Xa ucinga ngomnakekeli, unokucinga ukuba umlingane ubambe ngesandla sothandekayo wakhe, okanye umntu omdala uncedisa umzali ngomonde.
Nangona ukunyamekela ngokuqhelekileyo kuyindlela yokubambisana kunye nokuzinikela, ngexesha elifanayo i-rollercoaster, izaliswe ngokumangalisa nokuhlaselwa kwaye ijika kwaye ijika. Oku kufaneka ngokukodwa xa kuqhathaniswa nomntu onenkqantosi kwaye engalindelekanga isifo njenge- multiple sclerosis.
Kodwa iindaba ezilungileyo kukuba ngolu hlobo lwengqondo olufanelekileyo, inethiwekhi encedisayo, kunye nemikhwa yokuphila enempilo, ukuphakama ngokomzimba nangokomzwelo kunye nokunyamekela kokunyamekela kunokulawulwa (kwanamkelwa) kakuhle.
Nazi ezinye izicwangciso zokugcina engqondweni njengoko wena (okanye umntu owaziyo) uqala inxaxheba ekhethekileyo yokuba ngumnakekeli womntu onomsebenzi we-MS.
Zizinakekele
Izidingo ezisemgangathweni zomzimba zokunyamekela umntu obathandayo kunye ne-MS ziya kuhluka, kodwa zibandakanya imisebenzi efana nokuhlamba, ukugqoka, ukuphakamisa, ukutya, ukuncedisa ukuqeqeshwa kwekhaya, ukuqhuba, nokugqiba imisebenzi yasekhaya.
Eminye imisebenzi ingaba yinkcitho engaphantsi komzimba, kodwa ifuna ukuqina kwengqondo efana nale:
- Ukubiza iinkampani zomshuwalense
- Ukucwangcisa ugqirha kunye nokunyulwa kwamatyala
- Ukukhupha nokuphatha imishanguzo
- Ukulawula iimali
Ngaloo nto, ukwenzela ukulwa nomthwalo wemihla ngemihla kunye nokuthintela ukutshiswa, kubalulekile ukunyamekela umzimba wakho nomqondo wakho.
Oku kuthetha ukuqinisekisa ukuba ufikelele ekugqibeleni ugqirha, kunye nomhlaza wakho kunye nokugonya.
Hlala usebenza, ulale kakuhle, kwaye udle okunomsoco, ngoko uvakalelwa kakuhle kwaye unamandla okwenza imisebenzi yakho yokunyamekela ngamanye amaxesha.
Ekugqibeleni, qhelana nempilo yakho yengqondo ngokuthatha ikhefu kulo lonke usuku ukuba uhlanganyele ekuphumuleni, imisebenzi enandiphayo.
Zama ufunde isahluko sencwadi, ubiza umhlobo kwifowuni, okanye uhambe xa umhlobo okanye omnye umnyamekeli enyamekela umthandayo.
Fumana inkxaso
Ukuqhawulwa kweengxaki yinto eqhelekileyo kubanakekeli kwaye kunokudala uxinzelelo olongezelelweyo, kunye nokwenkxwabo "kwintliziyo ye-cabin fever". Ukuze ugweme le ngxaki, qwalasela ukujoyina iqela lokuxhaswa ngumxhasi okanye ukufikelela kumhlobo okanye kummelwane. Kuyamangalisa ukuba yintoni imizuzu eyishumi yokuhleka, ukuthetha ngamabali, kunye nokuphazamiseka kunokukwenza ngomphefumlo wakho.
Ngaphandle kokuzihlukanisa, qaphela izimpawu zokudakumba njengenguqu ekufunweni kwakho, iingxaki zokulala, kunye nokulahlekelwa yinto enomdla owawunayo.
Ngokuqinisekileyo, qi niseka ukuba uthethe nodokotela wakho ukuba unayo nayiphi na impawu yokudakumba, njengoko kukho iindlela ezifanelekileyo zokulawula imizwa yakho.
Yazi I-MS yakho ethandekayo
Ukuphuhlisa ukuqonda okusemgangathweni kwe-MS kubalulekile ekunyamekeleni umntu obathandayo, ngakumbi xa kuziwa ekubambeni iimpawu zabo ezithile, iinkxalabo kunye nokukhathazeka.
Ngokomzekelo, nangona umntu onokunyamekela angase asebenze ngokwenyama, unokugxeka xa ehamba kwiintlanganiso zeentlalo ngenxa yeengxaki zeentetho ezinxulumene ne-MS okanye ngenxa yengxaki yokucinga kunye nenkumbulo .
