Ngaba Abadala Abazimeleyo Banezingane?
Ngaba umntu omdala one-autism ngaba ngumzali onempumelelo? Impendulo yinto ewe, phantsi kweemeko ezifanelekileyo. Nangona umntu onomodareyitha oyimodeli okanye onamandla kakhulu engenakwenzeka ukuba abe nezakhono kumzali umntwana, abaninzi abantu abane- autism ephezulu esebenzayo bayilungele , bazimisele, kwaye banako ukuthatha imingeni yokukhulisa abantwana. Imiba emininzi yobazali iyanzima kakhulu kumama kunye nabagadi kwibala.
Kodwa, ngokuqinisekileyo, kunjalo kunjalo: zikho iindlela ezenza lula ukuba umzali ukuba u-autistic (ngakumbi ukuba unabantwana kwi-autism spectrum).
Ukusebenza ngokuphezulu kwe-Autism kunye nobuzali
Ngowe-1994, iNcwadana yokuHlola kunye neSatistim of Disabilities (DSM) yaguqulwa ukuba ifake uhlobo olutsha lwe-autism. Ebizwa ngokuba yi- Asperger syndrome , yayiquka abantu ababengeke baqatshelwe ukuba yi-autistic. Ukongezwa kwe-Asperger syndrome kwi-DSM kwatshintsha indlela abantu abaye bacinga ngayo nge-autism.
Abantu abaneli fomu ephezulu yokusebenza nge-autism babehlakaniphile, banako, kwaye bahlala bephumelele. Ngelixa bebe neengxaki ezibalulekileyo kunye neengxaki zentlalo kunye nolonxibelelwano loluntu, bakwazi (ubuncinci bexesha elithile) ukuba bahlambulule, banqobe, okanye baphephe le mingeni. Abantu abaninzi abane-Asperger syndrome batshata okanye bafumana amaqabane, kwaye baninzi banabantwana.
Ngenxa yokuba i-Asperger syndrome ayizange ibe khona ngowe-1994, bambalwa kakhulu abantu abakhulile ngaphambi kwelo xesha bathola into efana ne-autism i-diagnostic-bonyane de babe nabantwana ngokwabo.
Emva koko, ngezinye iimeko, xa befuna ukuxilongwa kubantwana babo, abazali bafumanisa ukuba nabo baxilongwa kwiphepha eliphezulu le-autism.
Okwangoku, abantwana bekhulayo abaye bafumana i-Asperger syndrome exilongwa njengabantwana. Aba bantwana babekhulile nge-autism ukuxilongwa kweembalo kwaye bafumana iindlela zokuncedisa ukuba baphathe imingeni yabo.
Kwabanye abantu, i-autism kunye nemingeni yalo yayimile kwindlela yokuba ngumzali. Nangona kunjalo, abanye abaninzi, akuzange kwenzeke. Kwaye, ke, abantu abaninzi abane-autism bafuna nje ukuba baninzi abaontanga babo abafunayo: intsapho.
Ngo-2013, i-Asperger syndrome njengesigaba sokuxilonga sasuswa kwi-DSM . Namhlanje, abantu abaneempawu eziphezulu zokusebenza ezibizwa ngokuba yi-Asperger syndrome ngoku sele "i-autism spectrum". Oku, akunjalo, kwakungekho mpe mbelelo kubantu abathile ukuba babe (okanye bangabi) ngumzali.
Iingoma ngeBavis Autistic
Kukho ininzi yeengcamango ezungeze i-autism . Ezi ngqungquthela zingenza kube nzima ukuqonda ukuba umntu onamandla angaba ngumzali omhle. Ngethamsanqa, iinkolelo ziyi-definition, akunjalo! Nazi ezinye ezimbalwa ukungaqondani malunga ne-autism:
- Abantu abane-autism abazivekanga iimvakalelo eziqhelekileyo . Ngelixa abantu abane-autism banokuba neempembelelo ezahlukeneyo kwiimeko ezithile okanye amava kunabanye babo oontanga, ngokuqinisekileyo baziva bevuyo, umsindo, inzululwazi, ukukhungatheka, ukunwabalala, uthando, kunye nezinye iimvakalelo .
- Abantu abane-autism abanakuthanda. Njengoko kuchazwe ngasentla, oku akunjalo.
