Usuku lwakho ukuya kwiSuku lobomi emva kokuxilongwa kweLupus
Ingaba usandululwe okanye uphile ne-lupus ixesha elithile, yini na ukuba uyazi malunga nempilo yakho yemihla ngemihla? Makhe sithethe ngoxilongo lwakho, izicwangciso zokuqala, unyango lwakho lwe-lupus kunye nokunakekelwa kwezempilo rhoqo, kunye nendlela yokufunda ngakumbi ngesifo sakho kwaye ufumane inkxaso.
Ukuphila NoLupus
Abo babesanda kuxilongwa nge- lupus (systemic lupus erythematosus) banokuzifumana bexakekile ekuqaleni, mhlawumbi bekhululekile ukuba babecinga into ebandekayo, kwaye ekugqibeleni badideke.
Akukuphela nje ukuxilongwa okunzima-kunye nabantu abaninzi abaqala ukungazi kakuhle-kodwa unyango luyahluka kakhulu kumntu omnye ukuya kwesilandelayo. ULupus uye waqulunqwa "ngeqhwa leqhwa," uchaza ukuba akukho bantu ababini abanemeko efanayo. Uqala phi nawaphi amanyathelo alandelayo omele uwathathe ukuba ufumene ukuba unayo i-lupus?
Ukuqatshelwa ngokutsha kunye neLupus
"Ndiyintoni na?" Yindlela yokuqala yokuphendula ngayo abantu abaninzi abafumene i-lupus. Kwaye ngenxa yokuba abantu abaninzi bayazi into encinane yesi sifo, oku akumangalisi. Uninzi lwabantu luyazi nje ukuba baye babhekana nezibonakaliso ezingacacanga, ezibuhlungu kunye neempawu ze-lupus eziza kwaye ziyahamba, kungekho mzekelo ohleliweyo wokubikezela. Okumangalisayo kukuba, ezininzi iimpazamo ze-lupus zibangelwa yinto ethile (nangona izizathu zihluka) kwaye ngamanye amaxesha zilandele umzekelo. Ukuqonda okubangela ukuba kubekho iirhawu, kwaye mhlawumbi unako ukunciphisa okanye ukuthintela ukuba kwenzeke, kuyona nto iphambili yokuphila nale sigulo nokugcina umgangatho ophezulu wobomi.
Ukufumana iDokotela ukuba asebenze uLupus
Xa usufumene unyango, okanye nokuba uhlolisiswa , kubalulekile ukufumana ugqirha onakekela abantu abane-lupus-ngokuqhelekileyo i-rheumatologist. Ekubeni i-lupus ingavamile, oogqirha abaninzi baye babona abantu abambalwa-okanye abanakuze babone-umntu one-lupus.
Njengoko unokukhetha umdwebi wendlu oye wayiguqulela ezininzi izindlu phezu komculi wexesha lokuqala, ukufumana ugqirha onomdla wokuphatha abantu abane-lupus kubalulekile.
Ukuba ule ndawo ekuhambeni kwakho, sinamacebiso athile ekufumaneni i-rheumatologist kukunyamekela nge-lupus . Khetha ngokuhlakanipha. Uza kufuna ugqirha ongeke abe nawe kuphela ngokuphazamiseka okungenakukupheka kwesi sifo kodwa umntu onokukunceda ukulungelelanisa unonophelo lwakho kunye nezinye iingcali kunye nabagqirha oza kubona.
Amaqhinga okuqala Emva kwe-Lupus Diagnosis
Kungaba nzima ekuqaleni ukuba uqaphele ukuba uhlangabezana nesifo esingapheliyo; enye engenazo iimbangela okanye ukuphilisa. Njengokuba kunjalo nezinye izifo ezingapheliyo, ke, ukufunyanwa nje kunokufumana uxolo olukhulu. Ubuncinane unika igama kwiimpawu zakho kwaye wenze okuthile ngabo.
Ugqirha wakho uya kuthetha nawe malunga neendlela zokwelapha ezikhoyo . Kunceda ukuqonda ukuba "unyango" yinkqubo eqhubekayo. Ukufunda malunga nonyango olufumanekayo lunokubonakala lunzima, kodwa akudingeki ufunde yonke into kanye. Ekuqaleni kuwe unomnqweno wokufunda malunga nayiphi na unyango oluyidingayo nangoko naziphi na izimpawu ezifanele kukunxebe ugqirha wakho.
