-4 ezilungiselelwe. Xa wandibona, wathi wayengazi ngokwenene into endixelela yona. Andizange ndikholelwe. Ndashiya esibhedlele ngeteksi yokuqala ye-insulin kunye nemibuzo eninzi. Ugqirha wam osapho usenza izigulane zezigulane zesifo seswekile, kodwa wayenentshwenyeko ngokunyanga ngento ayecinga ukuba yayiluhlobo lwe-diabetes 1.5. Uthe abantu abaninzi babengakaze bakuve kwaye kwakukho entsha kwiindawo zonyango. Uninzi oogqirha, uthe, bakholelwa ukuba uhlobo lwebhile ye-1 lusetyenziswa kuphela kubantwana okanye kubantu abaye bafumana ukususela ebuntwaneni. Uluhlu lwesi-2 luluntu wonke.
Ewe, andizange ndihlangane naluphi na uhlobo. Undithumele kwi-endocrinologist. Kwakuqinisekiswe ukuba ndingumhlobo 1 / 1.5. Ndiye ndadingeka nditshintshe i-insulins kwaye ndifanele ndikhulise amanyathelo am amaninzi amaxesha. Ndithatha malunga no-6 ukuya kwe-8 ukukhwaza ngosuku ... Ndithukuthele, ndithukuthele, ndixinezelekile ngako konke oku. Ndiyithetha ... ubomi bam buhamba kakuhle. Ngoku - bam, udonga lwezitena.
Ndiyabonga kubo bonke abafundi abaye bathatha inxaxheba kweli nqaku. Eyona nto inenhlanhla kunye nempilo enhle kuwe.