- Abantu abane-autism abakwazi ukuvakalelwa ngabanye . Kwezinye iimeko, kunokuba nzima kubantu base-autistic ukuzifaka ezicathulweni zomnye umntu ofuna, uzive, okanye uphendule ngeendlela ezingaphandle kwamava abo. Kodwa ke oku kunjalo kubo bonke abantu: kunzima ukuvalelwa, umzekelo, nomntwana ofuna ukwenza izinto ongazithandiyo okanye ongazithandi izinto ozithandayo.
- Abantu abane-autism abakwazi ukuthetha kakuhle . Abantu abane-autism esebenzayo basebenzisa ulwimi oluthethiweyo kunye (okanye bhetele kuneentanga). Noko ke, banokuthi babe nobunzima "noonxibelelwano loluntu," oko kuthetha ukuba banokufuna ukusebenza nzima kunokuba abaninzi banengqiqo yolwimi lomzimba okanye iindlela ezifihlakeleyo zonxibelelwano.
Ukucamngca kobuzali nge Autism
UJessica Benz waseDalhousie eNew Brunswick, eCanada, unina wabantwana abahlanu. Wamkela ukuxilongwa kwe-autism njengesiphumo sokufuna iimpendulo kwimingeni yabantwana bakhe. Nazi izibonakaliso zakhe kunye neengcebiso malunga nomzali njengomdala kumbono we-autism.
Yintoni eyakhokelela ukuba ufumane ukuxilongwa kwakho kwe-autism? Ngaba ucebisa ukuba ufuna ukuxilongwa ukuba ucinga ukuba unako ukuxilongwa?
Ukuxilonga kwam kwavela njengomntu omdala emva kokuba sele kufunyanwe abantwana bam babini kwaye saqala ukuxubusha imbali yentsapho kunye nenye yeengcali zengqondo esisebenza nabo. Xa ndathetha amava athile njengoko umntwana elala kunye noko ndabona kubantwana bam, i-bulb light Ndaqhubeka nokuhlola nokuhlola ukusuka apho ukuba ndiziqonde kangcono njengomntu, kwaye njengomzali.
Ndicinga ukuba ulwazi oluninzi luhlala lungcono, ngakumbi ngathi. Ukuba umntu uvakalelwa kukuba i-autism inokuba yinxalenye yendlela yokwenza izinto ezenza ubomi babo, kuyafaneleka ukubuza malunga nayo kwaye ucele uvavanyo. Njengokuba sihlola iileyile zokuhlamba iimpahla zokunakekela, bhetele siqonda ukuba yintoni eyenza ubomi bethu kunye, sinokuthi siqiniseke ukuba sisebenzisa izilungiso ezifanelekileyo ngokuzondla kunye nokusebenzisana nabanye abantu.
Ngaba ukufunda ukuba wena u-autistic kuthintela isigqibo sakho sokuba (ngaphezulu) abantwana? kwaye ukuba kunjalo, wenze njani isigqibo?
Ngokuqinisekileyo, ukwazi ukuba ndim autistic kwachaphazela izigqibo zam, kodwa ngeli xesha ndifunyanwe, sasinezingane ezintathu (ngoku sinesihlanu). Ngoko akuzange kusenze sibe nosongelo lokuba nabantwana abaninzi, kwakuthetha nje ukuba sinokuqonda okuntle kakhulu kubantwana esinabo. Ukuqonda kangcono indlela ndivakalelwa ngayo ngamanye amaxesha, kutheni ndicinga ukuba ezinye izinto zilula kakhulu kwabanye abantu kunokuba bekunjalo kum, kwaye ndivakalelwa ngathi andizange ndenze konke ngokufanelekileyo, wandinika amandla okudala utshintsho oluhle ngaphakathi ubomi bam kuba ngumzali onomdla kunye nomnqophiso.
