Amaqela okukhuthaza abantu abachaphazelekayo yi-Leukemia, i-Lymphoma ne-Myeloma
I-blood cancers- leukemia, i-lymphoma kunye ne- myeloma -Angayi kuba njengento ephakamileyo njengeminye impawu yomhlaza. Nangona kunjalo, kunamaqela amancedo kunye namaqela okukhuthaza axhasa uluntu lomdlavuza wegazi ngokubanzi. Ukongezelela, ezinye zeemibutho ezibandakanya ukukhulisa umdlavuza, ezifana ne-American Cancer Society, zinamacandelo amancinci anikezelwe kwi-leukemia kunye ne-lymphoma.
I-Leukemia & Lymphoma Society
I-Leukemia & Lymphoma Society, okanye i-LLS, inokuba yiyona leyemia ye-leukemia ebonakalayo kakhulu kunye nenkuthalo yokukhuthaza uluntu jikelele. Eyasungulwa ngo-1949, i-LLS ixhasa uxhando lweengcambu zegazi, imfundo kunye neenkonzo zogulane, kwaye ikwahlu lwe-Forbes Uhla lwe-100 yezona zikhulu zonyango zase-US.
Kwaye abantu abangabandakanyiyo kwiindawo zomdlavuza wegazi banokuqaphela isiganeko sonyaka se-fundraiser esabekwa yizahluko ezahlukileyo ze-LLS, ezaziwa ngokuba "Ukukhanya Kubusuku." Ukukhanya kobusuku kuyisiganeko esenzeka kumaxesha ahlukeneyo kunyaka kwiindawo ezahlukeneyo.
Kodwa kaninzi, kucetywayo ukususela ngoSeptemba ukuya kuNovemba eNyakatho Melika kwaye kufikelelwe ixesha lokuthobela ukuhlwa kwexesha elingaphambi kwexesha lokuwa. Abathathi-nxaxheba baphakamisa imali ye-LLS ekhokelela ekukhanyeni ukuhamba kobusuku apho bephethe iimila ezihlukahlukeneyo ezibonisa ukunyamekela kunye / okanye ukulahlekelwa ngumthandayo.
I-Leukemia & Lymphoma Society Team Training, okanye i-TNT, yenye enye indlela yokuhlola ngokubuyisela, ingakumbi ukuba uqeqesho lokunyamezela inceba luba nzima. Xa kuziwa ekuqeqesheni ukufaneleka, abaninzi bethu kufuneka badonse kuzo zonke izizathu esinokuzenza.
Mhlawumbi kutheni iQela lokuQeqesha ngeLLS yinkqubo enempumelelo. Awunayo nje kuphela isiyalo esakhelwe kuyo nayiphina inkqubo yokuqeqeshwa komzimba, kodwa unento enokubaluleka ngakumbi-kunika abo banesidingo. Kukho into ebantwini bonke, nokuba ihamba, ihamba, ibhasi, ukunyuka, okanye ukuncintisana kwi-triathlon.
I-LLS igxininisa impumelelo yayo ngale ndlela: "Kuza kube namhlanje, i-LLS ifake imali engaphezulu kwe-1 billion yezigidi kuphando lokuphucula imilondolozo nokugcina ubomi. Izibonelelo zophando ze-LLS ziye zaxhaswa ngemali eninzi yeentuthuko ezithembekileyo zanamhlanje, kubandakanywa ukwelashwa okujoliswe kuyo kunye ne-immunotherapies. Utyalo-mali lophando olusisiseko lubangela ukuqhuma kwezesayensi ezintsha kunye nempumelelo yekliniki. Uphulo olutsha olukhuselekileyo nolululo, xa lucinga ukuba lugcinwe, lusindisa ubomi namhlanje. "
Isibhedlele soPhando lwaBantwana bakaSt. Jude
I-leukemia yiyona nto ixhaphakileyo phakathi kwabantwana. Ukuba umhlaza wesantya usondele kwaye uyathandeka entliziyweni yakho, ngoko-ke iStrat uJoseph's Children's Research Hospital kufuneka ukuba ibe phakathi kwezibonelelo ozijonga ukuba zixhasa. Lo mbutho ufumene amanqaku e-stellar yokuphendula nokuphendula, kunye nokulinganiswa kwezimali kuye ngaphezu komyinge kunye, ngo-Charity Navigator.