Ukuthabatha iziCwangciso zeZakhono
Unokuva ukuba yonke into ofuna ukuyigxila kuyo yonyango lokuqala, kodwa xa ufumanisa okokuqala (okanye, ngenxa yoko, naliphi na ixesha) lixesha elifanelekileyo ukuqala ukuphuhlisa izicwangciso zokuphila. Ngandlela-thile, ukufumana ukuxilongwa kwesimo esingapheliyo "ngumzuzu onokufundiswa" kwaye abaninzi abantu bafumana unonophelo olungcono kunokuba babekade bekhona.
Izicwangciso zokuphila ziquka ukulawulwa kwengcinezelo (ngokucamngca, umthandazo, unyango lokuphumula okanye nantoni na eyenzela yona,) inkqubo yokuzilolonga, kunye nokutya ukutya okuninzi okunempilo kuyisiqalo esihle. Kubalulekile ukuqhubeka nokuzonwabisa ngezinto zakho eziqhelekileyo njengoko unako.
Ezinye ukutya zibonakala ziphucula okanye zibuhlungu ngakumbi iimpawu ze lupus, nangona uphando olujonge oku lusebuncinaneni. Ekubeni wonke umntu one-lupus ehlukile, ukutya okulungileyo kunakho, nangona xa kufundwe, kunokungafani kakhulu. Ukuba ukholelwa ukuba ukutya kwakho kunokuba nomthelela kwisifo sakho, indlela efanelekileyo kakhulu kukugcina idayari yokutya (njengalezo ezigcinwe ngabantu abazama ukuqonda ukuba ziphi na ukutya kwizinto ezithile zokutya.)
Ukufumana inkxaso ngeLupus
Ukukhuthaza ubuhlobo kubaluleke kakhulu ekwakheni isiseko senkxaso esiza kukunceda ukujamelana nesi sifo. Ukongeza kokuhlala kufuphi nabahlobo besikhathi eside, ukufumana abanye nge-lupus kukudibanisa ngokucacileyo. U-2017 usitshela ukuba abo abancedayo ukuxhaswa kwezenhlalakahle bangaphantsi kancinci kwaye ekugqibeleni banokuxinzezeleka kwengqondo engaphantsi kwaye "umthwalo wesifo" unxulumene ne-lupus kunabo abanenkxaso engaphantsi.
Asikwazi ukusho ngokwaneleyo malunga nokufumana abantu abajongene nemingeni efanayo. Unokuba neqela lokuxhasa kuluntu lwakho, kodwa akudingeki ukuba ushiye ikhaya lakho. Kukho uluntu oluninzi olusebenzayo lwe-lupus inkxaso kwi-intanethi oluza kukumkela ngokukhawuleza. Fumana ezinye iindlela zokwakha inethiwekhi yakho yentlalo, nokuba ngaba kukuxhasa isizathu esivakalayo, iqela lecawa okanye amanye amaqela asekuhlaleni. Funda kabanzi malunga nokufumana inkxaso yokuhlangabezana ne-lupus .
Ukunyamekela rhoqo ngeLupus
Uya kufuneka ukuba ubone i-rheumatologist rhoqo, kungekhona nje xa unempawu eziya ziba nzima. Enyanisweni, ukutyelela xa izinto zihamba kakuhle lixesha elanele lokufunda ngakumbi malunga nemeko yakho kwaye uthetha ngophando olutsha. Ugqirha wakho unokukunceda uqaphele iimpawu zokulumkisa zesalathisi ngokusekelwe naziphi na iipateni azibona ngesifo sakho. Ezi zinokuhluka kubantu bonke, nangona kunjalo, abaninzi abantu abanamava e-lupus banyuke ukukhathala, utywala, intloko, intlungu, ukuxubha, ubunzima, iintlungu zesisu, okanye umkhuhlane ngaphambi kokuba i-flare. Ugqirha wakho unokukwazi ukukunceda uqikelele iirali ezisekelwe kumsebenzi wegazi rhoqo kunye neemviwo.
Ukongeza kwonyango oluqhelekileyo, abaninzi abantu bafumanisa ukuba indlela yokudibanisa isebenza kakuhle. Kukho iindlela ezininzi kunye nokunyangwa okungekho kumsebenzi we-lupus onokukunceda ngeengxakini ezivela ekulawuleni intlungu ekudakaleni, ukuvuvukala, ukuxinezeleka.