Ndikhumbula ndivakalelwa enetyala xa mna wam omdala ndingumncinci ukuba ndikhangele phambili kwixesha lokulala. Ndandiziva ngathi kwakungowokuqala ndiphefumula kuba wayedla ngokusa. Kwakungenjalo ukuba andithandanga ukubeletha, ndandiyithanda kakhulu kwaye ndandithanda ukuhlolisisa ihlabathi naye. Kodwa igalelo ndivakalelwa kukuba ndikhangele phambili ekuphumeni kunye neeyure ezimbalwa ngaphandle kokuba 'ndidideke.' Ukuqaphela ngokuzifumanisa kwam ukuba loo mizuzu yimizuzu iyimfuneko yokuzinyamekela kwandinceda kumzali ngaphandle kokudinwa kunye nokutshitshiswa kwam ngaphambili.
Ngaphezulu, ndaziqonda ezinye izinto endizidinga ukuba ndibe nazo ukuze ndizive ngathi ndingakwazi ukuphumelela njengomzali. Ndandisoloko ndibe ngumntu ohlelwe kakuhle ngokulandelelana, ukucocwa, ukucwangcisa nokucwangcisa. Ukubuyisela indlela yokubuyela ebomini kubangele uxinzelelo olukhulu xa ndifuna ukuba izinto zifezekiswe kwixesha elifanelekileyo, okanye xa kwakukho imfuno engalindelekanga.
Ukujika, ukubeletha kuzaliswe izidingo ezingalindelekanga kunye neetemthebhile ezingezizo! Ndagqiba ekubeni ndizame ukusebenzisa izinto endandisebenzisayo ukuxhasa abantwana bam ebomini bam, kwaye ndothuka kukuba, izinto zafika lula. Ndaqalisa inkqubo yokulawula indlu, isimiso sokulawula usuku. Ndiqinisekisa ukuba ubhala ishedyuli yemihla ngemihla (kunye nezixhobo ezibonakalayo kunye nabantwana abasebancinci) ukuze sikwazi ukubona konke okwenzekayo ngalunye suku kwaye sazi indlela yokucwangcisa kwangaphambili.
Ukuqaphela nje ukuba ndifanelwe ukuzinika inkxaso efanayo ndiyinika abantwana bam kwenza ukuba ndive ngathi ndidibana neentetho zam kwaye ndibonise abantwana bam ukuba banako ukwenza okufanayo nabadala kunye nokulawula ubomi babo. Abantu abaninzi bakuva igama elithi autism kwaye babone umntu ofuna abanye abantu ukuseka ezo zinto.
Kubalulekile kum ukuba abantwana bam babone ukuba banako ukuqondisa ubomi babo kunye nokukhuthaza ubomi babo kwiimfuno zabo. Ukumodareyitha ukuba ndiyindlela enye abakwaziyo ukuyibeka ngokuqhelekileyo into edla ngokuva 'njengeemfuno ezizodwa.' Sonke sinesidingo esithile, kuquka nabantu abanomdlavuza. Sinembopheleleko yokuxhobisa abantwana bethu ukuba baqonde kwaye baxhase iimfuno zabo.
Ngoku, kutheni sinabantwana abathathu? Ndiyathetha, zivakala, zixakeke, zitshilo, zinyana, kwaye umntu uhlala ephazamisa omnye umntu. Nangona kunjalo, bayaqonda ngokubanzi, bayaxhasana ngokupheleleyo. Ehlabathini apho ubuhlobo kunye nokusebenzisana kwentlalo kunzima, aba bantwana bayakhula bexhamla ekufundeni ukudibanisa nokusebenza ngokubambisana ukuba baxhotyiswe ngokufanelekileyo kunye nabanye abantwana. Baya kuhlala benokwesekwa kwintsapho ebomini babo abayiqonda ngokupheleleyo, nangona bengenakuvuma ngaso sonke isikhathi. Kubalulekile kuthi.
Ngaba ufunde ukuba wena u-autistic utshintshe indlela umzali wakho? Ngokomzekelo, ngaba unqume ukucela uncedo olungakumbi, utshintshe indlela ophendula ngayo 'ukuziphatha okubi' njl.
Ingenze ndenze ngenyameko, kwaye ndiyazi ngakumbi. Kwakhona ndinike indawo yokuba ndivume ukuba ndikunyanzelekile ukuhlangabezana neemfuno zam ukuze ndikwazi ngakumbi ukuba ngumzali wam abantwana. Ndifunde ukuqonda xa ndixakekile ngaphambi kokuba ndifike kwisigaba sokutshisa, kwaye ndifunde ukuthabatha ixesha lokutshiza.
