Ukuba wena okanye othandekayo uye watshelwa ukuba une-Rasmussen's syndrome okanye i-encephalitis kaRasmussen, unokuziva ukhululekile ekubeni wazi ukuba ekugqibeleni ufumanisa ukuba uyazifumanisa. Kodwa unokuba noxhalaba kakhulu malunga noko ungalindela kule meko.
I-Rasmussen's syndrome okanye i-encephalitis kaRasmussen ayiqhelekanga, kwaye kuqikelelwa ukuba kunokubakho abantu abangaphantsi kwama-2000 abahlala nale mqathango e-United States.
Nangona kungenakunqabile, kukho ulawulo lwezokwelapha lwe-Rasmussen's syndrome kunye ne-encephalitis kaRasmussen, nangona kukho ithuba elide lokuba uya kuqhubeka nokufumana ezinye ixesha elide nangemva kokufumana unyango kwaye kuya kufuneka ugcine unyango emininzi iminyaka.
Yintoni iRasmussen's Syndrome kunye ne-Rasmussen's Encephalitis?
I-Rasmussen's syndrome yigama elisetyenziswe ukuchaza imeko nangaliphi na ixesha ngexesha lokugula. Kukholelwa ukuba i-Rasmussen's syndrome ngamanye amaxesha ingabangelwa okanye ilandelwe luhlobo lokuvuvukala kwengqondo ebizwa ngokuba ngu-Rasmussen's encephalitis.
I-encephalitis ye-Rasmussen ngokwayo imeko apho ubuchopho bunamandla okwenjenjalo omzimba obangela ukuphazanyiswa okukhulu kwengqondo kwihlangothi elinye. Oku kungabonakalisa njengobunzima, ubunqongophala, iingxaki zolwimi okanye ukulahlekelwa kwengqondo (ukucinga kunye neengxaki zokuxazulula iingxaki).
Ngokuqhelekileyo, ukuvuvukala okusebenzayo akuphikiyo kwixesha elide, kodwa emva kokuqhawuka kwesibindi, abantu baninzi baqhubeka beva iimpawu. Ezi zimpawu zingabizwa ngokuba yi-Rasmussen's syndrome kunokuba i-encephalitis kaRasmussen ingabikho ubungqina bokuvuvukala okusebenzayo kwingqondo.
I-Rasmussen's syndrome yimeko eqhubekayo yezokwelapha eziqhubekayo iminyaka, ngamanye amaxesha emva kwezigaba ezinzima kakhulu zokuvuvukala kwe-encephalitis kaRasmussen. Ngamanye amaxesha i-Rasmussen's syndrome iyakwenzeka nangona kungenakucacile ukuba ikhona i-encephalitis kaRasmussen eyandulelayo.
I-Rasmussen's syndrome, efana ne-encephalitis kaRasmussen, ibonakala yimiphumo enzima ukuyilawula kwaye iphuma kwelinye icala lobuchopho. Abanye abantu abanesifo sikaRasmussen bafumana ubuthathaka kwelinye icala lomzimba, iingxaki zolwimi, okanye ingxaki ngezakhono zokuqonda.
Le meko ixhaphake kakhulu abantwana abaneminyaka engama-2 ukuya ku-12 ubudala, kodwa inokuchaphazela abantu nawuphi na ubudala.
Yintoni endimele ndiyilindele?
Ngokuqhelekileyo, ukuxhatshazwa okubangelwa yi-encephalitis kaRasmussen kunzima ukulawula ngamachiza, kwaye ngokuqhelekileyo kuthintela kwelinye icala lomzimba. Ukuxhwaba kudla ngokudibanisa nokuxubha kwelinye icala lomzimba, ngokuqhelekileyo ukulahlekelwa yintliziyo okanye ukunciphisa ukuqonda.
Ukuba une-encephalitis kaRasmussen, awukwazi ukukhumbula ukutshatyalaliswa ngokucacileyo, kwaye unokuziva uphelelwe ngumva emva koko. Ubuthathaka, iingxaki zeelwimi kunye nobunzima beengcamango ziqala ukuvela emva kweenyanga emva kokuqala kokuqala, kodwa ezi zimpawu zingenzeka ngokukhawuleza okanye kungekhona.
Ukuxilongwa kwe-Rasmussen ye-Encephalitis
Kungathatha ixesha elide ukuba unikezwe ukuxilongwa ngokucacileyo kwe-encephalitis kaRasmussen. Oku kungenxa yokuba akukho vavanyo olulula oluya kuqinisekisa le meko.
I-encephalitis ne-Rasmussen's syndrome ziyaxilongwa ngokusekelwe kumagqirha akho kwiimpawu zakho zekliniki kwiinyanga (okanye nokuba iminyaka) kunye novavanyo lwe-EEG kunye nokuhlolwa kwe- MRI yengqondo.