Umsebenzi weSt. Jude Jude Children's Research Centre ukufumana unyango kubantwana abanomhlaza kunye nezinye izifo eziyingozi ngokusebenzisa uphando kunye nonyango.
Esinye seziganeko ezithandekayo kwi-charity fundraiser scene zibandakanya i-tikes ezincinane kunye nokunyuka. Ukuba unabantwana kwisikolo sobudala besandulela esikolweni, iSt Jude Trike-A-Thon yisiganeko esikhupha imali ngenxa yeso sizathu, kodwa ivumela abantwana ukuba bahlekise kwaye bahlanganyele ekuncedeni abanye ngexesha labo iqela. Ukuba unomdla ekuhleleni i-trike-thon kwi-school child's school or carecare, tyelela i-St. Jude kwi-Web kwaye unokufumana ulwazi loqhagamshelwano ukuze uqalise.
I-Leukemia Research Foundation
Ukuba unomdla wakho ekuqhubekeleni phambili uphando lwe-leukemia kwaye unceda izigulane zeentsapho kunye neentsapho zabo, enye inceba yokuyiqwalasela yi-Leukemia Research Foundation. Olu luthando lunikezelwa kumdlavuza wegazi onokutshatyalaliswa ngemali yophando kwizinto ezibangela ukunyanga kunye nokuphucula ubomi babantu abachaphazelekayo kwezi zifo. I-Leukemia Research Foundation isekela uphando lwe-leukemia kubantu abadala kunye nabantwana.
Ingqalelo, i-Leukemia Research Foundation yasanda kufumana "iinkwenkwezi ezine," ukulinganisa okuphezulu kunokwenzeka kwiCharity Navigator. Inhlangano yayine-stellar transparency, ukuphendula, kunye neengxelo zemali, kwakhona.
I-Leukemia Research Foundation inezivolontiya ezingaphezu kwe-1,500 ezihlelwe kwiingxelo ze-24 zeengxowa-mali. Banika izigulane ngezibonelelo zemfundo, inkxaso yemoya, kunye noncedo lwemali. Baya kuxhaswa uphando kwihlabathi lonke. Ngaphezulu, i-Leukemia Research Foundation iye yazinikelela ekufumaneni unyango, iphakamisa ngaphezu kweerandi ezingama-70 kwizibonelelo zayo.
I-Lymphoma Research Foundation
I-Lymphoma Research Foundation yintlangano enkulu yesizwe engenzi nzuzo ezinikele kuphela ekuxhaseni uphando olutsha lwe-lymphoma. Ikwabonelela ngolwazi olufikeleleko malunga nalo hlobo lomhlaza kubantu abane- lymphoma kunye nabaqeqeshi bezempilo.
Umsebenzi weLymphoma Research Foundation uwukukrazula i-lymphoma kwaye bakhonze abo baye bathatyiswa sisifo. Baya kunceda izigulane zine-lymphoma zihamba ngehlabathi elingenakuphilisa lomhlaza wesifo somhlaza, izilingo zeklinikhi, iindlela zokusasaza, kunye neendaba ezikwintsimi.
I-Multiple Myeloma Research Foundation
I-myeloma yamaninzi , okanye ngamanye amaxesha "i-myeloma," yindlela yesithathu yomhlaza wegazi, ngaphezu kwe-leukemia kunye ne-lymphoma. Mhlawumbi ngenxa yokuba yinto encinane kunazo zonke zeengcingo zegazi ezintathu, kunzima ukunyamekela-ngaphandle kweNBC yangaphambili yeendaba i-anchor incwadi kaTom Brokaw malunga namava akhe kunye ne-myeloma. Nangona kunjalo, i-myeloma ifumana indawo eninzi kwi-Multiple Myeloma Research Foundation, okanye i-MMRF. Ngoko ke, ukuba ufuna i-charity nge-accountelability stellar, ukungafihli, kunye namanqaku emali, i-MMRF ibhetele kakhulu.
I-American Cancer Society
Nangona iinjongo zalo zingekho ngqo kwi-leukemia, i-lymphoma, okanye i-myeloma, i-American Cancer Society (ACS) nantoni inika abantu abaninzi abanomdla wokuba nomdlavuza wegazi. Ubutyebi balo bunokuba luncedo ngakumbi kulabo bafuna ulwazi oluqhelekileyo lwemfundo kwiintlobo ezahlukeneyo zesifo somhlaza.