Ndiye ndibonise ngobuntwaneni bam, kwaye ndandiziva ndiziva njani xa ndingenakuyeka ukumemeza into emele ukuba yinto encinci, okanye xa ndafika ekhaya esikolweni kwaye ndandifudumele ngenxa yesizathu. Ndikhumbule ihlazo endava ngayo ngomntwana ngalezo zinto, kwaye ndifuna ukuqinisekisa ukuba abantwana bam abanakuvakalelwa ngaloo nto. Ndenethamsanqa, kwaye ndafumana umzali ofanelekileyo kunye nokuphendula kwabo kwizinto ngengozi, ngenxa yobuzali ababendiqonda kakuhle.
Andizange ndihlwaywe kwaye ndandisoloko ndithandwa ngokungathandabuzekiyo ngalezo zitshatyalazi, nangona andingazi ngoko oko kuphazamiseka. Kodwa ndiyakhumbula ndiziva ndihlazo lokuba ndingakwazi ukulawula iimvakalelo neemvakalelo kwindlela wonke umntu obonakala ngathi uyakwazi. Ndingumfundi oyisibonelo, soloko ndihlala phezulu kwiklasi lam, kwaye ndahlala ngothuswa ngumntu ofumanisa ukuba ndandidanduluka kuba ndimele ndithethe umhlobo kwintengiso.
Ndizama ukunceda abantwana bam baziqonde. Ndifuna ukuba bazi ukuba ndiyayiqonda isizathu sokuba into engalindelekanga ingayikhupha yonke imini kwaye andibagxeka okanye ndizive ngathi kufuneka bakwazi ukuhlangabezana kangcono. Ukuba ndayazi ukuba ingqondo yam ayizange ilandele izinto ngendlela wonke umntu akwenza ngayo, ndicinga ukuba ndibe nomsindo kum. Njengomzali, ndifuna ukufundisa abantwana bam ukuba babe nomusa kubo.
Ziziphi iintlobo zemingeni yomzali ojamelana nayo NGABA ungo-autistic?
Masiqale ngemini yokudlala. Ezi zihlobo olukhethekileyo lusizi kum. Okokuqala, ndithatha itani labantu abaza kwindawo yam (uEgad-no!) Okanye kufuneka ndiyithathe abantwana bam kwimeko yomntu. Ngokubanzi, abanye abantu banokungakhuselekanga nabantwana, kodwa akukho bani ngaphandle kwabanye abazali abakhulisa abantwana abane-autism EPHANGILEYO abantwana abangenasiphene. Ngoko, ndamkelekile ukuba ndihlale ndiqaphele ukuqiniseka ukuba akukho nto iphukile xa izama ukubethelela intetho encinci kwaye ingazange ndiyazi xa ndiyeka ukuthetha. Yonke imidlala yokudlala idinga yonke imva kwemva yokusilela sonke, kwaye mhlawumbi nobusuku be-pizza bendiza ukuba buyele kwakhona.
Masiqhubekele kwimingeni yecala . Ndiyindoda echazwe umsebenzi wephupha yayiyindoda yomlilo. Akunabo abantu, akukho sandi, akukho nto yokungena, ukuthula kunye nendawo evulekile. "Ngaba awunakukhathazeka?" abantu babuza. Andizange ndiyiqonde loo mbuzo.
Ngokucacileyo, ubomi kwindlu enezingane ezinhlanu bubukeka buhluke. Iintloko zeeHowphone zihlala zikhona kwindlu yethu. Kwiminyaka embalwa edlulileyo ndadinwa ngumsindo kumntu wonke ukuba 'Vula phantsi!' Ndayeka kwaye ndafumana wonke umntu i-headphone yakhe ukuze ndikwazi ukugcina umthamo wendlu ibe ngukugquma. Ixesha lokucima lithengiswanga. Uninzi lwaba bantwana bayeke ukulala, kodwa bacelwa ukuba bachithe ixesha elithile kwigumbi ngalinye ngosuku lokufunda ngokukhawuleza, bedlala kwi-tablet (oh, indlela endiyithandayo ngayo ubuchwephesha!) Kwaye ukhona nje ngaphandle kokuqhaqhawula iinqhekeza kunye neendonga.
