Imibuzo Yakho Ngokungaphumeleli Ukuphendulwa Kwempumelelo
Ukungaphumeleli ukukhula. Ngamazwi njengoko loo mazwi aphilileyo, ahlala ephakathi kokuqala ukuba abazali bezingane abane- cystic fibrosis (CF) beva kwiinkonzo zabo zokunakekelwa kwempilo ukuchaza ubuncwane bobunzima bomntwana babo. Amaxesha amaninzi, nawo ngamazwi ekugqibeleni aholele kwi-CF yokuxilonga.
Ukuba umntwana wakho ufumaniswe ukuba awukwazi ukuphumelela, mhlawumbi udidekile, ukwesaba, mhlawumbi uziva unetyala.
Kusenokwenzeka ukuba uye wabhekana namagqabantshintshi, ama-glares, kunye nezigwebo ezivela kubahlobo abangaziwayo, amalungu omndeni, kunye nababoneleli bezempilo. AWUKHO wedwa. Uninzi lwabazali kwizintathu zakho unemibuzo, kwaye abazali abaninzi baye batyholwa ngokungafanelekanga ngokunganakwa.
Ukulandela izimpendulo zemibuzo eqhelekileyo abazali bayabuza xa umntwana wabo ufumaneka nge-FTT - unokufumana enye yakho kuloluhlu. Njengoko kunjalo, qiniseka ukuba uxoxe ngezinto ezixhalabisa ngayo ngabanikezeli benkonzo yabantwana bezempilo.
Yintoni Eyona Ntsilelo Yokuphumelela?
Impendulo emfutshane kukuba i-FTT ithetha ukukhula okubi. Nangona kunjalo, i-FTT yinto encinci yegama eliqhelekileyo kuba i-criteria ekhethekileyo esetyenziselwa ukuchonga oko kukuthi ukukhula okubi kuncike kuxhomekeke kubani ocelayo. Kodwa ngokuqhelekileyo, i-FTT ithetha enye okanye ngaphezulu kwezi zinto zilandelayo:
- Ubunzima buye bunqumla ngaphezu kweepesenti ezimbini kwimizila kwi-chart chart
- Ubunzima-ubudala bukhulu ngaphezu kweepesenti ezi-2 ngaphantsi kweyona ndawo
- Isisindo singaphantsi kwe-3 okanye ye-5 percentile
- Ubunzima-ubude ubude bungaphantsi kwe-80% yesisindo esihle
- Ukuphakama kwesisindo kungaphantsi kwe-3 percentile
- Ukuphakama kwesisindo kuya ngaphantsi kwe-10 percentile
Yintoni ebangela iFTT?
I-FTT inezizathu ezintathu ezibalulekileyo:
- Ukutya kakhulu amancinci
- Awufumani iikhalori ezigqityiweyo
- Ukutshisa ezininzi iikhalori
Kubantwana abane-cystic fibrosis, i-FTT ibangelwa kubandakanyeka kweendlela ezimbini zokugqibela. Ngenxa yokungakwazi ukuphazamiseka kwamanzi , abantwana abaneCF abafaki iikhalori ngokufanelekileyo. Umsebenzi okhulayo wokuphefumla ubangelwa ukuba bashise iikhalori ezingaphezulu.
Ngaba Ndiyakwenza Nantoni na into yokukhusela i-FTT?
Akunjalo ukuba abazali bazive benetyala ngokukhula komntwana babo, kodwa inyaniso kukuba, kude kubekho ukuxilongwa kwe-cystic fibrosis yaziwa kwaye iphathwa, akukho nto enokuyenza ukukhusela. Kwizingane kunye neCF, i-FTT ayithethi ukuba ayidli ngokwaneleyo. Abantwana abaneCF bahlala benesidlo esikhulu kwaye badla ezinkulu kunezinto eziqhelekileyo zokutya. Ingxaki yukuthi, kungakhathaliseki ukuba kukutya okuninzi, akuyi kuze kube yaneleyo kuze kube yinto echanekileyo.
Ukuba Umntwana Wanga Akayi Kuphumelela, Ngaba Oku kuthetha ukuba Uya Kufa?
Kwizingane kunye neCF, imbangela ye-FTT yaziwa kwaye iphathwa ngokulula. Ngaphandle kokonyango, ukungaqiniseki kwamanxweme kunokukhokelela ekulaleni kwendlala kodwa ngo kunyango olufanelekileyo, umntwana wakho unokukhula kwaye aphumelele njengoko kulindelwe.
UFTT uthathwa njani?
I-FTT iphathwa ngokulungisa iingxaki ezibangele. Ukuba umntwana wakho onama-cystic fibrosis engaphumeleli, mhlawumbi unako ukuphelelwa kancinci.
Ukuba kunjalo, uya kuthatha i- enzyme supplements ezokuvumela umzimba wakhe ukuba uthathe izondlo. Emva kokuba ingxaki yokuxhatshazwa ilungiswe, mhlawumbi uya kudibana nesondlo sokutya esiza kukunceda uhlakulele isicwangciso sokutya esihlangabezana neemfuno zekhalori zengane yakho.
Ngaba Ndiza Kuxela Ukunyaniseka?
Kwiintsana ezingenazo izifo zonyango, i-FTT ingaba liflegi ebomvu ephakamisa ukusola ukungahoywa komntwana - ingakumbi ukuba kukho ezinye iimpawu zokungahoywa njengento yokulungisa okanye ukungabikho komzali ohluphekileyo. Ukuba ngababoneleli bezempilo bayakrokrela ukuba i-FTT ingumphumo wokungahoywa, kufuneka ukuba umthetho uxelele kubaphathi basekuhlaleni.
Ndingathanda ukuxelela ukuba abantwana abane-CF abaze bakhankanywe njengexhoba lokunyanzelwa kodwa, ngelanga, ngamanye amaxesha kwenzeka kwangaphambi kokuba kuhlolwe iCF. Ndandiva amabali amaninzi avela kubazali abaye banyamezele ukunyanzelwa kokunyanzeliswa nokuvakatyelela abanikezeli abaninzi ngaphambi kokuba bafumane ukuhlolwa kwesithukuthezi okwabangelwa ukuxilongwa kweCF.
Imithombo:
I-Arhente yoPhando lwezeMpilo kunye neMigangatho. "Iimpawu zokuQinisekisa ukukhubazeka kwiintsana nabantwana: Ukungaphumeleli Ukuphumelela". Isishwankathelo, ingxelo yoBungqina / uVavanyo lweTeknoloji: Inani 72. I-AHRQ Ukupapashwa ngo-03-E019, Matshi 2003.
Vimba, i-RW kunye ne-Krebs, i-NF "Ukungaphumeleli Ukuphumelela Njengokubonakaliswa koNgciniko lwaBantwana". 2005. Izifo . (116) 5: 1234-1237. 2009 ngoJanuwari 2.