Gwema iimpazamo zokupha izipho ngezi ngcebiso
Ukuba umntu okhethekileyo kwiluhlu lwakho lwesipho uhlala ne- multiple sclerosis (MS), unokuzibuza ukuba ungathini kwaye akufanele uqikelele ukubanika. Nangona nasiphi na isipho esivela entliziyweni kufuneka sithandeke, nakhu izicwangciso ezimbalwa zokuphucula amathuba akho okuphumelela izipho.
Izipho Zokugwema Ukunika Abantu abane-MS
Masiqale ngezipho onokuziphepha ukuzinika abo abane-MS.
Nantoni na eyenza ivuse
Le yinto engeyona ingxaki embi kumntu onomdla we-MS okhuthazela imingeni yemihla ngemihla yokungasebenzi kakuhle . Izipho zeGag ezinjengokubetha iinqwelo zeqhwa okanye iintloko zeempondo zixhalabisayo kubantu abaninzi, kodwa kubantu abathile abane-MS, ingoma ephuma kwinto yokucula noma yokudansa ingayenza nayiphi na ingxoxo okanye izame ukuphumla.
Kufuneka uqikelele ngokucophelela ngezipho zesigaba esenza isandi, njengamawashi antique okanye amithombo amancinci. Nangona inxalenye encinci yeeseli zobuchopho "ixakeke" ngophawu oluvakalayo lwengxolo yomsindo lunokunciphisa umntu nge-MS phantsi okanye kukhokelela izinto ezibalulekileyo ezilibalekileyo.
Iikiti Zonyaka
Unokuthi uthethe kakuhle ngokuzama ukunceda umntu onama-MS "aphume endlwini engaphezulu." Yiyiphi enye indlela engcono yokwenza oko kunokubafumana isipho esidinga ukucwangcisa, ukulungiselela, nokubangela ukuba aba bantu 'bahlekise' rhoqo siseko?
Kodwa ingxaki kukuba umntu onama-MS akazi ukuba uya kuziva njani kwiiyure ezimbalwa, ubuncinci ngosuku oluthile nyanga nganye.
Xa umntu one-MS ethi ukhathele, ngokuqhelekileyo ukuxutywa kwesifo esingenakuphulukiswa kwe- MS ukukhathala .
Enyanisweni, abaninzi abantu abahlala ne-MS abazi ukuba i- symptom ye-MS iya kuvela "kukucaphukisa" ukuya kwindawo ekuphazamisa ngayo ukusebenza, okanye ubuncinci, igcina umntu engenaxesha elihle.
Ukuba ufuna ukuzonwabisa nomsebenzi kunye nomntu one-MS, babuze imibuzo emibini efana nale:
- "Liliphi ixesha lemihla elona lihle kakhulu?"
- "Ngaba ukhetha i-brunch ephulileyo kwihora elonwabileyo loluntu?"
Ukuze wenze isipho esiyimfuneko ngokwenene, xelela umntu nge-MS ukuba awuyi kufumana iimvakalelo zakho xa ufuna ukucela amaxesha ambalwa ngaphambi kokuphuma nabo.
Izipho "eziphefumlelweyo"
Nceda unganiki umntu onomfanekiso we-MS ngesitrato ngenqaku malunga nokukwazi ukwenza nantoni na obeka ingqondo yakho. Umntu one-MS udinga ngaphezu kwamazwi okukhuthaza ukuba athathe izibambiso zangaphambili zangaphambili. Ingqalelo ingaba yingozi.
Gwema izipho kunye nomyalezo wenkolo ngaphandle kokuba usondelene nalo mntu kwaye ungayazi kuphela ukuba ukholo lwabo lithetha ntoni kubo, kodwa njani kwaye bakukhetha nini ukubandakanya ebomini babo. Okufanayo kuya kwimilayezo yezopolitiko. Ungacacisi ukuba abantu abane-MS banempilo okanye babi kakhulu ngenxa yokuba umongameli othile okanye omnye upolitiki usekho.
Izifundo malunga ne-MS
Kukho izinto ezintle kwaye zihlekisayo apha nge-MS, njengama-t-shirts, ama-mug, kunye ne-armbands, ezininzi ezivela kwimibutho enxulumene ne-MS . Kodwa ngaphandle kokuba unayo i-MS, mhlawumbi akufanele unike esinye sezipho kumntu onomsebenzi we-MS.
Yintoni enokuba yinto enobungakanani okanye inentsingiselo kubantu abakwiqela elifanayo linokukhubaza xa linikezwa ngumntu ongaphandle.
Izipho ezinomxholo othi "Ufanele" Umyalezo
Abantu abane-MS bayazi ukuba (njengabo bonke abantu) "kufuneka" basebenzise ngakumbi kwaye "bafanele" bafumane uhlangothi oluhle lwaluphi na uhlobo. Abaninzi ababhemayo (ngaphandle okanye ngaphandle kwe-MS) bayazi ukuba "kufuneka" bayeke ukutshaya , kwaye ngubani phakathi kwethu ongeke azuze ekudleni okunempilo?