Xa besesesikolweni, oku kusebenza kuphela kwiintsana ezincinci, kodwa ngeempela-veki kwaye kulo lonke ihlobo lilowo wonke umntu. Ngokuqinisekileyo, ndibaxelela ukuba kubalulekile ukufunda ukuphumla nokuzihlaziya. Kodwa ngokwenene, yindlela endifumana ngayo ukusuka ekupheleni komhla ukuya komnye ngaphandle kokuba ngumzali onqabileyo. Imizuzu engama-45 ininika ithuba lokuba nenkobe yekhofi eshushu, khumbula ukuphefumula uze ubuyele emva kwemini yexande kwaye ujabule.
Ngaba i-autism ngokwenene inokunceda wenze umsebenzi ongcono njengomzali wezingane ezine-autism? Ukuba kunjalo, njani?
Ngokuqinisekileyo. Ndicinga ukuba inxalenye enzima kunazo zonke abantwana abanabantwana abane-autism ayiqondi. Kulula ukuthetha zonke izinto ezilungileyo; Kulula ukuthetha ukuba siyazi ukuba abanakukwazi ukulawula ukutyhafa . Kodwa ukuba uyayiqonda ngokwenene loo mvakalelo, ukuba uzibonele, ukwazi ukuba kukuva njani ukuba ingqondo yakho iyabaleka kwaye ithatha imizwa yakho kunye nomzimba kunye nokuhamba-akunakwenzeka ukuchazela abantu abangazange bazibonele.
Nangona kunjalo, ukuba ndibone, linika i window kwithuba abahlala kuyo. Ivumela ukuba ndidibane nabo apho bakuyo, endaweni yokubacela ukuba badibana nam. Ivumela ukuba ndibe ngummeli onamandla kubo. Ivumela ukuba ndibaxelele ukuba, 'nangona umama uvakalelwa ngaloo nto.'
Ziziphi ezinye zamagcisa anokuthintela kunye nezicwangciso ozikhankanyileyo ukuba ungathanda ukudlula?
Yamkela indawo yakho yokuthuthuzela. Kukho ngenxa yokuba isebenza. Ukuba unokufumana ukusuka ekupheleni komhla ukuya komnye nomntu wonke othandwayo kwaye ahlonishwayo, edibene neemfuno zomhla kwaye ugcine wonke umntu ephephile, wenze okwaneleyo usuku. Ukuzali akukhuphiswano, awunqobi umvuzo wokuba ngumama wePinterest. Ukuba umntwana wakho ubonisa esikolweni kunye nekhati ngaphakathi kwangaphakathi ngenxa yokuba indlela efanelekileyo yayiza kulwa, ukuva umntwana wakho yinto ekhethekileyo. Ewe, nangona kwakuyimini yecala, kwaye ufike apho njengentsimbi yebell, ngelixa ubeka ii-pajama zakho ibhulukwe. Unokuba ufuna ukulungiselela iinjongo zangempela kwiintlanganiso ze-IEP-kubonakala kukubeka itoni efanelekileyo.
Ngaba wabelane ngokuxilongwa kwakho kwe-autism kunye nezingane zakho? Ukuba kunjalo, wenze njani loo nto?
Ewe, kuba bekuye ingxoxo eqhubekayo endlwini yethu, akuyiyo enkulu ibonakalisa. Sithetha malunga neurodiversity njengenxalenye ebalulekileyo yehlabathi, kunye nabo bonke abantu behlabathi abasebenza ngobomi babo ngokuhlukileyo. Ndiyimodeli yokudibanisa iimfuno zam kwaye ndikhuthaze abantwana ukuba benze okufanayo. Xa bandibona ndithi, 'Ndiyifumene, ndiza kuhlamba ihafu yehora,' kulula kakhulu ukuba ndixelele xa befuna ukuphuka kuba kuyinto evamile kunye eyamkelekileyo yethu intsapho.
Ngaba ufumanisa ukuba i-autism yakho yenza kube nzima ukulawula ukulindela kwe-neurotypical (phakathi kwabazali bezingane, oogqirha, ootitshala, njl njl)?
