Kuyamkeleka ukuba ubugcisa bubonelela ngokufanelekileyo uncedo ekuncedeni abantu ukujamelana nemingeni yobomi, kubandakanya ukugula okungapheliyo njenge lupus. Akufanele uqeqeshwe okanye ngokukodwa isakhono kwifomu yobugcisa bokudala ukuze ukwazi ukufumana izibonelelo ezibonelela ngobugcisa. Ukuzibonakalisa ngokusebenzisa ubugcisa bokudala kukunika ithuba lokuxelela ibali lakho nokubonisa iimvakalelo ezinzima ezinxulumene nokuphila ngeempu-iimvakalelo ezinjengomsindo, ukudana, intlungu kunye nokukhungatheka. Okanye ungasebenzisa ubugcisa ukuba ubonise ukuba izinto eziyimini zentsuku zokuba ne-lupus zifana -yiphi ukukhathala kubonakala okanye uvakalelwa, umzekelo.
Ingaba ulwabelana nomsebenzi wakho okanye ugcine ube yimfihlo kuwe. Isenzo sokwenza ubugcisa, yedwa, sinokwanela.
Umphakathi we-lupus uzele abantu abasebenzise ubugcisa njengendlela yokujamelana nesifo kunye / okanye ukuphakamisa ulwazi malunga nokuphila ne-lupus.
Ifoto
Inkqubo ebizwa ngokuthi yiLupus ngeLens, ivumela abathathi-nxaxheba ukuba bathathe iifoto ezinamandla baze babelane nabo ngeengcaphuno ukuze bancede bachaze ukuba i-lupus ibukeka njani-kungekhona nje iimpawu zayo, kodwa inyaniso yosuku lokuphila ne-lupus. Ezi zithombe azigcini nje ekuncediseni ukuqwashisa, kodwa inkqubo yokubamba kunye nokwabelana nabo yabanika iqela ilizwi kwaye baxhobisa ukuba bathethe amabali abo.
Kukho iindlela ezingaphezulu kweyodwa zokusebenzisa iifoto zokubambisana okanye ukuphakamisa ukuqaphela i-lupus, nangona kunjalo. Ngokomzekelo, umfaki-zithombe u-Michelle Diane Poindexter usebenzisa iifoto ukuxelela i-lupus ibali. Kwiwebhusayithi yakhe, wachaza injongo emva kwezithombe zakhe, "Ezinye iifoto zicinga ngezinto ezincinci ebomini abantu kubonakala ngathi kunzima kulabo abane-SLE kunye nezinye ziimbali ezimangalisayo zesimo sengqondo esingaphakathi."
Inkondlo
Iingongoma zingasetyenziselwa kumaqela okuxhasa. Amagama, imizila kunye nemifanekiso kwimibongo ingabangela imvakalelo okanye imemori, into esinokuyiqonda ngayo, kubandakanywa namava okuphila. Iingongoma ezifana neSipho sikaCzeslaw Milosz kunye nohambo lukaMary Oliver lunokuba luncedo ngakumbi.
Xa ufunda imibongo, khangela imigca yakho oyithandayo. Bathi ntoni kuwe? Ngaba bakukhumbuza ngobomi bakho nge lupus? Ukuba kunjalo, ngaziphi iindlela? Umzekelo, umgca kwiSipho,
"Emzimbeni wam andizange ndive buhlungu /
Xa ndiqondisa, ndabona ulwandle oluluhlaza kunye neendlela. "
inokuma kumntu onomzimba ongapheliyo ochaphazelekayo kunye ne-lupus. Le nkondlo iphathelele usuku olugqibeleleyo. Yintoni eyayiza kuba yimini epheleleyo kumntu one-lupus? Mhlawumbi kuya kuba ngumhla apho umzimba wakho ungava nabuhlungu. Iyiphi indima inentlungu ebomini bakho? Ingaba kuthatha usuku lwakho olugqibeleleyo? Iingongoma ezifana nesiSipho sinokukunceda ukuba usebenzise ingcinga yakho kwaye uhlolisise amava akho nge lupus kunye nobomi, ngokubanzi.