Le yimeko enye apho izibalo ezivela kwizixhobo ezihamba ngezobubele zingabakhohlisa. I-ACS ayinakuba yinkqubo ehlelwe ngokubanzi okanye efanelekileyo-phantsi kwelanga, ingakumbi xa ibanjwe njengamaqela onke amaninzi ahlukeneyo. Kodwa, ukuba khona kwayo kwi-intanethi-kwaye ngokukodwa ukukwazi ukufikelela kubantu abaneenkcukacha ezibonisa isigulane ezinobungqina bezinto eziqhelekileyo kwii-cancer ezahlukeneyo-zimela umgangatho kunye nexabiso elinzima ukulifaka kwisatifiketi somoya onothando.
Kukho iindlela ezininzi ezahlukahlukeneyo zokunika uncedo olufana ne-ACS. Ukubuyiselwa koBomi kukungumqondiso wesiginesha, umcimbi apho amalungu eqela atshintshana ehamba ngeendlela okanye indlela ekhethiweyo. Ngokutsho kwabaququzeleli bamaganeko, isiganeko ngasinye sisithuba seeyure ezintandathu ukuya kwii-24 ubude kwaye iqela ngalinye licelwa ukuba libe nelungu kumzila ngazo zonke izihlandlo ukubonisa ukuba umhlaza akaze ulele. Njengoko bethetha, "Izigulane zentsholongwane aziyeki ngenxa yokuba zidiniwe, kwaye ngobusuku obunye, nathi asiyi. "U
Iqela ngalinye libeka i-camped themed at the event kwaye liqhubeka nokuzama ukuqokelela imali ngokuqokelela iminikelo yokutya, iimpahla, imidlalo kunye nemisebenzi. Imali ibalwayo kwiinjongo zabo jikelele.
Abazali besikolo esiphakathi nabo bangaziqhelanisa nemisebenzi yosuku lwemihlaba ye-ACS:
Inkqubo yethu yoSuku loLwazi oluThulayo luzisa iRedlay for Life kwizikolo eziphakathi. Inika abafundi, ootitshala nabalawuli ithuba lokuba baqhubele phambili ngokubhiyozela abantu abachaphazeleka ngumhlaza, bekhumbula abo bathandekayo abalahlekileyo kunye nokuxhaswa ngemali ukuxhasa iinkqubo zomdla kunye neenkonzo nakwihlabathi jikelele. Ivumela abafundi ukuba baphume eklasini baze bahlekise ngokuzonwabisa kunye nemisebenzi eqinisa imfundo yesifo kunye nomgangatho wokuziphatha okuza kunciphisa ingozi yomhlaza.
Ezinye izinto eziMkhulu
Amanye amaqela amaninzi akhuthaza ukuqwashisa nokubonelela ngenkxaso kunye nenkonzo ebalulekileyo kulabo ubomi babo babathintele ngumhlaza wegazi. Nazi ezinye ezimbalwa ukuzongeza kwoluhlu:
Yiba ngumdlalo
Kusenokwenzeka ukuba uye wakuva malunga nokuguquka komongo we- bone , obizwa ngokuba yi-hematopoietic stem cell transplants. Kwezinye izigulane ezineentlobo ezithile ze-leukemia kunye ne-lymphoma, ukutsalwa kwe-cell stem, okanye ukutsalwa komongo we-bone, kukuphela kwethemba lokunyanga.
Yilapho i-Match ifika khona-yi-registry egcina yonke into ekulungele ukunikela ngamaseli abo okuxhamla ethemba lokufumana umdlalo kumntu oswele ukutshintshwa komongo wethambo.
I-National Comprehensive Cancer Network (NCCN)
Oogqirha, izikhokelo ezivela kwi-National Comprehensive Cancer Network (NCCN) ziyaziwa ngokubanzi kwaye ziyaqhagamshelana rhoqo. Ngezibuyekezo eziqhelekileyo zokulawulwa komhlaza ophakanyisiweyo, ezi ngcebiso zonyango zizama ukufakela iimeko zangoku zonyango ngexesha elithile ngexesha leesayithi ezahlukeneyo zomhlaza.
