Imizekelo Yethemba - Ukuphila Ubomi Obunzulu neCystic Fibrosis
Ngaba kukho abantu abaye bakwazi ukuhlala ubomi obupheleleyo nangentsingiselo nangona bexilongwa nge-cystic fibrosis ? Ukuqonda ukuba abantu abaninzi kunye nabantu abadumileyo baphila ubomi obupheleleyo kunye ne-cystic fibrosis kunokuzisa ithemba kulabo abaphila nesifo, kunye neentsapho zabo, namhlanje.
Ukuphila neCystic Fibrosis
Kwiminyaka emashumi edlulileyo i- cystic fibrosis (CF) yokuxilongwa ngokuqinisekileyo iqinisekisiwe ngokukhawuleza kunexesha elide lokuphila.
Abantwana abafunyaniswayo abazange balindeleke ukuba baphile ixesha elide, kwaye kwaneeminyaka embalwa edlulileyo, kwakunqabile ukuba umntwana ophethe iCF afinyelele kubantu abadala.
Namhlanje, ngenxa yamachiza anamhlanje kunye nokuqonda okuphuculweyo kwezifo, abantu abaneCF bangakhokelela ubomi obupheleleyo kunye nobunenjongo.
Abantu abaPhezulu abaneCystic Fibrosis
Aba bantu abadumileyo abane-cystic fibrosis baye ngaphaya nangaphezulu kweengxaki zabo zokungqina ukuba unokukhokelela ubomi obupheleleyo ngeCF.
1. ULisa Bentley
U-Lisa Bentley, owazalwa ngo-1968, ngumntu waseCanada ohlala emzimbeni. Ufunyenwe kwiminyaka engama-20, uye waphaya kwexesha elide lokuphila ubomi kulabo abaneCF, kwaye uyaqhubeka nokuphila ubomi obukhutheleyo. I-Bentley igxininisa ukubaluleka kokunamathela ngokuthe ngqo kwimimiselo yonyango kunye nokusetyenziswa kwabantu abahlala neCF. Uphumelele imincintiswano engu-11 ye-Ironman kwaye yenye yezona triathletes eziphumelele kakhulu.
Esikhundleni sokubukela imeko yakhe njengengozi, Bly wabhala ebhokisini kaDisemba 2016, "ubunzima bubangela ubukhulu." Njengoko ukwabelana ngethemba afunyenwe nabanye uthi, "rhoqo xa ndigijimela, ndiyazi ukuba uhlanga lwam lube nenjongo ephakamileyo ukunika iintsapho ithemba lokuba abantwana babo abaneCF banokufumana izinto ezifanayo ebomini." Ndiyabonga, uLisa, ngokusizisa ithemba.
2. Gunnar Esiason
UGunnar Esiason, owazalwa ngonyaka ka-1991, unyana weNFL yenkwenkwezi yebhola ye-NFL uBoomer Esiason kunye nomkakhe uCheryl. I-Gunnar yafunyaniswa ngokuba ne-cystic fibrosis xa wayeneminyaka emibili ubudala. Okumangalisa kukuba, uBomomer wayebandakanyekile kwi-cystic fibrosis yokuqwashisa nokuxhaswa kwemali iminyaka emininzi ngaphambi kokuba umntwana wakhe afunyanwe.
UBomomer nguye umsekeli weBommer Esiason Foundation, inhlangano engenzi nzuzo efuna ukukhuthaza uphando lweCF kunye nokuphucula ubomi babantu abane-cystic fibrosis. UGunnar uphumelele kwiKholeji yaseBoston kunye nabaqeqeshi bebhola esikolweni esiphakeme e-Long Island, eNew York.
3. uNolan Gottlieb
U-Nolan Gottlieb, owayengumdlali webhasi webhokisi kunye nomqeqeshi webhasikidi yase-Anderson kwiNyuvesi yaseMzantsi Carolina eyazalwa ngo-1982, wafunyaniswa ukuba ene-cystic fibrosis xa esemntwana. Wayejamelana nokukhula okubi xa wayeselula, kodwa wayenomdla emva kokufumana ityhulo yokutya eyayisiswini sakhe. Umdlali we-basketball we-6'1 "ekugqibeleni wahlutha indawo kwiqela lika-Anderson's varsity basketball. Njengabanye abagijimi abane-cystic fibrosis, uGottlieb ugxininisa ukubaluleka komsebenzi wokwenyama kubantu abano-CF kwaye uthemba ukuba ibali lakhe liya kukhuthaza abanye abaselula abajongene nesi sifo ukuphishekela amaphupha abo.
