Ukuxhamla kwiNgxaki yokuphila ne-MS
Ukulungelelanisa kuthetha ukuthintela kakuhle kwaye ulungelelanise kakuhle ekujongeni nomngeni wobomi, nokuba ngaba sisiganeko esibuhlungu, isigulo esingapheliyo, ubunzima obunzima, ubunzima bezemali, okanye omnye umthombo wokuxinezeleka okukhulu.
Njengesi sifo esingapheliyo, esikhubazayo, i- multiple sclerosis (MS) akungabazeki ukuba ubunzima, kubangela ukukhathazeka kwengqondo kunye nentlalo, kunye neempawu ezinzima ezifana nokukhathala, imiba yokuhamba, kunye nentlungu.
Kodwa ngokusebenzisa ukuzimisela ukulungelelanisa ne-MS, unokuphucula umgangatho wobomi bakho, kunye nokusebenza kwakho kwansuku zonke kwimisebenzi kunye neendima zobomi.
Iithintelo zokuQinisekisa kwi-Multiple Sclerosis
Ngokwaluphando olwenziwa ngabaphengululi kwiYunivesithi yaseWashington School of Medicine, kukho imithintelo ekuqinisekiseni i-MS. Eminye yale miqobo iquka:
Ukuxhaswa kweNtlalo kunye noLuntu
Unokuba uzive ukhululekile kubahlobo kunye / okanye amalungu omndeni ngenxa yokuba ukholelwa ukuba abayiqondi i-MS yakho. Kule meko, unokuzidelela ngokuhlawula ukubandakanyeka kwezentlalo. Kwiphepha le-flip, unganomuzwa ungabandakanywa ngenxa ye-MS yakho.
Iimpawu ze-MS ezifana nokuhamba okanye ukulinganisela iingxaki nazo zinganciphisa intsebenziswano yentlalo. Ngaphandle kokunciphisa umzimba, abaninzi abantu abane-MS banenkinga yokuqonda kunye nokukhubazeka ngokomzwelo njengokudandatheka kunye nokuxhalabisa, okungaqhubela phambili ukuhlalisa abantu.
Ukungaqiniseki kwe-MS yakho mhlawumbi idlala indima-ungathi "cha" kwiingxoxo zentlalo ngaphandle kokukhathazeka okanye ukwesaba ukuba awuyi kuziva kakuhle.
Stigma
Nangona ulwazi malunga ne-MS lubonakala ngakumbi kwaye lukwabelwana ngazo kunanini ngaphambili (ikakhulu ngenxa yokuba abantu bafumanisa ukuba kungekudala, kwaye iminyaka elishumi edluleyo ibone ukunyanga kwezilwanyana ezintsha), kusekho ezininzi iingcamango eziphosakeleyo ngesifo.
Ngokomzekelo, abaninzi abantu bacinga ukuba ukuba unayo i-MS, uzakufuna ngokuzenzekelayo isixhobo sokuncedisa ukuhamba . Abanye bacinga ukuba ukuxolelwa kwe-MS kuthetha ukuba uziva "uqhelekileyo kwaye ulungile." Oku akusoloko kunjalo, nangona kunjalo. Kwabaninzi abantu abane-MS, nangona bengakhange bafumane ubuhlungu obunzima, banyamezela iimpawu bahlala bengabonakali kwabanye njengengxaki yokucinga, ukukhathala , ukuxinezeleka, nentlungu .
Iingcamango ezingekhoyo kunye neemvakalelo
Uphando lubonisa ukuba abanye abantu abane-MS banokufumana umgangatho ophantsi wokuzixabisa nokugxila ekulahlekelweni kwamakhono okanye ubomi babenabo. Le ndlela engafanelekanga yokucinga iyayibala umgaqo wokuqina, okubandakanya ukwamkela iindima zobomi okanye utshintsho kunye nokufumana imisebenzi enenjongo xa ubhekene nobunzima.
Ukukhathala
Nangona nayiphi na impawu kwi-MS inokuba ngumqobo wokubambelela, ukukhathala kubonakala kukukhulu. Nangona ukhathala kuchazwe ngokukhethekileyo ngabantu abane-MS (umzekelo, "inkohlakalo yengqondo," "ukufana nomkhuhlane," okanye "ubuthakathaka"), into eqhelekileyo yinkxalabo enkulu, ngokuphindaphindiweyo engqondweni nasemzimbeni. Ubume bokukhathala buba ngumqobo omkhulu ekufumaneni izicwangciso zokuphatha kakuhle.