I-NCCN isebenze ukubonelela ngezikhokelo ezifanayo kwizigulane, kunye nemigqirha yezokwelapha ichazwe kwaye ijoliswe kubantu abachaphazelekayo yi-leukemia, i-lymphoma kunye ne-myeloma. Izibonelelo ezinomonde kunye nabanakekeli ngeNCCN ngoku ziquka uluhlu lweentlobo ezahlukeneyo ze-leukemia kunye neHodgkin lymphoma kunye neentlobo ezahlukeneyo ze- non-Hodgkin lymphoma .
Ukusebenzisana kweeMithombo yoLwazi kwiHematology (ARCH)
Le ntsebenziswano ijolise ukuxhobisa abantu abane-lymphoma ukuba bathathe inxaxheba ekunyamekeleni kwabo kwaye bancede baqinisekise ukuba abaziva bodwa kwindlela yabo. Ngokuvakashela i-website yabo, abantu banokuxhuma kwimibutho eyahlukeneyo yoqabane ukuba bafunde ngeentlobo ezahlukeneyo ze-lymphoma, baphonononge iindlela zokunyanga, baze bafumane ulwazi malunga neengcali kunye nenkxaso yemali.
Le mihla, amaninzi amanqanaba omhlaza apapashwa kumabonwakude. Unokwazi ukuqonda amagama amakhulu anjengeSikhumbuzo seSikhumbuzo seCrother Sloan kwiNew York kunye neYunivesithi yaseTexas I-Anderson I-Cancer Centre e-Houston. Nangona kunjalo, kulo lonke uhlanga, malunga neepesenti ezingama-15 zezigulane zomdlavuza waseMelika ziphathwa kwiziko elikhulu lomhlaza wesikolo. Uninzi lwaba lunakekelwa kwiiprogram zomhlaza okanye kufuphi nabemi basekhaya apho izibonelelo ezinokuthi zingancinci.
Ngokuqokelela intsebenziswano yeenkqubo zomdlavuza woluntu kunye nemithombo yemigangatho enikezelwa yile mibutho, i-ARCH ijolise ukuba nefuthe elikhawulezayo ekufikeleleni kolwazi kwiigulane zelmphoma apho kunentswelo enkulu.
ILizwi
Njengoko ubona, nangona unciphisa ububanzi kwimibutho yokuncedisa kunye nemibutho echaphazelekayo kwiidlingozi zegazi, kusekho iindlela ezininzi ezinokuthi zifuna ukunikela ngeminikelo. Kwiminyaka yakutshanje, uncedo luye lwahlolisiswa. Abantu abanikela ngemali yabo eyimali enzima kwizinto ezintle bafuna ukuba nezinga elithile lokuba nethemba lokuba iminikelo yabo isetyenziswe kakuhle. Ngaloo ndlela, kukho izixhobo ezahlukeneyo zokuncedisa i-navigator kwaye zifumaneka kwiwebhu.
Abantu baxabisa kwaye bajonga izinto ezahlukeneyo kwizintando zoncedo zabo. Ngoko, ukhuthazwa ukuba ubone ukuba nayiphi na imibutho ekhankanywe ngasentla ifanelana ngokubonisa iimpawu zakho kunye neminqweno ethile. Ngokomzekelo, abanye abantu abafuni ukufaka isandla kwimibutho emikhulu yokunceda abanama-CEO afumana imali ephezulu kakhulu yembuyekezo, kanti abanye bazimisele ukuwajongela izinto ezinjalo ukuba umbutho uyaziwa ngokuba wenza umsebenzi omuhle.
Ngokufanayo, ukuba iimpazamo zezemali zibalulekile kuwe, abanye abacebisi bezothando badibanisa ulwazi olufana nokuba bangaphi iidola ngalinye elisebenzisayo ukwenzela ukuphakamisa inani elithile leemali eziya ngqo kumbango onobubele okanye abafumanayo. Ezi methrikhi zinokuthelekiswa ukusuka kumbutho ukuya kumbutho.
> Imithombo:
> I-American Cancer Society
> Charity Navigator
> I-National Comprehensive Cancer Network (NCCN). Izibonelelo zoMonde kunye noKhathalela.