4. UJames Fraser Brown
UJames Fraser Brown, owazalwa ngowama-2006 yindodana yoMphathiswa waseBrithani uGordon Brown, kwaye wafunyaniswa ukuba ene-cystic fibrosis ngenxa yeemvavanyo zokuzalwa zokuzalwa . Ukuxilongwa kwamangaliswa kubaBrowns, ababengazi ukuba babathwala isifo. Ibali lakhe bubungqina bemivuzo yokuzalwa kwintsana ye-cystic fibrosis .
Ngokuhlolwa kwintsana, unyango lunokuqaliswa ngokukhawuleza kunokulinda iimpawu neempawu ze-cystic fibrosis ezifana nokungondleki okanye ukuphefumula okuphefumulayo. Kubalulekile ukuba uqaphele ukuba uvavanyo olwenziwa ngoku kwiintsana ziza kuhlola kuphela; Uvavanyo oluqhubekayo lufunekayo kwiintsana ezivavanya kakuhle ukuqinisekisa ukuba ngaba abanalo i-cystic fibrosis okanye abanalo.
5. Alice Martineau
U-Alice Martineau wayengumculi waseBrithani. Waphumelela ngesidanga sokuqala kwiklasi yaseKing College yaseLondon kwaye wayenomsebenzi owuphumelelayo wokumisela kunye nokucula. UMartineau wabhala waza wayethetha ngokuphindaphindiweyo kwimeko yakhe kwaye ulinde ukutshala kathathu (intliziyo, isibindi kunye nomphuphu).
Wadlula ngo-2003 kwiingxaki ezinxulumene neCF xa wayeneminyaka engama-30. Ngombulelo, nangona ixesha elifutshane ukususela ekufeni kwakhe kude kube ngoku, kukho inkqubela phambili ekwenzeni unyango lwe-cystic fibrosis.
6. UTravis Flores
U-Travis Flores, owazalwa ngo-1991 waza wafumanisa i-CF eneminyaka engama-ezine, wabhala incwadi yabantwana ebizwa ngokuba yi "The Spider Who Never Never Gave Up" ngoncedo lweSenze-A-Wish Foundation . Wasebenzisa inxalenye yentengiso evela kwincwadi yakhe ukunikela kwiSiseko kunye nemibutho yeCF kunye nophando. Ukhulise ngaphezu kwesigidi sesigidi se-Cystic Fibrosis Foundation kunye nesithethi esithe rhoqo kunye nesithethi sombutho. Wafumana i-BA ekuSebenzeni kuMarymount Manhattan College kunye neDrari ye-Master esuka eNyuvesi yaseNew York (i-NYU) kwaye ngoku uhlala eLos Angeles, eCalifornia.
7. UNathan uCharles
UNathan Charles, owazalwa ngo-1989, ungumdlali webhola lomqhubi ophumeleleyo wase-Australia. Wafunyaniswa ukuba uneCF xa esemntwana. Oogqirha baxelele intsapho kaCharles ukuba akayi kuphila emva kokuzalwa kwakhe kweshumi. Phantse kwiminyaka engamashumi amabini kamva, uCharles udlala kwindawo ye-hooker kwaye uphumelele amanqindi amaninzi. Ucingelwa ukuba nguye kuphela umntu ophethe iCF yokudlala umdlalo oqhagamshelana naye. UCharles ngoku ukhonza njenge-ambassador yeCystic Fibrosis Australia.
Ukuphila neCystic Fibrosis
Njengoko kucacile ekufundeni kwalaba basindileyo kunye nentsholongwane ye-cystic fibrosis, abaninzi abantu banokukwazi ukuphila ubomi obupheleleyo kunye nebalaseleyo ngesifo. Kukho abaninzi abaninzi abantu, nangona bengabonakali, ngokuqinisekileyo baphila ubomi obunentsingiselo ebalulekileyo ngenxa yentshukumo ebalulekileyo kwonyango eyenzeka kwiminyaka embalwa edlulileyo. Okwangoku, ukulindela ubomi kwesi sifo kufutshane neminyaka engama-40, sinethemba lokuba uphuculo olungakumbi luya kwandisa oku ngakumbi.
Xa ufunda malunga nala bantu, uyazibuza ukuba kuya kuba njani ukuhlala ne-cystic fibrosis? Ibali le-Zoe - intombazana encinane ihlala neCF .
Imithombo:
ILayibrari yeSizwe ka-US yamayeza. Medline Plus. Icystic fibrosis. Ukuhlaziywa 02/15/16. https://medlineplus.gov/ency/article/000107.htm