Isifo se-Parkinson (PD) sisifo esiyinkimbinkimbi esibuchopho esingekho nje kuphela esenza ukuba kunciphise amandla okuhamba kodwa kudibaniswa nezinye iimpawu ezingekho iimoto ezifana neengxaki zokulala, ukuxinezeleka, ukuzitywa, kunye nokulahleka kwephunga. Ukongeza kwinkimbinkimbi yayo kukuba ininzi yeendlela ezikhoyo zePD zinemiphumo emibi ekunciphiseni ukusetyenziswa kwazo.
Nangona izazinzulu ziye zafika ixesha elide malunga nokuqonda i-biology ye-PD kwaye zihlakulela iindlela zokwenza imimiselo yomoya ukuze kuphuculwe impawu, kusekho imingeni ejikeleze le nto engabonakaliyo kunye neyoxhatshazwayo ("ukufa kweeseli zeengqondo").
Ekugqibeleni, sifuna unyango lwe-Parkinson, kwaye yodwa indlela yokufumana unyango ngowona uphando olongezelelweyo kunye nolwazi. Nangona kukho inani leziseko ezixhasa ngamandla isifo sikaParkinson, kuyinto eqhelekileyo ukubuza ukuba ngubani omele ugxininise kuyo. Oko kwathiwa, noluhlu lweziseko zeParkinson ezibonakala zifanelekile ngenkxaso yakho.
UMichael J. Fox Foundation
Umdlali okhuthazayo kunye noMichael J. Fox wabelane lakhe ngombali wokuhlala ne-Parkinson kwiwebhusayithi yesiseko. Kwakhona unomdla ngokukhuthaza ngenjongo yakhe (kunye nesiseko) injongo ephambili yokufumana unyango lwe-PD.
Uphando
Isiseko esizimeleyo sisifihlile malunga nomsebenzi wezophando kunye nendlela ekuxhaswe ngayo imali engaphezulu kweedola ezingama-700 eziye zazinikezelwa kuphando lwePD ukuya kutsho, okwenza isiseko sibe yimali enkulu yehlabathi engeyona inzuzo ye-PD yophando.
Yibayinxalenye
Enye indlela onokuzibandakanya ngayo ngakumbi kuMichael J. Fox Foundation kukuba yilungu leqela leQela Fox. Iqela le-Fox yinkqubo yokuxhaswa koluntu apho abantu baququzelele khona imicimbi ekhethiweyo yokuxhaswa ngemali, njengemizila yebhayisikili kunye neekonsathi, ukuphakamisa imali yePD yophando.
Kukho iqela leqela leQela le-Fox Young (YP) elisezidolophu ezintandathu e-United States, nakwiToronto, eCanada. Eli qela libandakanya abaneminyaka engama-20 ukuya kwe-30 ubudala abanemvelaphi yomsebenzi eyahlukeneyo, ininzi yabo inomdla kunye neParkinson . Ezi ngcali zithatha indima ekhethekileyo yobunkokeli kwaye zihlala zizimisele ukunyusa imali yophando.
Izibonelelo
UMichael J. Fox Foundation unikezela ubutyebi be-PD. Esinye isixhobo sokufundisa esisetyenziswayo yividiyo "I-Foxfeed Blog" ebonisa i-neurologist ne-disorder disorder specialist ejongene nezihloko ezichaphazelekayo ezinxulumene nePD.
National Parkinson Foundation
Eyasungulwa kuma-1950, iNational Parkinson Foundation, okanye i-NPF, ijolise ekuphuculeni ubomi balabo abahlala nesifo sikaParkinson.
