Unokunyamezela iiRough Times
Uninzi lwabantu abaphila ne- multiple sclerosis baziva bengenakuncinci ixesha elithile. Enyanisweni, abaninzi banokuthi bathatha ixesha elininzi leentsuku zabo beziva bebuhlungu. Kwabanye, "iintsuku zabo ezintle" zaziya kubakhuthaza abantu abangenabo i-MS ukuba bayabize abagulayo ukuba basebenze baze balele embhedeni.
Kodwa kunokuba kunzima ukubonisa indlela ovakalelwa kakubi ngayo okanye ukwesaba, ukukhathazeka, kunye / okanye ukukhathazeka ngenxa yesifo sakho kwabanye.
Abanye bahlala nje nje bengakwazi ukuqonda ukuba kunzima kangakanani. Oku kunokukhokelela ukuvalelwa kunye nokuzihlukanisa nabantu abasithandayo.
Ngoko yintoni isisombululo? Wenza ntoni xa uziva ungalunganga, kodwa ungafuni uvelwano? Xa ufuna ukuziva ungcono, kodwa uyazi ukuba akunakwenzeka (ubuncinane ngokwenyama) kwikamva elizayo?
Nazi ezinye iingcebiso malunga nendlela yokudlulela ezinye zeendawo ezimbi kakhulu ze-MS:
Icebo # 1: Ungaze uthelekise
Ewe, kuyinyani ukuba baninzi, abantu abaninzi abangenayo ukujongana ne-MS, ababonakala bephuma "ngaphandle kwesikhala," ngelixa kufuneka ucebise indlela yokufumana ukuphumla okwaneleyo ukusebenza ngalo lonke usuku. Kwakhona kunyanisekileyo ukuba kukho abantu abaninzi kakhulu kunokuba siphi na ixesha ngexesha, ngenxa yempilo okanye ezinye izizathu.
Kodwa ukuthelekisa nabantu kwicala le "intlungu yokubandezeleka" akuvelisi. Ihlabathi liyindawo enzima. Ngaphandle kokungathandabuzeki, abanye abantu bafumana enye inkcazo kunabanye bolu bunzima, ubuninzi babo ngaphaya kolawulo lomntu.
Enye indlela yokwenza ingqiqo nayiphi na yinto yokwenza konke okusemandleni akho ekunciphiseni ukubandezeleka (wam okanye abanye) ngokusebenzisa imincinci emincinci okanye "amanyathelo" okwethutyana okanye kunye nokukhala okukhulu. Ukugxininisa kwi "nto," ingakumbi "kutheni na?" Okanye "kutheni andinayo?" Akunakunceda.
Icebo # 2: Yamukela Izinto Ezintle Zincinci
Yintoni oyithandayo i-Jelly Belly?
Yayiyiphi igama lomhlobo wakho ocingayo xa usencinane? Yintoni oyithandayo? Ukuba unokuyilandela nayiphi na i-dessert ngoku, ingaba yintoni na? Nguyiphi igama le-dogni elihle kakhulu owake waliva? Ngamanye amaxesha, ubomi buya kuba yimpunga, kodwa zikhona izinto ezinobungakanani kuzo zonke izikho. Yenza iphuzu lokuzingela ngamanye amaxesha kwaye unokumangaliswa oko ufumanisayo.
Ngokomzekelo, zama ukuza ufike kwimemori oyintandokazi okanye umfanekiso wesigcawu ukubiza ngexesha lakho elimnyama. Kwimi, ndinayo "isithunzi" entloko yam yamacinci amamawele xa bezinyanga ezithandathu-20 zazo, i-pinki kwaye iphelele. Le memori indifumene nge-infusions, injections, i-MS hugs kunye ne-MRIs, kwaye yenza ezo zinto zincinci kwaye zilula ukunyamezela.
Icebo # 3: Hamba phambili kwaye Yenza iMad okanye ibuhlungu (okanye nayiphi na into). Qinisekisa ukuba Ume kwiNgongoma ethile
Abo bethu kunye ne-MS (kunye neentsapho zethu kunye nabathandekayo) baye bathatyathwa ngokuxilongwa kwe- MS yethu .
Akungabazeki ngoku. Akukho mntu kulindeleke ukuba athathe imeko eguqula ubomi bethu, ikusasa lethu, amaphupha ethu, kwaye singabi buhlungu ngamanye amaxesha.
Oko kuthethwa, zama ukumba ngokugqithiseleyo kunye nokunyamezela iimvakalelo zakho ukuze uhlale nabo ngokuvelisa, kunokuba uzibekele.
Khumbula, wena okanye wakho othandekayo akayena yedwa kwimvakalelo yabo emibi-kwaye kukufanelekile ukuba ube nesibindi ixesha lonke, ukukhala xa uhlungu, ukukhala xa kunokunceda ukunciphisa uxinzelelo.
Ngaloo nto, nantlukwano xa uziva uhlungu ngenxa yexeshana kunye nexinzelelo. Uxinzelelo luphawu lwangempela lwe-MS. Ukuba unayo i-MS kwaye uziva uhlungu okanye ungenalo umdla kwizinto ezungeze kuwe, kufuneka ufune uncedo. Uxinzelelo luqhelekile kwi-MS kwaye lunokuphathwa ngempumelelo.
Iphupha # 4: Fumana "Ubabalo" xa Uvakalelwa
Xa uvakalelwa ngokugqithiseleyo, kunzima ukuvumela ingqondo yakho iqhube phambili phambili ngeyure, inyanga, unyaka, iminyaka elishumi kunye nokuzibuza, ngaba ndiza kuziva ngathi?
Ngaba ndiza kuziva ngakumbi? "Kunzima ukuqala ukucinga isizathu sokuziva kakubi: Ngaba kubuya kwakhona? Ngaba ndihamba phambili? Ingaba unyango lwam alusebenzi? Ngaba ndimele ndiyeke / ndiqalise / nditshintshe ukuba unyango? Yintoni endiyenzayo?
Kulezi zihlandlo, zama ukubandakanyeka kwisiluleko esilulaphulayo njengendlela yokulala, i- yoga elula, okanye ukucamngca-gcina usaphila ngokomzimba, ngokwengqondo nangokomzwelo. Ukuzinikela iholide encinane kwiintsapho zobomi kunokukwenza imimangaliso ngomphefumlo wakho, kwaye kunika ithemba ukuba kukunike uxolo olusengqondweni.
Iphulo # 5: Yiba "Yiya" kumntu
Kubalulekile ukuba nomhlobo okanye ilungu lentsapho onokuthi uthethe ukuba unjani ngokwenene (ngokwenyama nangokomzwelo) kwindawo ephephile, enokukunika amandla okushiya loo mvakalelo kuloo ndawo kwaye uhambe wenze isidlo seentsapho zakho okanye uncede ngomsebenzi wesikolo.
ILizwi
Kukho into yokubandezeleka kwe-MS, kokubili ngokomzimba nangokomzwelo, kwaye oku kuya kuhluka, ngokusekelwe kwimpawu ezikhethekileyo zomntu. Oko kuthethwa, ngelixa ungeke ukwazi ukulawula uninzi lwesifo sakho se-MS, ungalawula indlela ojamelana ngayo nayo. Ukwenza imikhuba yokuphila enempilo kwaye ube nomusa kuwe kuyisiqalo esihle.