I-EEG kulindeleke ukuba ibonise umsebenzi wokuthungatha kwelinye icala lobuchopho. Kodwa le pateni ye-EEG ayinayo kwi-syndrome ye-Rasmussen, ngoko ke i-EEG ayiyiyo vavanyo ecacileyo, kodwa isetyenziselwa ukulungiswa kunye neempawu zakho, ezinye iimvavanyo kunye nogqirha lakho lokujonga imeko yakho.
Ingqondo ye-MRI kulindeleke ukuba ibonise umehluko omkhulu phakathi kwamacala amabini wengqondo. Ekuqaleni kwimeko yokugula, elinye icala lengqondo lingabonisa indlela yokuvuvukala ebonakala ngathi isifo. Kamva ebudeni begulo, ingqondo ye-MRI ingabonisa i-atrophy kwicala elichaphazelekayo, okwenene ukuhla kweengqondo ngenxa yomonakalo odeleyo ukuvuvukala. Ukubukeka kobuchopho be-MRI abukodwa kwi-encephalitis okanye i-Rasmussen's syndrome, kwaye iyaqwalaselwa kunye nayo yonke imeko ukuze ifikelele kwisigqibo sokuba une-Rasmussen's syndrome okanye i-encephalitis kaRasmussen.
Unyango no lawulo
Ukuba une-encephalitis kaRasmussen, uya kufumana amaninzi okulwa ne-anti-seizure amayeza ukukunceda ukulawula ukutshatyalaliswa kwakho. Ngamanye amaxesha, i-steroids isetyenziselwa ukunciphisa ukuvutha kwengqondo. Ukuba iqela lakho lonyango linesizathu sokukholelwa ukuba unentsholongwane yengqondo yakho (incephalitis echaphazelekayo ) , ngoko unokufumana unyango ukujolisa ukusuleleka.
Ukuba unobungozi okanye ubuthakathaka okanye nayiphi na into engeyiyo yegazi, kodwa akukho ubungqina bokuvuvukala, ke unyango lwenu luya kuba lujoliswe ekuphatheni ukutshatyalaliswa kwakho kunye nokulahleka kwakho kwegazi.
Ngamanye amaxesha, ukuhluthwa kwe-Rasmussen's syndrome kunzima kangangokuthi unokudinga ukuhlinzwa. Oku kutyunjwa kunokubandakanya ukususwa kommandla ochaphazelekayo wengqondo ukuba isifo kwindawo ethile ethile yengqondo yakho ibonakala ibangela umonakalo omkhulu. Ngokuqhelekileyo, inkqubo yokupasa ikhiqiza iziphumo ezinjengebuthakathaka okanye obuthathaka ngokupheleleyo kwicala elinye lomzimba. Ingenelelo lokuphandula kwi-Rasmussen's syndrome ijongwa ngokucophelela, kwaye yinto kuphela enokuthi kulindeleke ukuba uphucule umgangatho wakho wobomi.
Yintoni ebangela i-Rasmussen ye-Encephalitis ne-Rasmussen's Syndrome?
I-Encephalitis ukuvuvukala kwengqondo. Akucaci ukuba yintoni isizathu esona sizathu se-encephalitis kaRasmussen. Okwangoku, uluntu lwaseburhulumenteni lucinge ngamathuba amabini aphezulu:
- Ingabangela ukusuleleka kwintsholongwane eyenza ukuphendula kwamagciwane omzimba.
- Kungenzeka kubangelwe ukuphendula ngokuzenzekelayo (umzimba uzihlasela ngokwawo).
Ngelishwa, ngenxa yokuba imbangela ye-encephalitis kaRasmussen ayengaziwa, akukho nto iyaziwayo yokukhusela kwesi sifo esingavamile.
ILizwi
Ukuba wena okanye othandekayo wakho unesifo esingaqhelekanga njenge-encephalitis okanye i-Rasmussen's syndrome, kunokukunceda ukuhlangabezana nabanye abantu abaphila ngesifo esifanayo. Unokwazi ukufumana iingcebiso kwaye ufunde ngamava ahlangeneyo xa ujoyina iqela lokuxhasa kwaye uthetha nabanye abangakwazi ukunika izikhokelo kunye neengcebiso njengoko uhamba ngokuphila kunye ne-Rasmussen's syndrome.
> Imithombo:
> Nabbout R, Andrade DM, Bahi-Buisson N, et al, Impembelelo yobunzima bokuqala komntwana ukusukela ebusheni ukuya ekubeni ngumntu omdala: Imiba yokuguquka, i-Epilepsy Behav. 2017 Feb 27. pii: S1525-5050 (16) 30629-1. i-doi: 10.1016 / j.yebeh.2016.11.010.