Kungaba, ngakumbi ukuba ndibonisa ukuba ndifumanisa njani. Sisandula ukuba nomntu osebenza kunye nomntwana oneminyaka emihlanu ubudala owayesetyenziselwa ukwenza izinto ezimbi kunye nokuxhaphaza. Xa ndivakalise ukukhathazeka kwam kwaye ndiveze ukuba ndifumene ntoni, wayebonakala eguqulekileyo, emva koko zonke izivakalisi zagqitywa, 'Ngaba uyaziqonda?' njengokungathi andinako ukukwazi nokukwazi.
Ndiyifumana ukuba ndibe nelizwi elivakalayo ngamanye amaxesha. Uninzi lwabantu endikusebenzisana nabo lukulungele ukuphulaphula kwaye lunomusa kwaye lubahlonela. Nangona kunjalo, ndinemfundo namava ukuba ndidwebe kwabanye abaninzi abantu, kwaye ndiyazibuza ngamanye amaxesha ukuba iimbono zam ezinamandla kunye nokukhuseleka okukhulu kubonwa njengomzali onzima ngaphandle kokubuyisela ingxelo yam.
Ndiyathanda ukungahambi kakuhle xa kufike ixesha lokuyeka ukuthetha, ukuyeka ukufundisa, ukuyeka ukuchaza, kwaye ndicinezele kude kube ngxoxo ihamba. Ngamanye amaxesha, andicinga ukuba ihamba kakuhle. Andizi ukuba ndiya kuba ngummeli ongekho kumava am. Ndingathanda ukucinga ukuba ndiza kuba lizwi lam iifana zam zifanelwe, kodwa ndikrokre ukuba ndibe ndingenazo iintlanganiso ezininzi ezinxamnye neendlela ukuba andizange ndiphile ngelo xesha kunye namava.
Ngaba zikhona iindlela zokwelapha ezinxulumene ne-autism ezikunceda ukuba uphathe kakuhle umzali?
Andizange ndifumene ubungakanani obufanayo-wonke ulwaphulo olusebenzayo naluphi na lwethu. Njengoko kungekho bantu ababini abane-autism abanesidingo esifanayo, akukho unyango oluya kuba nefuthe elifanayo kuwo wonke umntu.
Sisebenzise ubuninzi bezakhono ezithathwe kwipilisi yokusebenza ukuze kwintsapho yethu isebenze kakuhle. Sisebenzisa iishedyuli ezibonwayo, iinkqubo, kunye nokusebenza ezininzi kwizakhono zobomi ezisisiseko. Sisebenzisa unyango lwentetho , kunye ne-PECS njengoko kuyimfuneko ukuququzelela ukunxibelelana. Senza i-yoga ifuna ukunceda ngomsebenzi othile wengqondo / umzimba, kwaye ngokwabo, into endiyifumeneyo yinto eyenziwa ngophando usebenzisa i-CBT ukuba ndifunde ukuvumela ukuhamba kwam ukulindela 'okuqhelekileyo' okungabikho nabani na, naphi na.
Ubuzali ngumba wokuba ngumkhokeli wezotyelelo; maxa wambi kufuneka uguqule uhambo ukuhlangabezana neemfuno zabantu bonke. Kufuneka uqonde indlela yokwenza ngayo ngendlela yokuba akukho mntu uvakalelwa kukuba alahlekile.
Ukuzaliswa kwabazali Ukuvela kuBawo nge-Lifelong Autism Diagnosis
UChristopher Scott Wyatt ungumdala omdala nge-autism (kunye ne-PhD) obhenkcela ngamava akhe kwi http://www.tameri.com/csw/autism/. Yena nomfazi bakhe bangabantwana (kunye nabanokuthi bayamkela) abazali bezingane abaneemfuno ezizodwa.
Yintoni eyakhokelela ukuba ufumane ukuxilongwa kwakho kwe-autism?
Ekugqibeleni ifunyaniswa njengengqondo engalindelekanga ngexesha lokuzalwa, ilebula yokuxilonga iya kutshintsha yonke imbalwa embalwa. Kwakuyi "autism" ngo-2006 okanye xa i-DSM-IV-TR yatshintsha izinto kwakhona kwaye yayisasazeka. Ekubeni iilebula ziqhubeka zitshintsha , andiqinisekanga ukuba ziyanceda; ukuba nantoni na ayinqumle ukhetho kwimfundo yam. Namhlanje, sinomdla ngokuphathelele uvavanyo lwezingane zethu. Inokukunceda, kwaye inokulimaza.
