Ukuzivocavoca esetyenziselwa ukuphazamiseka phakathi kwabantu abane- cystic fibrosis (CF) kuba bekucingelwa ukuba ukunyamezela kunokwandisa iingxaki zokuphefumla. Ngoku siyazi ukuba inyaniso iyinyani. Ucwaningo luye lwabonisa ukuba imisebenzi eyenziwa rhoqo ihlinzeka ngeenzuzo ezininzi kubantu abane-cystic fibrosis.
Makhe sithethe malunga nokuba zeziphi iingenelo ezizodwa, yiyiphi imisebenzi efanelekileyo kakhulu, ingaba kufuneka usebenze kangakanani kwaye kaninzi kangakanani, kwaye kubaluleke kangakanani, kubaluleke kangakanani ukuba usebenze nogqirha wakho ukuyila inkqubo yohambo olufanelekileyo.
Kutheni Uqhuba?
Izinzuzo zempilo zobomi obusebenzayo ziyabonwa ngabantu bonke. Nangona kunjalo, ukuzivocavoca kubaluleke kakhulu kubantu abane-cystic fibrosis ngenxa yokuba:
- Ukwandisa amandla omphunga
- Ukwandisa amandla nokunyamezela
- Ukwandisa amandla
- Ukwandisa ixesha lokuphila
- Ukuphucula ukukhutshwa kwe-airway, ekunceda ukukhusela izifo zokuphefumula
- Ukwandisa amathambo kunye nokukhusela ukulahleka kwethambo
- Unempembelelo entle kwintlalo-ntle
- Yiba yindlela efanelekileyo kakhulu yokujongana nokungasebenzi kwemisipha yomzimba
- Ukunceda ngeendlela ezingaphezu kwe-cystic fibrosis
Sebenze noDokotela wakho
Sizakuqwalasela ezinye zezinto eziqhelekileyo malunga nokuzivocavoca kubantu abane-cystic fibrosis ngezantsi, kodwa kubalulekile ukuqaphela ukuba wonke umntu uhlukile. Izifundo zisitshelisa oko kunokusebenza ngokulandelelanisa, kodwa abantu abayizibalo. Kusenokuba nesizathu sokuba into eninzi kubantu abaninzi ayinakukulungela wena, nangona kunjalo.
Enyanisweni, isizathu esibalulekileyo sokuxoxisana nabantu abane-cystic fibrosis kukuqinisekisa ukuba wonke umntu onesi sifo uthatha ithuba lokuxoxa ngokugqithiseleyo nodokotela wabo. Kwimichiza sivame ukubeka amandla amaninzi ukuxoxa ngemithi kunye neenkqubo-izinto esizenzayo njengogqirha, endaweni yezinto ezifana nokuzivocavoca onokuzenza.
Nangona ukungabi nako kwexesha elichithwe ukuxoxa ngomsebenzi wenyama akuthethi ukuba kubaluleke kakhulu kunokuba unyango oluthathayo kunye neenkqubo ozenzayo ukuze uhlale uphilile ngesifo sakho.
Oko kwathiwa, izikolo zezokwelapha kunye neenkqubo zokuhlala zigxininisa kakhulu kunyango oluthile olunokukunceda nge-cystic fibrosis. Kuze kubekho unyango olufunyanwe kunye nezibonelelo ezifunyenwe kumsebenzi, oku kungayincoko oyifunayo ukuba uqalise njengesigulane esinamandla.
Iintlobo Zokuzivocavoca Ukwenza
Nangona abaninzi abantu abane-cystic fibrosis banokunyamezela uhlobo oluthile lomsebenzi, umlinganiselo kunye nohlobo lomzimba onokuyinyamezela luyahlukahluka ngokubhekisele kwisifo sakho. Kwabo abanokuyinyamezela, ukuqeqeshwa kwe-aerobic kubonakala kunika inzuzo enkulu ngokubanzi. Ukuzilolonga kwe-Aerobic kuquka imisebenzi efana nokubhukuda, ukuhamba ngebhayisikili, ukuqhuba, okanye nayiphi na enye imisebenzi enamandla ephakamisa izinga lentliziyo kwaye yenza ukuba uphefumle. Kubalulekile ukuba uqaphele ukuba ukuhamba kungabonakalisa uhlobo oluhle kakhulu lomzimba. Ukuba uqhuba ukukhala ngaphandle kombuzo, ungakhathazeki. Inkqubo yokuhamba kakuhle inokubonelela ngenzuzo enkulu.
Izinto ezisoloko zihoywa xa zixubusha ngokuzivocavoca, kukuba kufuneka ufumane uhlobo lokuzilolonga oluthandayo.