Uphando
Olunye uphando olusisiseko luphando lweProjekthi yePhrojekthi ye-NPF yeParkinson ene-10,000 iqhaza. Injongo yale sifundo kukuhlola izinto ezininzi ezichaphazela ukuba umntu uphila njani nesifo. Uphononongo luquka oku kulandelayo:
- Ukuqonda iingenelo zokuzivocavoca kwi-PD
- Ukufunda indima yokudandatheka kunye nokuxhalaba kwimpilo yonke yomntu onomntu ongu-PD
- Ukuhlalutya ukuba kutheni i-PD ilawulwa ngokwahlukileyo kuxhomekeka apho umntu efumana ukunakekelwa khona
Yibayinxalenye
Enye indlela yokunceda i-National Parkinson Foundation iphakamisa imali ngokuqalisa i-Team Hope fundraiser, oku kuthetha ukucwangcisa isiganeko sakho okanye ukuthatha inxaxheba kumncintiswano wokunyamezela.
Wena kunye nabathandekayo bakho banokuthatha inxaxheba kuMhla wokuhamba, oqhutyelwa kwizixeko ezahlukahlukeneyo eUnited States. Esi siganeko sokuxhasa imali sikhuthaza nayiphi na intlobo "yentlangano" njenge yoga, tai chi, pilates, kunye nokuhamba.
Izibonelelo
Isisiseko esibalulekileyo esinikezwa nge-NPF yizahluko ze-NPF zendawo ezibonelela ukufikelela kumaqela enkxaso kunye nokusebenza kunye neeklasi zokuhlala kakuhle kwindawo yoluntu.
Ukongeza, ngewebhusayithi yabo, unokufumana i-NPF Centres of Excellence ezikhoyo kulo lonke ilizwe. Ezi ziko ziiiklinikhi zezokwelapha ezifundisa abantu abanengxaki yeParkinson. Baye babandakanye uphando olumalunga noPasinson.
Enyanisweni, amanye ala maziko ahlinzekela izilingo zonyango ukuba umntu onesifo sikaParkinson angabhalisa, ukuba afanelekile. Ukongezelela, amaziko athile anikezela ngemithi ethile ye-Parkinson, njengonyango lomzimba, unyango lomsebenzi, unyango lwentetho kunye nokucebisa. Amanye amaziko anikezela unyango lwe-P PD, njengento yokuvuselela ubuchopho, kunye nenkqubo equka ukuhambisa i-carbidopa / levodopa (iDopaopa) ngokusebenzisa ityhubhu emathunjini amancinci.
Association of American Parkinson Disease Association
I-American Parkinson Disease Association, okanye i-APDA, yasungulwa ngo-1961 kwaye isetyenzisile ngaphezu kwezigidi eziyi-170 zezigidi ekuboneleleni ngemfundo, ukukhuthaza ukuqonda, ukuxhasa uphando kunye nokunikezela ngeenkonzo kubantu abahlala nePP.
Uphando
I-APDA ixhaswe ngemali engama-46 yezigidi kwiingxelo ukuya kutsho kwaye ngoku igcina iiCandelo ezisibhozo zoPhando oluPhezulu olufumaneka kwizibonelelo ezinkulu zonyango kwi-United States. Kunyaka ngamnye, banikezela ngemali yocwaningo lomntu ngamnye kunye neentlangano kwizenzululwazi zifunda isifo se-Parkinson.
Yibayinxalenye
I-ADPA inikezela i-Optimism Walk, i-fundraiser ekhuthaza ukuhamba (phakathi kweekhilomitha ezintathu ukuya kweethathu) kwiindawo ezahlukeneyo kulo lonke ilizwe.
Ungaphinde uhambele iwebhusayithi yazo ukufunda iindaba zeendaba zabantu ezilungileyo. Ezi mabali zi-akhawunti ezihambayo zabantu ngendlela abaye bafunda ngayo ukuba baphile kakuhle kwaye baphile ngokufanelekileyo ngePD. Kwakhona uyamkeleka ukuba wabelane ngamabali enu ayenokuba yonyango kwabanye abantu.