Indlela yokwenza ngcono ukulungelelana kwakho
Ukuba uvakalelwa ngathi itanki yakho yokumisela isondela kukungenanto, zikho izicwangciso zokuqinisa umoya wakho kwaye kukunceda ukuba uphumelele ngokukhawuleza kwiimfuno ezinxulumene ne-MS.
Ukuhlaziywa kungafundwa okanye kuphuculwe-akuyena nje umxholo onayo okanye ongenayo. Nazi ezinye iindlela zokuqwalasela xa uphucula ukuzinza kwakho:
Fumana iinjongo
Isicwangciso esinye sisilula: Yenza imisebenzi enentsingiselo, eyokunika injongo, injongo yokufezekisa, okanye uzalise umphefumlo wakho.
Le mi sebenzi iya kuba yinto eyahlukileyo kumntu ngamnye, kodwa imizekelo ethile yokufumana iingcamango zakho ziquka:
- Ukuthatha ikhofi okanye isidlo kunye nomhlobo osondeleyo okanye othandekayo
- Lononophelo
- Ukucwangcisa ukuzithobela-ukufumana ukuhlalisa okanye ukuyala amathikithi kumculo ozithandayo okanye ukudlala
- Ukufunda i-hobby entsha njenge-stitch okanye imifanekiso
- Ukuhamba ukuhamba okanye ukuqhuba imvelo kwindalo
- Ukusebenzisa i- yoga okanye ukucamngca kwengqondo
- Ukuhambisa iingcamango zakho ezinzulu
- Ukuya ecaweni okanye ukucwangcisa ukutyelelwa ngumcebisi ngokomoya
Funda ngePhysical Psychology
Esinye isicwangciso sokuphucula ukuzimisela kwakho kukufunda ngeengqondo ezilungileyo kwi-intanethi okanye ngeqela leenkxaso, kwiklasi yezemfundo, ootitshala bezempilo, okanye incwadi.
Unokumangaliswa ukuba ufumanisa ukuba uphando luxhasa ukusebenzisa i-psychological positive ukwenzela ukuqinisekiswa kwi-MS. Ngokomzekelo, i-week-week-positive psychology course ebizwa ngokuthi "Imihla Yemihla Yonke," (eyenziwe nguMbutho weSizwe we-MS) yafunyanwa ukwandisa ukuzimisela kubantu abane-MS ngama-20 ekhulwini.
Ikhosi yahanjiswa yi-teleconferenti kwaye yayiquka iintlanganiso zeqela zesebe-nganye ngeveki, kwakunye nevidiyo kunye nokufunda. Abantu abangazange bathathe inxaxheba kule nkomfa babengenalo utshintsho ekuqinisekisweni.
Ukuba ukhetha ukufuna uncedo lochwepheshe malunga neengqondo ezithandekayo, nayi imizekelo yezinto eziza kubhekiswa kuzo:
- Ukuphuhlisa ubudlelwane obuqinileyo, obunenceba kunye nokuthembela nabanye
- Ukwenza iinjongo ezingqinisisekileyo kwaye ujikeleze amanyathelo okuphumeza
- Ukuguquguquka xa uxinzelelo luvela
- Ukuhlakulela ukuzithemba nokwazisa amandla akho
- Ukwandisa unxibelelwano lwakho kunye nezakhono zokusombulula iingxaki
- Ukutshintsha ukucinga kwakho xa kuziwa kwiinkathazo
- Ukufunda iindlela eziphilileyo zokulawula iimvakalelo zakho nokuziphatha
- Ukufumana ithemba kunye nokuphucula isimo sengqondo ebomini
Zama unyango lo msebenzi
Olunye uphando oluthile luhlolisise indima yonyango lokusebenza ekuphuculeni ukunyamezela kubantu abane-multiple sclerosis. Kule sifundo, abathathi-nxaxheba bagqiba iSihlalience Scale ngaphambi nangemva kweeyure ezisibhozo ze-OT.
I-Resilience Scale i-25-item scale esekelwe kwizinto ezinhlanu zokuqinisekisa:
- Ukuzithemba (umzekelo, "Xa ndibunzima, ndiyakwazi ukufumana indlela yokuphuma.")
- Iintsingiselo (umzekelo, "Ukuhlala unomdla kwizinto kubalulekile kum.")