Ukongezelela ekufundeni izibongo, inkondlo yokubhala ingabangela uxinzelelo. Abanye abantu bagcina iincwadi zamaphepha ezizimeleyo okanye iiblogi ze-intanethi kunye nezibongo abazibhala malunga ne-lupus. Le yindlela yokubonisa nokulawula iimvakalelo zakho ngokuhlala nesifo.
Ukufumana imizekelo yeenkondlo malunga ne-lupus, yenza uphando lwe-intanethi yeenkondlo malunga ne-lupus, okanye khangela isahluko seengqungquthela kwiwebhsayithi eyaziwayo kodwa Awuyi Kugula.
Akunakunceda kuphela ukubhala izibongo, kodwa ukufunda izibongo malunga ne-lupus ebhalwe ngabantu abane-lupus kunokunceda abafundi bazive bebodwa kwaye baqondwe. Kwakhona kuphakamisa ukuqonda malunga ne-lupus kunye noko kuthanda ukuhlala nesi sifo.
Kwaye, ngaphezu koko, imbongo ayikho nje uhlobo lwezobugcisa obhaliweyo, kodwa kukho uhlobo lweengqungquthela ezibizwa ngegama elithethiweyo, njengolu hlobo lombongo uShanelle Gabriel malunga namanye amava akhe okuqala kunye ne-lupus.
Ubugcisa bobugcisa
Kakade, ubugcisa obubonakalayo njengomdwebo kunye nokudweba kunokunceda abantu bajamelane ne-lupus, nayo. Usenokuziva uphefumulelwe ukuba udwebe umfanekiso ukuhamba nenkondlo enentsingiselo kuwe. Oku kunceda kakhulu abantu abakhetha ukuzityhila ngokwenza umboniso okanye imifanekiso ebonakalayo kunokuba asebenzise amagama.
Ukudweba, ukudweba kunye nokuthatha inxaxheba kwezobugcisa kunokubangela ukuphazamiseka okulungileyo kwintlungu yomzimba kunye nengqondo yokugula. Ngokomzekelo, "Indlela yokudweba ikunceda njani ukuba ndiphile ngumhlaza," umculi u-Andrea Feldman wabhala malunga neengqungquthela zakhe zobugcisa, "Xa ndihlala ndiphaphekile, ndandibuhlungu, kodwa ukupenda kwandinceda ndiphazamise ukukhathazeka kwam emzimbeni nangokomsindo. ukupenda xa ndikwazi ukwenza okunye okunye. Kwaba yinto eyingcwele yokunyamezela, ukukhusela okukhuselekileyo kwemibala yemibala kunye nemilo. "
Ukongezelela, ubugcisa bokubukeka bunokusebenza njengethuluzi elinamandla lokukhuthaza. URegina Holliday wadala inkuthazo yokumema ebizwa ngokuba yiThe Walking Gallery. Izigulane, abacebisi, kunye nabanikezeli bezonyango bakhenyayo amabali ngesigulane emva kweebhatyi zeshishini zoshishino. Kwiwebhsayithi yakhe, wabhala malunga nenkuthazo kunye nabathathi-nxaxheba bayo "Baya kwiinkomfa zezokwelapha apho zikho iisithethi zesigulane kwishedyuli okanye kubaphulaphuli. incoko. "
Ifilimu
Ukubukela iifilimu kungaba ngamava emilingo kunye nendlela ejabulisayo yokubaleka ngokukhawuleza. Iimvumi nazo zingabonakalisa amafilimu anamandla anceda ukuphakamisa ulwazi malunga nebali elithile, imbambano yoluntu, izifo okanye ukukhubazeka, njalo njalo. Iimvumi ziyinxalenye ebalulekileyo yamasiko amaninzi ukuba kukho i-Spoonie Film Club apho abantu abanezifo ezingapheliyo bahlangana kunye, kwi-intanethi, ukubukela nokuxoxa ngeefilimu.
Kukho iifilimu ezikhethiweyo ze-Oscar malunga nezifo nokukhubazeka, kwaye abanye babo benza umsebenzi omhle kunye neentetho zabo. Kwaye ke kukho amabali okwenyani, evela kumthombo, oyalelwe kunye nokudala kunye nabantu abanenkwenkwezi yokugula okungapheliyo.
