Indlela yokucwangcisa unyango lwakho lokubeleka kunye nonyango ukuba unayo i-cystic fibrosis
Ukuba unayo i- cystic fibrosis (CF) kwaye ufuna ukukhulelwa, kubalulekile ukwazi ukuba kukho abafazi abahlala neCF abanokukhulelwa okunzima kwaye bavelise abantwana abasempilo. Ukuphucula amathuba okuba ukhulelwe kakuhle, kubalulekile ukucwangcisa ukukhulelwa kwakho kwaye usebenze nogqirha wakho ukubeka iliso kuwe nempilo yengane yakho endleleni.
Ngaphambi kokuba ukhulelwe , kufuneka ube nesimo esihle sesondlo, ube kwisisindo sakho esicacileyo, kwaye ube ne-40 pesenti yomphunga womsebenzi wamaphaphu. Ngaphambi kokuba ukhulelwe, iqabane lakho kufuneka lenze uvavanyo lwezofuzo ukuqinisekisa ukuba unayo imfuza ye-cystic fibrosis . Ukuba iqabane lakho liphethe i-gene, unama-50 ekhulwini amathuba okuba nomntwana one-cystic fibrosis. Ukuba iqabane lakho lingenalo i-gene, umntwana wakho akayi kuba nale mqathango.
Ukuqinisekisa ukukhulelwa kwakho kuhamba ngokugqithiseleyo kwaye kungakhathazeki ngokukhawuleza, oogqirha bancomela ukwenza oku kulandelayo:
1. Gcina ukutya okwaneleyo
Isondlo somzimba wakho sidinga ukwanda ngexesha lokukhulelwa. Ukuze uhlangabezane nale migqaliselo, kuya kufuneka ukuba uthathe isongezelelo, njengokutya okunomsoco, ukuqinisekisa ukuba umzimba wakho ufumana iikhalori ezizifunayo. Ukuba awukwazi ukufumana ukutya okunokutya okukufunayo ekudleni kunye nokuxhaswa, unokwenza ukuba uye esibhedlele ukuze ufumane ukutya okunomsoco, okubizwa ngokuba ngumthamo wesondlo se-parenteral (TPN), ngexesha elide le-IV elibizwa ngokuba ngumgca ophakathi.
2. Ukulwa nezifo zokuphefumula ngokukhawuleza
Izifo zokuphefumula kufuneka ziphathwe ngamayeza omzimba ngokukhawuleza ukuba kuvele uphawu lokuqala. Izifo ziyakwazi ukuphuma ngokukhawuleza ukuba unayo i-CF kwaye unokunciphisa inani le-oksijini enikezelwa emzimbeni wakho. I-oksijeni ephantsi akuyona nje ingxaki kuwe, inokulimaza umntwana wakho kuba ubala kuwe ukuba ahlangabezane neemfuno zabo ze-oxygen.
3. Qhubeka neChest Physiotherapy (CPT)
I-physiotherapy yesifuba yinto ebalulekileyo yonyango lwakho lwansuku zonke kwaye kufuneka lwenziwe nangona ukhulelwe. Xa senziwa ngokufanelekileyo, ayiyi kulimaza umntwana wakho.
4. Qhubeka neMicrosoft Medication yakho
Uninzi lweempawu zomlomo kunye nolunxilisayo lwe-CF olukhuselekileyo lukhuselekile ukuthatha ngexesha lokukhulelwa. Xoxa malunga nayiphi na imichiza onokuyithatha kunye nodokotela wakho wezakhono zeCF kunye nesigqirha. Ngokuhlolisisa uluhlu lwakho lwamachiza kunye neqela lakho lezonyango, oogqirha bakho banokugqiba ukuba kukho naziphi na izilungiso ezifunekayo.
5. Yilungiselele ukungeniswa kwezibhedlele
Unokufuna ukuhlala esibhedlele ixesha elifutshane ngexesha lokukhulelwa kwakho unyango okanye ukubonwa. Oku kunokwenzeka ukuba kwenzeke ngeenyanga ezidlulileyo zokukhulelwa kwakho xa iimfuno zomzimba wakho ziphezulu.
6. Qinisekisa ukuba Ufuna Ukuxhamla
Ukuba ufuna ukuncelisa umntwana wakho kunye nobisi lwakho luqulethe ixabiso leeprotheni kunye ne-sodium, ngoko unako. Ukuba ukhetha ukondla, kuya kufuneka udibane kunye nesondlo sakho sezondlo ukuphuhlisa isicwangciso esiza kunika iikhalori ezaneleyo kunye nomntwana wakho.
7. Cwangcisa iKamva
Naphezu kwentuthuko ekwenzeni unyango, i-cystic fibrosis inganciphisa ubomi bakho. Umyinge wexesha lokuphila kwabantu abantu abane-CF e-United States malunga neminyaka engama-40.
Kuyinto engathandekiyo ukucinga malunga nokuba ungeke ukwazi ukukhulisa umntwana wakho ukuba ube ngumntu omdala, kodwa kunokwenzeka ukuba ufanele ucinge. Kufuneka uxoxe ngale ndlela kunye neqabane lakho kwaye uqale ukwenza izicwangciso zokunyamekela komntwana wakho ngokukhawuleza.
Ukongezelela ekusebenziseni amayeza kunye neendlela zokulawula isifo sakho, unokuqwalasela ukufumana ukutshintshwa kwemiphunga. Akunabo bonke abantu abaneCF abafanelekela ukutshintshwa, kodwa abo benzayo banokukwazi ukwandisa ubomi babo. Ukufakelwa kwemiphunga kuyingozi, kodwa kunokukunika ithuba lokuphucula impilo yakho nokwandisa ubomi bakho. Kuze kube ngoku, izigulane ezingama-1600 zeCF zifumene ukufakelwa kwemiphunga.
Abantu abangama-150 ukuya ku-200 abane-cystic fibrosis baye bafumana ukupakishwa kwemiphunga kunyaka ngamnye ukususela ngo-2007. Abaninzi babo babesaphila ngonyaka omnye kwaye malunga nesiqingatha sazo senza kakuhle emva kweminyaka emihlanu emva kokutshala.
Imithombo
- UCalderwood, uC. NoNelson-Piercy, C. "I-Asthma neCystic Fibrosis ekukhulelweni". IzaMpilo zeMpilo zeNtombi. 2005. 2: 29-32
- Cheng EY, Goss CH, McKone, EF, Galic V., Debley CK, Tonelli, MR kunye ne-Aitken ML "Iziphumo zokunakekelwa kweNtsholongwane ngaphambi koPhulo lweZiphumo kwi-CF Women." 2006 Journal of Cystic Fibrosis 5:85 - 91.
- Foundation Cystic Fibrosis. Malunga neCystic Fibrosis. 2016.