- Ukulingana (umzekelo, "Ndiqhele ukuthabatha izinto.")
- Ukunyamezela (umzekelo, "Ngamanye amaxesha ndizenza ngokwenza izinto nokuba ndifuna okanye cha.")
- Ukuxhamla okwenzekayo (umzekelo, "Ndiyakwazi ukuba mna xa ndifuna ukuba.")
Isilinganisi sizuzwe kwibanga ukususela kuma-25 kuya ku-175, kwaye ukuphakama kwamanqaku aphakamileyo, kuphakame ukuqina.
Uphando lwafumanisa ukuba njengeqela, abo bagqibelele ukungenelela kwe-OT babenokuphucuka okukhulu ekuqinisekiseni kwabo. Iqela elincinci labathathi-nxaxheba (ngaphandle kwabo ngokwabo) abazange bathathe inxaxheba kumanyathelo kodwa bangagqiba isiXeko soBuhlengahlengeni ekuqaleni nasekupheleni kwesifundo. Abazange babonise ukuphucula okukhulu ekuqinisekisweni.
Ukufumana unyango loxinzelelo kunye nokuxhalabisa
Ukufumana unyango lweengxaki zakho zengqondo kungakha ukuzinza.
Uphononongo olulinganiselwa kuma-130 abantu abatsha bafumana i-MS bafumana ukudibanisa phakathi kokudandatheka kunye nokuxhalabisa nokuqina. Ngokuqinisekileyo, ikhonkco ayifuni ukuba umntu ubangela enye, oko kuthetha ukuba ukudandatheka akubangela ukuba uphephe amandla okanye ngokuthe tye. Kunoko, ikhonkco ibonisa ukuxhamla okanye ubudlelwane.
Ngolu hlobo, kunokwenzeka ukuba ukuphathwa kwengcinezelo kunye / okanye uxhalaba kunokwenza ukuba umntu aneliseke. Kwiphepha le-flip, ukuphumeza izicwangciso zokuphucula ukuzinza kwakho (njengalezi ngasentla), kunokukunceda ukulawula iimpawu zakho zokudakumba nokuxhalabisa.
Ekugqibeleni, ukuba ufumana iimpawu zokudandatheka (okanye uxhalaba), nceda ubone ugqirha wakho. Ufanelwe ukuziva kakuhle kwaye unakho ngoncedo lwamachiza kunye / okanye ukuthetha unyango.
ILizwi
Ngoxa i-humdrum kunye neengcinezelo zemihla ngemihla zenza ukuba umntu aziva ekhutshwe ngoku ngoku, ukuphonsa kwingxaki eyongezelelekileyo yokuhlala kunye ne-MS kunokukwenza ukubuyisela emuva (ukuqina) kunzima kakhulu.
Ekugqibeleni, ukwakha ukuqina akuyona into elula, kwaye uya kuzaliswa ngumsindo njengoko ulungisa imingcele yakho.
Kodwa unokwenza. Enyanisweni, unokumangaliswa ukubona indlela onamandla ngayo-ukuba unokuphila ngokuqinisekileyo kunye novuyo ebusweni be-MS.
> Imithombo:
> I-American Psychological Association. (2017). Umendo wokuThuthuka.
> UFalk-Kessler J, uKalina JT, uMiller P. Uthintelo lwonyango loxanduva lokuxhaswa kwabantu abane-multiple sclerosis. Int J MS Care . 2012 Ukuwa; 14 (3): 160-8.
> Silverman AM, i-verrall AM, i-Alschuler KN, i-Smith AE, i-Ehde DM. Ukubuyisela kwakhona kwakhona, kwakhona: ukufundisisa okufanelekileyo ekuxhaseni kubantu abane-multiple sclerosis. Disabil Rehabil . 2017 Jan; 39 (1): 14-22.
> I-Tan-Kristanto S1, i-Kiropoulos LA. Ukuxhaswa, ukuzinyameka, ukuguqula iindlela kunye nokunyamezela kunye nokuxhalaba kwiimpawu ezisandul 'ukufumana i-multiple sclerosis. Psychol Health Med . 2015; 20 (6): 635-45.
> Wagnild G. I- Stesi Stance : Isikhokelo sabasebenzisa i-English English Version ye-Resilience Scale kunye ne-14-Item Resilience Scale (RS-14) Worden, MT: I-Resesibility Centre; 2009.