I-Young Communicativity Syndrome

by Adrienne Dellwo; Ukuphononongwa nguGrant Hughes, MD

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Yintoni i-Juvenile Chronicly Fatigue Syndrome?

ONOKY - Eric Herchaft / Getty Izithombe

I-JCFS ye-Child's chronic fatigue syndrome (i-JCFS) ifana nomntu omdala ongapheliyo ukukhathala (i-CFS okanye i- ME / i-CFS ), kodwa kunye neemeko ezibalulekileyo. Kufanelekile ukujonga indlela esi sigulo esichaphazela ngayo abantu abancinci kunye nakwezinye iintlukwano abaphandi abaye bazichonga.

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Isisiseko Sokunyamekela Isifo Sokunyamekela

Ngaphambi kokujonga iinkcukacha ze-JCFS, kunceda ukuqonda ngokubanzi kweCFS.

Uphando lubonisa ukuba iCFS ibandakanya ukutyunjwa kweenkqubo ezininzi. Abaphandi abaninzi bakholelwa ukuba isimiso somzimba sisifo esibuhlungu kunene, kodwa inkqubo yesistim kunye ne-endocrine (hormone) nkqubo inokubandakanyeka.

I-CFS idla ngokuchazwa ngokuthi "inomkhuhlane ongeke uhambe." Kwezinye iimeko, inqanaba lesifo lihambelana nokuhamba ngexesha elide, ngelixa kwezinye lihluka ngokubanzi ukususela ngosuku nosuku okanye ngeveki ukuya kwiveki. Abantu banakho ukuhlanganiswa kweempawu ezininzi, kwaye kaninzi kunzima ukukholelwa ukuba ezi zimpawu ziyingxenye efanayo.

I-CFS ingxaki yokuphikisana. Akunabo bonke ababonelela ngempilo bakholelwa ukuba kukho, kwaye phakathi kwabo bakholwayo kuyo, akubona bonke abafundiswe kakuhle ngendlela yokuyixilonga nokuyiphatha.

Kwakhona Qaphela:

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Iimpawu ze-Juvenile Chronic Chronic Fatigue Syndrome

Kuze kube ngoku, uphando aluzange lucwangcise ukuba i-JCFS idla ukubonisa isethi ehlukeneyo yeempawu kuneCFS yabantu abadala.

Ukukhathala kweCFS akufani nabantu abaphilileyo xa bexinekile. Yona yinkqubo yokukhathala ekhethekileyo enokuba yingozi kakhulu. Kwakhona, ukukhathala akuwona kuphela uphawu.

Abantu abaninzi abaneCFS banempawu ebizwa ngokuba yi-malaise post-exertional, ebenza ukuba baphele amandla emva kokuzivocavoca kwaye kuthatha ixesha elide ukuba baphumelele ekusebenziseni. Umzekelo, umntu ophilileyo ogibela ibhayisikili yokuzikhandla njengokuba unako ukufumana imizuzu engama-20 unokukwenza ngokufanayo ngosuku ngalunye. Ngomnye u-CFS, ngakwelinye icala, akayi kukwazi ukuphinda asebenze ezimbini okanye iintsuku emva kokuqala kokufunda. Basenokubanjelwa ukukhathala, ukunyuka okukhulu, ukukhubazeka kwengqondo kunye neempawu ezinjengomkhuhlane weentsuku eziliqela.

Kwakhona ukuxhaphaka kwengqondo, okudla ngokubizwa ngokuthi "inkohlakalo yengqondo." Ingabandakanya iingxaki ngokuqwalasela, imemori yesikhashana, ukuthetha ngomlomo, ukugcina oko kufundwe kunye nokuqhelaniswa kwendawo.