Imithi ekhuselayo kunye neLupus
Kulula ukutshintshela ukunakekelwa kokukhusela kwi-burner yangemva xa ufumanisa ukuba unesifo esingapheliyo njenge lupus. Oku akusikho nje ukungaqhelekanga ngokuqhelekileyo kodwa kunikezelwa ukuba i-lupus ifuthe kwisistim somzimba sakho sokuzivikela , ukunyamekela okukhuselekileyo kubaluleke kakhulu. Ukunyamekela okufana nokuhlolwa rhoqo kweentsholongwane, izigulmam, kunye nokugonywa kufuneka kufakwe kwisicwangciso sonyango.
Ukufunda NgoLupus Wakho
Njengoko sichazile ngaphambili, ukufunda nge-lupus yakho kubaluleke kakhulu. Akufundi nje ukufunda ngesifo sakho kukunika amandla njengesigulane nokunciphisa uxhalaba lwakho, kodwa kungenza umehluko kwimeko yesifo sakho. Ukususela ekuqapheliseni iimpawu zokuxwayisa kwangaphambili, ukukhupha unyango lweengxaki, ukufundiswa ngesifo sakho kufuneka.
Ukuba nguMmeli Wakho NgeLupus
Izifundo zisitshela ukuba abo bathatha inxaxheba ethe xaxa ekunyamekeleni kwabo nge-lupus baneentlungu ezingaphantsi, banezifo ezincinci ezifuna ukungenelelo lwezonyango, kwaye zihlale zisebenza.
Endaweni yomsebenzi nasesikolweni, ukuba ngummeli wakho ubaluleke kakhulu njengasekhaya okanye kwiklinikhi. Ekubeni i-lupus ingaba "isifo" esingasabonakaliyo okanye "silumkileyo", kuye kwafunyanwa ukuba ngamanye amaxesha abantu abane-lupus babandezeleka ngokungenasiphelo. Indawo yokuhlala, nokuba kwindawo yomsebenzi okanye kwiikholeji yakho, ingenza umehluko omkhulu kwaye kukho izinto ezininzi. Nangona kunjalo, ekubeni isifo asibonakali ngathi ezinye iimeko, unokufuna ukuqala inkqubo kwaye ufune uncedo ngokwakho.
Ngaphantsi kokujongana noLupus Usuku ukuya kwiSuku
Ukujongana neLupus akulula. Ukuthelekiswa nezinye iimeko, kunokwazi okungaphantsi, kwaye abantu abaninzi bathetha malunga nokuva okanye ukufumana izimvo eziphazamisayo malunga ne-lupus kwabanye. Nangona kunjalo, nangona kunjalo, abaninzi abantu abane-lupus banokuphila ubomi obonwabileyo nokuzalisekisa. Ukuba ngummeli wakho, ukwakha inkqubo yenkxaso yentlalo, ukufunda ngesifo sakho, nokufumana ugqirha onokuthi ube yinkampani kunye nawe ekulawuleni isigulo sakho unokuncedisa ukuba kwenzeke.
> Imithombo
- > Agarwal, N., no-V. Kumar. Inani labantu abangabonakaliyo: Ukuhlala kunye nokukhonza abaFundi beKholeji nabaLupus. Umsebenzi . 2017. 56 (1): 165-173.
- > Agarwal, N., no-V. Kumar. Umthwalo we-Lupus kuSebenzi: Imiba kwiNgqesho yabantu ngabanye kunye neLupus. Umsebenzi . 2016. 55 (2): 429-439.
- > Aparicio-Soto, M., uSanchez-Hidalgo, M., kunye no-C. Alarcon-de-la-Lastra. Isihlaziya kwiDiet kunye neZondlo zeZondlo kwi-Systemic Lupus Erythematosus Management. Uphononongo lwezoPhando . 2017. 30 (1): 118-137.
- > Zamora-Racaza, G., Azizoddin, D., Ishimori, M. et al. Indima ye-Psychosocial Reserve Ukukwazi ukuxhalabisa kunye nokuxinezeleka kwabagulayo abane-Systemic Lupus Erythematosis. I-International Journal yeRheumatic Diseases . 2017 uMar 6. (Epub ngaphambi kokuprinta.)