Ngokomzekelo, i-documentary, i-Priority Seating, eyalelwe ngu-Andrea Sorkin malunga nokuba ubomi bunjani kubasetyhini abanezifo ezizimele. Kulo mfilimi wachaza isizathu sakhe sokwenza uxwebhu, "Ndiyathemba ukuba ndizakuphuma ekupheleni kwale nto ukuze abantu abanjengawe babe nokhetho oluninzi. Ukuze abantu abanjengaye bangayi kuba matyala ebomini babo bonke ngenxa yokuba begula kakhulu ukuba bangasebenzi. Ukuze abantu abanjengawo bafumane iphupha kwaye bangabikho ukukhubazeka okungabonakaliyo. "
Umculo
Njengamanye amafomu obugcisa, kokubili ukuphula nokudala umculo kunenzuzo yezempilo. Kwaye kukubaluleke kakhulu ukuba iingoma zokubhala zidibanisa zombini umculo kunye nezibongo-phantse nje ngeqondo lokuzibamba kunye nokuxinwa kwengcinezelo.
Umculi uChris Joyner usasaza i-lupus awareness nge-rock n 'roll. Udadewabo, u-Dawn, une-lupus kwaye wabhala ingoma yakhe ebizwa ngokuthi "Gcina kwaye Gcina." Oku kubonisa indlela ongenayo ukuba ne-lupus ikwazi ukuzuza kunye nokuchaphazela abanye ngobugcisa bakho.
Umculi we-Jazz uStephanie Moore, onomdla we-lupus, wabelana ngokubaluleka komculo ebomini bakhe, "Umculo kum unyango wam, yinyango yam, inxalenye yeqela lam lobuhle kunye noogqirha bam. Kungakhathaliseki ukuba unayo i-lupus okanye nasiphi na esinye isifo, unayo ingoma ngaphakathi kuwe efuna ukuvakala, wonke umntu unomculo. "
Ngoko nokuba ungacula ingoma yakho okanye kunye nenye ingoma, musa ukulibala ukubaluleka kokucula. Ukucula kudibaniswa neenzuzo ezininzi zezempilo kunye neemeko. Kodwa kuyavuya!
Ukuba ubhale ingoma kwaye ungathanda ukwabelana nomsebenzi wakho nabanye kwi-lupus yoluntu, i-YouTube kunye namanye amajelo eendaba ezentlalo ziindawo ezithengisayo. I-website ye-Lupus Awareness Gallery ebonakalayo, enezindlu ezahlukeneyo zezobugcisa, yenze iNkqubo yeNgoma apho ungayithumela khona umsebenzi wakho.
Uhlobo
Ngubani ongafuni ukuhleka ngaphezulu? Mhlawumbi kuhle ukuba ukuhleka kukuhle kuwe. Kodwa kukho impela, iinzuzo zezempilo ezibhalweyo ukuhleka. Ngaphezu koko, kuyisisombululo sokubambisana esihle.
Abantu benza zonke iintlobo zezinto zokongeza ukuhleka ebomini babo-xelela amahlaya, bukela amafilimu ahlekisayo, uye kwiimiboniso zohlaziyo. Ngokuchasene noko abantu abangaphandle kweqela le-lupus bangacinga, ukuhleka okukhulu kuqhubeka kumaqela asekela i-lupus kuba abantu bathetha ngamacandelo malunga necala elingenangqondo le-lupus enxulumene nabanye.
Kodwa kuthekani ukuba sinokufumana ngakumbi ngakumbi kwaye kuthekani ukuba kukho umculi kunye nomculi obalalisa iingoma ezihlekisayo ngokubhekiselele kumava akhe ngama-lupus nokugula okungapheliyo? Nantsi lapho! UCarla Ulbrich, owaziwa nangokuthi Umculi Oculayo, ungumlobi, umculi, kunye nomculi obhala iingoma ezinezihloko ezifana ne "Prednisone" kunye ne "Sittin" kwiGumbi lokulinda. " Iingoma zakhe zibonisa i-lupus yamava okwenene kodwa yenza ukuba uhleke kwinkqubo.
Mhlawumbi uvakalelwa kukuba uhleka nge lupus namhlanje kwaye ufuna nje kuphela ukuphazamiseka okuqhelekileyo, kodwa ukuphazamiseka okumnandi. I-YouTube inomdla wokuphela komdlalo wokumisa. Jabulela.