Umsebenzi wakho womzimba kufuneka ube yinto enokuyichulumisa . Sonke siyazi ukuba kwenzekani kubantu abaninzi xa benza izigqibo zaluphi na uhlobo. Abanye abantu bayakwazi ukunyusa kwaye bahloniphe iinjongo zabo ezilungileyo, kodwa ngenxa yethu ininzi, loo njongo ayiyi kuba yinyani ngaphandle kokuba sithande oko senzayo.
Kufuneka Uninzi Kangakanani?
Umgaqo jikelele wesohlwayo kukuba ukufumana inzuzo enkulu, iindlela zokuzilolonga kufuneka zibandakanye imizuzu engama-20 ukuya kwe-30 yomsebenzi we-aerobic kathathu ngeveki ubuncinci. Nangona kunjalo, nayiphina imilinganiselo yokuzivocavoca ibhetele kunokuba akukho nzisetyenzisiso kunye nokusetyenziswa kwemigangatho kufuneka kulungiswe ngokwezinga lomntu ngamnye wokunyamezela.
Ngokuqhelekileyo, ububanzi bubaluleke kakhulu ukuba ubude. Umzekelo, ukuba ukhetha ukuhamba imizuzu eyi-10 ukuya kwi-15 ngemihla yonke imihla uya kuqonda ukuphuculwa okongeziweyo kwimeko yakho yokuphila kunokuba uzama ukusebenzela imizuzu engama-45 kabini ngeveki.
Ukuzivocavoca
Ukuze ufumane ubuninzi bakho ekusebenziseni nasekukhuseleni izinto ezinokubakho, izinto ezinokuba ne-cystic fibrosis kufuneka zithathe amanyathelo okulinda xa uthatha inxaxheba kulo msebenzi.
Gwema ukutywa kwamanzi: Ukuthunga kunye nokulahlekelwa ngetyuwa ngexesha lokuzivocavoca kunokubangela ukuba umntu aphelelwe amanzi , ngakumbi kwimvula eshushu. Abantu abane-cystic fibrosis balahlekelwa ngakumbi ityuwa ngokuthuthumela kunabantu abangenaye i-cystic fibrosis, enokukubeka engozini enkulu yenkxalabo ekudambiseni amanzi. Ukupheliswa kwamanzi kungagwenywa ngokunyusa amanzi kunye neetyuwa ezilahlekileyo ngokusela iziphuzo zezemidlalo okanye ngamanzi kunye nokutya okutywekile okunyuse.
Gwema ukulahlekelwa kwesisindo: Ukuzivocavoca kwandisa imfuneko yamandla emzimbeni, esele iphakame kakhulu kubantu abane-cystic fibrosis. Ukuthintela ukulahleka kwesisindo, kubalulekile ukutya iikhalori ezaneleyo zokufaka indawo yeekhalori ezitshitshiswe ekusebenzeni. Kunokuba luncedo kakhulu ukuxoxa ngezicwangciso zakho zokuzilolonga nge-cystic fibrosis isondlo sezondlo esingenakho ukucebisa izongezo ezifanelekileyo zokutya. Funda kabanzi malunga nokungondleki kunye ne-cystic fibrosis .
Ukucima kwe-Airway: Abantu abaninzi abane-cystic fibrosis bafumanisa ukuba ukwenza unyango lwe-airway ngaphambi kokuzilolonga kunceda ukwandisa ukunyamezela kwabo. Njengebhonasi eyongeziweyo, usebenzo ngokwalo luyakwazi ukukhulula iimfihlo ezingakumbi ukuze kubekho imfuneko yokwenza olunye unyango lwe-airway emva kokusebenza.
Ukuzivocavoca iimpawu ezixhaswa yiCystic Fibrosis
Ngokuqinisekileyo, i-cystic fibrosis inokubeka imingcele ethile ekusebenzeni, kodwa yintoni na le nto? Uphononongo olujongene nalo mbuzo ochanekileyo ufumene ukuba ezininzi iinkxalabo zihambelana noku:
- Isiphumo se-cardiac - Isixa segazi intliziyo yakho iyaphupha ngokubetha nganye
- Ukunciphisa i-ventilatory - Ikhono lokwandisa umthamo wokuphefumula okanye ukuvakala kwezo zomoya
- Ukuchithwa kwemvelo - Ukuba awuzange usebenze ngokuqhelekileyo, kunokuthatha ixesha elithile ukuze wenze isimo
Ugqirha wakho angasebenzela nayiphi na le miqathango ukukunceda ukhethe iintlobo zokusebenzisa umlinganiselo onokuthi uphumelele, kunye nokunceda ukwazi ukuba unokwandisa kangakanani umsebenzi wakho.