Ezi zimpawu zodwa zanele ukukhubaza abanye abantu, kwaye zinokuba nezinye iimpawu ezininzi. Ezinye iimpawu eziqhelekileyo zeCFS ziquka:

Ukuphucula ubuthongo
Ukuxhalabisa, ezo zifundo zingabonakalisa ngakumbi kwiJCFS
Ukuxakeka kwintlupheko phezu kokuma (ukubizwa kakubi komzimba okanye i-postural orthostatic tachycardia syndrome)
Ubuhlungu kumalungu, ngaphandle kokubomvu okanye ukuvuvukala
Umqala obuhkungu
Intloko , umzekelo owawusandula ukugula
Iimpawu zethymph nodes
Ukukhwehlela okungapheliyo
Iimvakalelo zesisu ezinjenge-numbness, ukubetha okanye ukutshisa (ebizwa nge- paresthesia )

Abantu abaneCFS kaninzi banemibandela edibeneyo. Ngamanye amaxesha azinokudideka kunye neempawu, kodwa afuna ukuba athathwe kwaye athathwe ngokwahlukileyo. Izimo ezidibeneyo zibandakanya:

Ukuxinezeleka
I-irritable bowel syndrome
Fibromyalgia
Ukutya, iikhemikhali okanye ukungqongqo kwendalo / ukukhathazeka

Kwakhona Qaphela:

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Ziyintoni Eziqhelekileyo Ukuba I-Juvenile Isifo Sokuguquka Kwangapheliyo?

I-JCFS ithathwa njengeyinqabileyo. Ngokutsho kweCDC, ukugula kuchaphazelekayo phakathi kwe-0.2% kunye no-0.6% wabantwana abaneminyaka eyi-11-15 ubudala. I-CDC ithi kwakhona i-CFS ayifani ngokuqhelekileyo kubaselula kunabantwana abadala, kwaye ingaqhelekanga kubantwana kunabantwana abaselula.

Olunye uphando lubonisa ukuba i-JCFS inokwenzeka kakhulu kubantwana babazali abane-CFS yabantu abadala okanye esinye isifo esifanayo, esichaza ukuba inxalenye yezofuzo.

Kwakhona Qaphela:

Ngubani Ofumana iCFS?

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Ukuchonga i-Juvenile Chronicly Fatigue Syndrome

Ngeli xesha, asinayo inkcazo ecacileyo yokuxilongwa kwi-JCFS, ngoko ke oogqirha bancike kwiimfuno ze-CFS zabantu abadala. Kungaba ngumngeni ukufumana ugqirha oqonda iCFS, ngoko kufuneka uhlolisise oogqirha bezilwanyana, oogqirha beentsapho kunye nabanye kwindawo yakho ukuba bafumane olufanelekileyo.

Ukuxilonga i-CFS, ugqirha ngokubanzi uqhuba uvavanyo olupheleleyo kwaye wenza iimvavanyo kwizifo ezininzi ezingabangela iimpawu ezifanayo. Ngenxa yokuba akukho vavanyo lovavanyo lweCFS, lubonwa ngokuba "ukuxilongwa kokungabikho."

Inkqubo yokuchonga iquka:

Ukukhathala okungaxeliweyo okungaxeliweyo, kungekhona ngenxa yokuzikhandla, akuyikukhululeka ngokuphumla
Eminye okanye eminye impawu eziphambili, ezifana nenkohlakalo yengqondo, i-post-exertional malaise, ingabuyiselanga ukulala kunye neethambo ze-lymph nodes
Ukukhathala kunye nezinye iimpawu ziye zaba khona ubuncinane kwiinyanga ezintandathu

Kwakhona Qaphela:

Ukufumana iDokotela weCFS

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Unyango lwe-Juvenile Chronic Chronic Fatigue Syndrome

Akukho naluphi na uhlobo lweCFS. Kunoko, kufuneka siphethe iimpawu. Ulawulo oluphumelelayo lungakhokelela ekuphuculeni okukhulu ekusebenzeni nasekugangatho wobomi.

Kwakhona, asinalo uphando oluthe ngqo kwi-JCFS, ngoko kufuneka sithembele kuphando lwe-CFS yabantu abadala.

Akukho unyango olulodwa luboniswa ukuphucula zonke iimpawu zeCFS. Uninzi lwabantu lufuna ukudibanisa lwabo ulwalamano kunye nezicwangciso zolawulo. Oku kungathatha ixesha elininzi kunye novavanyo, olunokubandakanya izithintelo ezininzi. Nangona le nkqubo ihlala ide kwaye ikhungathekile, ibalulekile ukuba uphuculwe.