Ngaba ukufunda ukuba wena u-autistic kuthintela isigqibo sakho sokuba nabantwana? Ukuba kunjalo, wenze njani isigqibo?
Hayi ncma. Silinde de sibe nekhaya kwaye sasilungelekile, mhlawumbi ngakumbi malunga nobuntu bethu ngokubanzi. Mna mna nomfazi wam sifuna ukubonelela ikhaya elihle, elizinzileyo nabani na abantwana, nokuba ngaba bemvelo okanye abazondayo-bamkele.
Ngaba ufunde ukuba wena u-autistic utshintshe indlela umzali wakho?
Kungenzeka ukuba i-autism yam ingenza ndibe nesigulane ngakumbi, ukuba nje ngokuba siyazi ukuba ndifumene njani imfundo kunye neenkxaso. Ndiyinyamezela iimfuno zabantwana ukuze zithule, zenze umyalelo kunye nomoya wokulawula. Ndiyazi ukuba izinto ezifunayo zilungele kwaye ziqikelelwa. Bakufuna oko, njengabantwana abancinci, kwaye baya kuwufuna ukuba sikwazi ukuwamkela.
Ziziphi iintlobo zemingeni yomzali ojamelana nayo NGABA ungo-autistic?
Asinayo inethiwekhi yenkxaso, ubuncinane kungekhona ngaphakathi kwendawo. Sinawo kunye nabantwana, kunye neenkxaso ezinikezelwa ezikolweni. Ngoko, ngaloo ndlela, asifani nabanye abazali kuba asinakho ukusebenzisana kwentlalo nabazali abaninzi. Ukudlala iintsuku akukwenzeka ngenxa yokuba abanye abantwana abasondeleyo bakhulile kunewethu.
Ziziphi ezinye iindlela zobuchule kunye nezicwangciso onokuthanda ukudlula ngazo?
Ixesha lokucima kunye neendawo zokuzola thina nabantwana. Iingxowa zeebhanki ezineencwadi zibanceda kakhulu. Sinezinto ezivelayo: iibhola zogxininiso, i-thoughtty putty, iibhola ze-spiky, kunye nezinye izinto abazodlala ngazo xa bexinezelekile.
Ngaba ufumanisa ukuba i-autism yakho yenza kube nzima ukulawula ukulindela kwe-neurotypical (phakathi kwabazali bezingane, oogqirha, ootitshala, njl njl)?
Ndiza kuphazamiseka ngokukhawuleza kunye nezikolo, abasebenzi bezentlalo kunye neenkundla. Andiyiqondi isizathu sokuba iimfuno zabantwana zingabalulekanga. Umfazi wam ukhumbuza ukuba ndihambe okanye ndihambe ngandlela-thile emva kokusebenzisa 'inkqubo' engasebenzi kubantwana.
Ngaba zikhona iindlela zokwelapha ezinxulumene ne-autism ezikunceda ukuba uphathe kakuhle umzali?
Andiyena umfana wezinto ezininzi zokuziphatha , ngokusekelwe kumava ambi. Iinkqubo zam zokusingatha zizobugcisa: umculo, ukudweba, ukudweba, ukubhala nokufota. Sifumene ukuba umbala kunye nokudweba kunceda amantombazana, naye. Xa amantombazana kufuneka adityanise kwaye aphinde ahlaziye, umculo (ngokumangalisayo, u-Elvis-Love Me Tender) usebenza.
Injongo yethu kukukhumbuza amantombazana ukuba iilebula azichazi kuthi kwaye akufanele zichaze zona.
> Imithombo:
> Deweerdt, uSara. Imihlali kunye nemingeni yokuba ngumzali nge-autism. I-Atlantic , ngoMeyi 18, 2017.
> Udliwano-ndlebe no CS Wyatt, ngoJulayi 2017
> Udliwano-ndlebe noJessica Benz, ngoJulayi 2017
> Kim, uCynthia. Umama: Umzali wokuzimela. I-Autism Women Network, uJanuwari 22, 2014.