Ukufumana Isizathu Sokuzivocavoca
Njengengxelo yokugqibela, uphando lusitshela ukuba abantu abane-cystic fibrosis, ingakumbi abantwana kunye nentsha, bawa phantsi kwiinkqubo zabo zokufunda ngokuqhelekileyo kakhulu. Kungenokuba lufanelekile ukujonga iindlela abantu abangenazo i-cystic fibrosis abambelele kwiinkqubo zabo zomsebenzi. Nazi ezinye iimbono:
- Ukuqesha umqeqeshi wezempilo okanye umqeqeshi womzimba.
- Khangela iinkqubo zokusebenza zezempilo kunye nezobuchule kwifowuni yakho.
- Fumana umhlobo womsebenzi. Ukuba uxanduva komnye umntu kunokukunceda unamathele kwisicwangciso sakho somsebenzi nokuba ufuna ukuzidela.
- Khangela i-aple app activity watch.
- Khangela ezi ngcebiso zokukhuthaza.
- Zisebenzise ukusebenzisa imidlalo yevidiyo (ezi zinto zifunyenwe ukuba zisebenzise ukufikelela kwiinjongo zokuzilungiselela abantu abane-cystic fibrosis.)
- Ukuze ufumane uncedo olungakumbi, funda malunga nabanye abantu abadumileyo abane-cystic fibrosis abaye badlala ibhola lebhola, ibhola yebhoksi, okanye umbhoxo.
- Funda kabanzi malunga nokusebenza kwengqondo, kwaye oko kusenza sikhuthaze.
Ngaphantsi kwi-Exercising With Cystic Fibrosis
Kucacile ukuba ukuqhuba umzimba kunokunika uncedo oluninzi kubantu abaphila nge-cystic fibrosis. Ngelo xesha, ke, ukuqhuba umzimba kufuneka kuqhutywe rhoqo ukuze kusebenze.
Thatha isikhashana ukucinga malunga neentlobo zomsebenzi owenzela owona mnandi. Ziziphi iintlobo zokuzonwabisa ezenza ujabule? Ngaba kukho iintlobo ezithile zomsebenzi onokubulala ezi ntaka ezimbini zeentaka ngelitye elinye? Ngokomzekelo, ngaba kukho umsebenzi ophuma kuwo kwaye uvumele ukuba uhlalisane nabanye? Ngaba kukho umsebenzi onokuzalisa umnqweno othile wokudala onayo, njengokugadi? (Ewe, ukulima kwintsikelelo njengomsebenzi wokwenyama.)
Emva kokuba ucinge ngemisebenzi oyithandayo, hlala phantsi nogqirha wakho kwaye uthethe ngendlela okhuselekileyo yokwenza lo msebenzi ngaphakathi kweengxaki zesifo sakho.
Ukuzivocavoca yindlela enye yokuphucula ukuhlala kwakho kakuhle ne-cystic fibrosis. Thatha isikhashana ukuhlola ezi ngcebiso malunga nokuphila ubomi obupheleleyo kunye ne-cystic fibrosis .
> Imithombo:
> I-Carbonera, R., iVendrusculo, i-F., ne-M. Donadio. Iimpendulo zeMvelo ngexesha loPhuculo neMidlalo yeVidiyo kwizigulane ngeCystic Fibrosis: Uhlolo lokuHlola. Amachiza okuphefumula . 2016. 119: 63-69.
> Cox, N., uAlison, J., noAll Holland. Amanyathelo okuKhuthaza umsebenzi wePhysical People kubantu abaneCystic Fibrosis. I-Cochrane Database yeeNkqubo eziPhezulu . 2013. (12): CD009448.
> Gruet, M., Troosters, T., kunye no-S. Verges. I-Peripheral Muscle engafanelekiyo kwiCystic Fibrosis: i-Etiology, Impembelelo yeeKliniki kunye nokuPhendulwa koNyango lweZonyango. Umbhalo weCystic Fibrosis . Ngo-2017 uMatshi 2. (uEpub ngaphambi kokuprinta).
> Urquhart, D., isikhangiso F. Vendrusculo. Ukuchazwa kweeKliniki zeCardiopulmonary Exercise Testing kwiCystic Fibrosis kunye neMpembelelo yokuCetyiswa koMsebenzi. IziPhulo zoPhulo . 2015 Ngo-Oktobha 13. (Epub phambi kokuprinta).