I-regimen yonyango ingaquka:

Amachiza okulawula iimpawu
Zondlo
Utshintsho lwezondlo
Ukubambisana, ukusetyenziswa ngokulinganayo , unyango lomzimba, okanye unyango olusetyenziswayo
Ukucetyiswa kwengqondo okanye ukunyangwa kwengqondo
Unyango ezifana nokusilalisa umzimba / umzimba okanye utywala ukulawula intlungu

Ngo-2012, uphando lubonise ukuba i-clonidine yezidakamizwa ibonakala iphephile ngokwaneleyo ukuqala iimvavanyo ezilawulwayo njengokuba unyango lwe-JCFS.

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Yiyiphi iPrognosis?

Ubungqina bubonisa ukuba isiqingatha okanye ngaphezulu kweentsholongwane kunye ne-JCFS inokubuyisela ngokupheleleyo kwisifo kwiminyaka emibini. Kwisifundo esilandelayo esilandelayo, abo abangazange baphinde bafumaneke bebexinzekile kwaye bekunzima.

Ukuxilongwa kwangaphambili kunye nonyango kuthathwa njengento ebalulekileyo ekwenzeni uphuculo olukhulu kwiimpawu. Ukuba uyakrokrela ukuba umntwana wakho unayo i-JCFS, kubalulekile ukufuna ukuxilongwa ngokukhawuleza.

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Iingxaki ezikhethekileyo ze-Juvenile Chronicly Fatigue Syndrome

Ukugula okungapheliyo kwanaluphi na uhlobo kunokuba nomthelela omkhulu ekuzithembeni. Oku kunokuba yinyani ngokukhethekileyo xa ugula lugxotha umsebenzi kwizinga elithathwa ngu-JCFS.

Abantwana abaneJCFS banokuziva 'behluke' kubahlobo babo nakwabantwana abafunda nabo. Basenokuziva bekhulile ngenxa yokuba abanakho ukuthatha inxaxheba kwimisebenzi enjengamanye abantwana. Kuqhelekile ukuba baziphophezele ukuqhubeka, okwenza ukuba iimpawu zabo zibe zimbi kancinci kamva.

Abantu abancinci abaneJCFS banokungaphuthelwa kakhulu esikolweni-ngokumalunga ne-33%, ngokubhekiselele kwisifundo esilandelayo esichazwe ngasentla. Oku kunokukhokelela ekuxinezelekeni okungakumbi, kwaye uphando lubonisa ukuba eli qela linokuthi libe ngabathengi kunye nokuzigxeka. Ezi ziqhelo zihlala zidibaniswa nokudakumba, ngokutsho kovavanyo lwe-2011.

Uphononongo olwenziwe ngo-2012 lubonise ukuba abantu abatsha abanalo mqathango banamaxhala aphakamileyo kwizinto ezininzi ezibangelwa zizifo zabo. Abaphengululi baqaphele izihloko ezihlanu eziphambili:

Ukulahleka kwentlalo kunye nokulungiswa
Ukungaqiniseki nokungaqiniseki
Ukuvakalelwa kwengozi
Uhluke
Ukwenza umnikelo ekubuyiseni kwabo

Izingane ekufundeni zenziwe zixhalabise kakhulu ngongxabano malunga nokuba i-CFS "yinyani," ukukwazi ukuchaza ukugula kwabo, ukuxhatshazwa, ukungakholelwa ngokugula, nokungathembeki kubantu abadala ebomini babo. Imindeni, oogqirha kunye nezikolo kufuneka ziqaphele ezi ngxaki kwaye zincede zisebenze kwizixazululo.

Iintsapho zala bantwana bavakalelwa ukuba banefuthe elikhulu. Unyango lunokubangela ubunzima bezezimali, kwaye ixesha, amandla kunye noxinzelelo oluchaphazelekayo ekunyamekeleni umntwana ogulayo kunokunyanzelisa ilungu ngalinye losapho kunye nolwalamano olusapho.

Ezi ngxaki zinokuqulunqwa ngokungakholelwa ekuguleni. Ngamanye amaxesha, abazali, ootitshala, abahlobo kunye nabaqeqeshi bezonyango bangakholelwa ukuba i-JCFS iyinyani, okanye ukuba umntwana unayo.