Izibonelelo
Njengazo ezinye iziseko, izibonelelo zemfundo zininzi kwaye ziquka:
- Inkqubo yesahluko yesizwe kunye neenkcukacha zolwazi kunye nokuhanjiswa (I & R)
- Iincwadana zemfundo ezingama-30 kunye neephamflethi ezikhululekile kwaye zingathunyelwa kwikhaya lakho okanye zifunde kwikhompyutha
- Iphepha leendaba
- Umnxeba we-toll-free (888-606-1688) olawulwa ngumgqirha okhutshelwe ilayisensi onika ulwazi malunga nokuzivocavoca kwi PD
Izifo zePasinson's Foundation
I-Parkinson's Disease Foundation, okanye i-PDF, icacisa umsebenzi wabo wokugqibela njengenye yokufumanisa imbangela yokugula kunye nesifo se-Parkinson.
Uphando
I-PDF okwangoku ixhasa iinkqubo ezingaphezulu kwe-40 zesayensi kunye neeprojekthi ze-$ 5 ezigidi ngaphezulu. Ngokukodwa, baxhasa uphando kwiziko lezonyango eziphambili zezemfundo:
- IYunivesithi yase-Columbia University Medical (eNew York, NY)
- I-Rush University Medical Centre (Chicago, IL)
- I-Weill Cornell Medical Centre (eNew York, NY)
Banikezela ngemali yophando kunye nokuphuhliswa kwamaphulo emisebenzi yokukhetha iinjongo kunye nabazalwana bezonyango abanomdla kwi-PD.
Yibayinxalenye
Enye indlela yokubandakanyeka ne-Parkinson's Disease Foundation kukubonisa iiprojekthi zeProjekthi ye-Quilt ye-Parkinson. Olu phutho lwakhiwa ngabantu abangaphezu kwama-600 ababelana ngamava abo ngePD ngokusebenzisa imidwebo, imifanekiso, amagama kunye neempawu. Ngoku, unokrazula iipaneli zengqungquthela ukuphakamisa ulwazi kwindawo yakho.
Enye indlela ebalulekileyo yokubandakanyeka kukuxelela ibali lakho ukuba unePP okanye ukhulisa imali njengePower.
Izibonelelo
I-PDF inikezela ngezixhobo ezinengqiqo kulabo abanePD kunye namalungu entsapho, abahlobo, kunye / okanye abanakekeli. Ezinye zezi ziquka:
- Uncedo loncedo lukazwelonke olwenziwa ngabangcali beChinsinson abafumaneka kubo bobabini abahlala kunye nemeko kunye nabathandekayo babo
- "Uqeqesha umqeqeshi" kwinkqubo yabongikazi kunye neengcali zomzimba ukulungiselela ukhathalelo lwabantu abaneParkinson
- Ukuqhuba iintlanganiso ze-intanethi kumntu ofuna ukufunda ngeParkinson
ILizwi
Ngokuqinisekileyo, kukho ezininzi iincedo, imibutho, amaqela okukhuthaza, kunye noluntu oluxhasa isifo sikaParkinson kunezo zikhankanywe apha. Kodwa, sele usenza ngokunyaniseka kwakho ngokujonga kwisiseko esithile esifanelekileyo. (Ukuba aba azinjalo, nceda uqhubeke ucinga.)
Khumbula, ukukhetha ukusebenza kunye nesiseko esithile isitalato ezimbini. Nangona unikela ixesha lakho elixabisekileyo, imali, namandla kumbutho, qiniseka ukuba uya kuzuza into ethile-mhlawumbi ulwazi, ubuhlobo obutsha, iinkumbulo ezithandayo, okanye nje ukucinga uxolo.
> Umthombo:
> Schrag A, Horsfall L, Walters K, Noyce A, Petersen I. Ukuboniswa kwangaphambili kwesifo seParkinson kwinkathalo ephambili: ukuhlolwa kwetyala. Lancet Neurol. 2015 Jan; 14 (1): 57-64.