Akunabo ubulumko ukuxelela umntu (MS okanye cha) oko "bafanele" bakwenze, ubuncinane kungekhona ngesipho sesipho sokusebenza okanye incwadi malunga ne "Chicken Soup" yesifo esingapheliyo kunye neentsikelelo zayo.
Oku kunokuthetha ukuba i-MS iyiphutha lomntu, okanye ukuba banokulawula ngaphezulu kwesifo sabo kunokuba bacinge. Le miyalezo yesipho ingabangela iimvakalelo ezibuhlungu, yinto yokugqibela oyifunayo kumthandayo.
Iqela elimangalisa
Kanye nje ngokuba umntu onenkcukacha ze-MS akakwazi ukucwangcisa izinto ezinyangeni ngaphambili, naye ufuna isilumkiso esincinci ngaphambi kokuqalisa into ethile. Ingadinga ukucwangcisa i-nap kunye nokugcina amandla ngosuku awaziyo ukuba kuya kuba ngumsitho. Emva koko kukho izinto ezincinci kodwa eziyimfuneko, imisebenzi eyimfuneko yokunyamekela (umzekelo, imithi yokwenza ixesha, ukuzithengisa, ixesha elidinga ukujonga kakuhle ukuba uyazi ukuba kuya kubakho umthendeleko).
Amaqela angamangalisa angabamba umntu ophethe i-MS yolawulo abanalo phezu kwezinto abafuna ukuzenza ukuze balungiselele isiganeko esiphuthumayo, kunye nokuziphosa kwiimeko ezixakekayo ezingabonanga.
Izipho Zokuqwalasela Ukunika Abantu abane-MS
Nangona kukho isibalo sezipho onokufuna ukuphepha ukunika umntu one-MS, nasi ezinye iingcamango zesipho ezingabangela ukuthokoza okukhulu:
Khawuqwalasele umdla wabo
Cinga ngesithandwa somntu oyithandayo kwaye uthenge into enxulumene naloo nto. Ngokomzekelo, ukuba umhlobo wakho, ilungu losapho, okanye usebenza naye kunye no-MS uyathanda ukufunda iimvanoveli eziyimfihlakalo, zithenge omnye kumbhali ongabonakaliyo okanye ucinge ngekhadi lesipho kwisitreshi okanye kwi-intanethi. Ukuba banandipha imvelo, bathenge incwadi enhle okanye umfanekiso. Unokuziqwalasela ngokusayinela kwi-magazine subscription yamaphepha okanye ikhofi okanye iqela lewayini.
Banikela Ngokuzithandela kwabo
Ukunikela ngokuthandana nomntu oyithandayo kuyisipho esichukumisayo. Oku kuthethi, ungacingi ukuba uthando lwakho oluthandwayo okanye isiseko sino-MS. Makhe bakhethe, baze baqiniseke ukuba bahamba nayo.
Lungiselela iNdudu yokutya
Wonke umntu uyakuthanda ukunyanga ngoku. Cinga ukuthumela okanye ukuhambisa i-basketball esitsha, i-brownies, okanye iqoqo le-movie eyintandokazi. Ewe, khumbula ukuba lo mntu unemingcipheko yokutya okanye ukugula.
Yenza into
Ukwenza into ngokuqhelekileyo ihamba ixesha elide kunokuthenga enye into esitolo. Ibonisa ixesha, umgudu, kunye nenceba-zama ukwenza ikhadi, udibanisa inqanawa, ubhaka i-dinner, okanye uthwele umqala.
Ubukho Bakho
Ngelishwa, abantu abaninzi abane-MS bahlala behlangene, bobabini ngokoqobo nangokomfanekiso. Ukuhamba ubunzima kunye nokukhathala kunokukwenza ukuhamba ekhaya kunzima. Ukongezelela, ukuxhamla kokuhlala nesifo ababaninzi abazungezeyo abanakho kuba ipilisi enzima ukugwinya ngamanye amaxesha.
Khumbula, ubukho bakho ngokutyelela okanye nokuba umnxeba unokuhamba ngendlela ende.
ILizwi
Iingcebiso ezi ngasentla zenzelwe ukukukhokela, kodwa kunjalo, awusebenzi kuwo wonke umntu onomsebenzi we-MS. Ngokomzekelo, umhlobo osondeleyo kunye no-MS unokuvuyela kakhulu iqela elimangalisa okanye inomxholo okhuthazayo wokufunda.
Ekugqibeleni, themba izilwanyana zakho kwaye uhlale ucingisisa. Ukupha isipho kuyinto enandiphayo, enhle kwaye inokuqinisa ubuhlobo bakho nomntu.