Kwiingxaki zemfundo, unokufuna ukujonga umqeqeshi, iiklasi ze-intanethi, okanye amakhaya asekhaya. Ngenxa yeengxaki zengqondo, kunokuba luncedo kuyo yonke intsapho ukuba isiluleko sengqondo.

Kwakhona Qaphela:

_Imithombo:

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_{I-Carter BD, et al.} _Pediatrics. _{Ngo-1999 ngoMeyi; 103 (5 Pt 1): 975-9.} _{Iimpawu zengqondo kwixhala elingapheliyo kunye ne-rheumatoid arthritis.}

_{Amacandelo okuLawula nokuKhuselwa kwezifo.} _{Syndrome Isifo Sokuphela (I-CFS): Ngubani osemngciphekweni?} _{Ufikelele ngoNovemba 2012.}

_{Fagermoen E, et al.} _{Amanqaku ophando lweBMC.} _{2012 u-Agasti 7; 5: 418.} _{i-doi: 10.1186 / 1756-0500-5-418.} _{I-Clonidine ekwenzeni unyango olungapheliyo ukukhathala kwesifo: isifundo somqhubi kwi-trial yeNCAPITAL.}

_{UFisher H, uCrawley E. Iingcali zengqondo kunye neengqondo zengqondo.} _{2012 u-Oktoba 23. [I-epub phambi kokuprinta] Kutheni abantu abatsha abaneCFS / ME beziva bexhalabile?} _{Uphononongo olululo.}

_{Fuchs CE, et al.} _{Ingqondo yengqondo kunye neengqondo.} _{Ngo-Oktobha 11. Impilo kunye nobunikazi: Ukuzimela kwi-adolescence yengxaki yokugula ukugula kunye ne-juvenile idiopathic arthritis.}

_{UGarralda ME, uRangel L. Ingxelo yengqondo yengqondo kunye neengqondo zengqondo, kunye noqeqesho oluhlangeneyo.} _{2004 Mar; 45 (3): 543-52.} _{Ukuphazamiseka nokuxhatshazwa kwabantwana kunye nabantwana abaselula abanesifo esingapheliyo sokunyameka: isifundo sokuqhathaniswa kunye nezinye iingxaki zezingane.}

_{Grey D, et al.} _{Umbhalo wezonyango zokuphuhlisa nokuziphatha.} _{2001 Aug; 22 (4): 234-42.} _{Uthelekiso lweengqondo zentsapho kunye neentsapho ze-aolescents ezine-syndrome yokunyamekela okungapheliyo, i-rheumatoid arthritis, kunye neengxaki zengqondo.}

_{Huang Y, et al.} _{IiNqoloba zezilwanyana kunye neyeza zonyango.} _{2010 Sep; 164 (9): 803-9.} _{Ukukhathala kwangasemva kwintsholongwane kunye nokusebenza komzimba.}

_{Luyten P, et al.} _Psychiatry. _{NgoSeptemba 2011; 74 (1): 21-30.} _{Ukuzigqiba ngokuzimeleyo, ukuvelisa uxinzelelo, kunye nokukhathazeka kwengcinezelo kwizigulane ezinesifo esingapheliyo: ukulwa noxinzelelo.}

_{Missen A, et al.} _{Umntwana: ukunakekelwa, impilo kunye nophuhliso.} _{2012 Julayi; 38 (4): 505-12.} _{i-doi: 10.1111 / j.1365-2214.2011.01298.x.} _{Iimpembelelo zezemali nezengqondo kumama wabantwana abanesifo esingapheliyo sesifo (CFS / ME)}

_{Nijhof FL, et al.} _Pediatrics. _{NgoNovemba ka-2011; 127 (5): e1169-75.} _{I-adolescence engapheliyo yokukhathala i-syndrome: ukuxhaphaka, iziganeko kunye nokuxhatshazwa.}

_{Rangel L, et al.} _{Umbhalo we-American academy yengqondo yengqondo yomntwana kunye nentsha.} _{2005 Feb; 44 (2): 150-8.} _{Impilo yentsapho kunye neempawu kwi-syndrome engapheliyo, i-rheumatoid arthritis, kunye neengxaki zomzwelo zobuntwana.}

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