Kulo mzekelo, kubalulekile ukuhlonipha ukukhathazeka kwabo, ukubonisa uvelwano (umzekelo, uthi, "Ndiyaxolisa ukuba ukhathazekile ngokuthetha phambi kwabahlobo bakho.") Kwaye kunye ndawonye sebenzisa indlela yokuhamba le mzabalazo.
Omnye umzekelo ukuba umntu onokusebenzisa i-MS usebenzisa isihlalo sabakhubazekile okanye esinye isixhobo sokuncedisa ukuhamba , unokufumana uxhalabisayo (ngokuqondakalayo) ngokufumana indawo yokuhlala. Le nto yinkcazelo kuwe njengoko umnakekeli ebiza phambili kunye / okanye ube nesicwangciso sokulondoloza xa ephuma ngaphandle kwekhaya.
Ngokufanayo, umntu onyamekelayo unokukhetha ukuba uthetha nodokotela wakhe wedwa okanye ukuba uthethe namalungu entsapho malunga noshintsho olukhulu lwezempilo okanye izigqibo.
Zama ukuhlonela ezi nqwenela, nokuba awuyiqondi ngokupheleleyo okanye uyavumelana nazo.
Yazi Ukulinganiselwa kwakho
Kubalulekile ukuba uzikhethele malunga nokuba ubuchule bakho kunye nobuthuso bunjani ngokulungiselela unomdla wakho. Ukuba ukuhlamba nokugqoka umthandwa wakho rhoqo ekuseni kusasa, cinga ukucela elinye ilungu lentsapho ukuba lincede ngalo msebenzi. Ngenye indlela, unokuqesha umongikazi wekhaya okanye uncedo ekukuncedeni iiyure ezimbalwa rhoqo kusasa.
Khumbula, ngezinye iinkalo, umntu onomsebenzi we-MS unokufuna ukunakekelwa okungakumbi kunokuba umnakekeli wakhe anikezele. Oku akusiyiphumeli kwinqanaba lakho, kodwa kunoko umsebenzi wesifo.
Yenza isimo sengqondo sokuCoca
Kwi-MS, iimpawu zihlala ziphazamiseka kwaye zihamba ngokungaqinisekiyo ukusuka ngolunye usuku ukuya olulandelayo. Ngokuthatha "ukuhamba kunye nesimo sokuhamba," unokukunceda umhlobo wakho kunye no-MS uzive ezolile (nawe nawe). Oko kwathiwa, ukugcina ubuso bokuzimela phambi komntu obathandayo akuyona into elula. Qinisekisa ukuba unomntu ongasichengeni kunye nokuvakalisa iimvakalelo zakho, nokuba ungumhlobo, iqabane, ilungu lentsapho okanye umphathiswa.
Thatha ikhefu
Wonke umntu ufuna ikhefu ekunyamekelweni, kungakhathaliseki ukuba unakekela ilungu lentsapho nokuba ngaba uhlawulelwa ukubonelela. Ukongeza kwithuba elincinci lemihla ngemihla, kubalulekile ukuthatha ikhefu elide, njengeholide okanye ubusuku.
Enye indlela yokunyamekela-ungacinga ukuthetha nesahluko sakho sendawo yeNational MS Society ukuze ufumane ezinye izixhobo kwiNkqubo yokuNakekela iNkathazo.
ILizwi
Ukunyamekela kuyinxaxheba ekhethekileyo, kwaye nangona kunokuba kunokwakheka ngokomzimba nangokwemvakalelo ngamanye amaxesha, kunokubanelisayo ngokwenene, ngakumbi kunye nezixhobo ezifanelekileyo kunye nenkxaso. Ekugqibeleni, qhubeka unomusa ngokwakho ngokunyamekela iimfuno zakho kwaye uhlaziye ingqondo nomphefumlo wakho ngalunye usuku.
Okokugqibela, khumbula, ubukho bakho nokunyamekela kwakho kwanele. Akukho mntu ulindele ukuba uphelele okanye wenze imimangaliso. Ngoko qi ni sekise ukuba isandla sakho sibambe, ingqungquthela yakho, ingxoxo yakho ye-chit, ingcinga yakho yehlazo, umsebenzi wakho onzima, kunye neendlebe zakho zokuphulaphula kuthetha ihlabathi kumthande wakho.
> Imithombo:
> Buchanan RJ, Radin D, Huang C. Ukunyamekela umthwalo phakathi kwabanonophelo abangenasesikweni abancedisa abantu abane-multiple sclerosis. Int J MS Care . 2011 Ihlobo; 13 (2): 76-83.
> Radford T. (2015). UMbutho weSizwe we-MS: Isikhokelo sabanakekeli.