Yile ndlela endichazele ngayo abantu ukuba beziva njani ukuba baphile kunye ne-MS.
Ndanduliwe kutshanje ukuba ndinike inkulumo "kubaphathi beqela" kwi-MS15, uhambo lweebhayisikili ngeebhayisikili ezili-150 phakathi kweedolophu ngaphesheya kwe-United States ephakamisa imali kwiNational Multiple Sclerosis Society. Andiyicingi ukuba abantu babantu abaphulaphuli babene- multiple sclerosis (MS) , kwaye bambalwa abathandana nabo abane-MS. Aba bantu bathatha ubuninzi bempahla yokucwangciswa koxanduva lweqela labo beenkampani kunye nokwazi kakhulu malunga nokuhamba ngebhayisikili, kodwa kungekhona i-MS.
Ndandifuna ukuwazisa ukuba umsebenzi wabo wawuxabiswa. Ndandifuna ukuwazisa ukuba "thina" yonke indawo. Ndandifuna ukubatshela ukuba ngenxa yokuba ndihamba (kunokuba ndijike) ukuya kwipolomu, ukuba mna, nabantu abanjengawe, ndabuhlungu ngeendlela ezazinzima ukuzibona okanye ukuziqonda.
Ingcamango Yethu Yokujonga
Nantsi into endibaxelele yona:
Ndifuna ukucacisa encinci malunga nento evakalelwa yi-MS. Amagama afana "ukhathele" okanye "adidekile" akwanelanga, ngoko ndacinga ukuba ndizame ukuziqhelanisa nantoni na, ukuba awuyi kucinga ukuzondla.
Okokuqala, nceda uphakamise isandla sakho ukuba uye wabuya kumazwe ngamazwe. [Ininzi yabo yenzayo.] Mhle, kuhle, oko kunceda.
Nceda uvale amehlo akho. Ndifuna ukuba uzame ngokwenene kwaye uze kunye nami kulolu hambo.
Ucelwa ukuba uthathe uhambo loshishino kwilizwe ongeke uvumeleke-makhe sitsho kwindawo ethile e-Asia [ukwenza kube kude]. Kwakuyimpendulo yokugqibela ngomphathi wakho, ngoko ke awuve ulunge.
Izinto ziye zaphuthuma kwaye zixakekile, ngoko awuqinisekanga ukuba upakisha izinto ezilungileyo (uphelisa ngebhegi ephetheyo enzima kwaye enamandla), kwaye uye wafika ngokukhawuleza ukuya kwisikhumulo sezindiza, ngoko wakhathazeka ngexesha lonke ukuba umile kwixesha elide lokhuseleko oluya kulukhumbula uphupha.
Ugijimela esangweni lakho kwizicathulo ezingakhawulezileyo kunye neengubo ezinzima kunye neengxowa zakho kwaye ngumntu wokugqibela oya kukhwela.
Uhleli esihlalweni esiphakathi, kwaye akukho ndawo ikhegi yakho, ngoko uyayifaka phantsi kwesihlalo phambi kwakho, oku kuthetha ukuba awukho indawo yokubeka iinyawo zakho ngaphandle kwesikhwama sakho. Ubushushu ekusebenzeni. (Ngendlela, nabani na abahlala phantsi kwiklasi yezoshishino, bavuke baze bathumele emva kwendiza kule moya.)
Umthetheli uyaza kwaye wamkela abo bahambayo, ekwazisa ukuba ixesha lokuhamba ngeeyure ezili-14.
Khawuleza phambili ukuya ekupheleni kwendiza. Ummelwane wakho waqhubeka ekhonkxa ngesigodlo sakhe, walala esithembele kuwe, ngoko awukwazi ukulala. Awunakudla ngokwenene, njengoko amadolo akho avimbela itafile yakho yeetayiti ukuba ibe yinqanaba. Umntu phambi kwakho wayenqamle ukuhlala kwayo, ngoko ke wayexinzezela ngamadolo ixesha lonke.
Kukho intuthuko encinane, kodwa idiza ekugqibeleni ihamba. Umntu ongekho kuwe uhlahla iifoksi zawo entloko yakho ezama ukuzithumela ebhodini elingaphezulu. Abantu bathatha ixesha labo bengena kwi-aisle, bakushiya kwindawo engabonakaliyo ngelixa ulinde. Ufaka iinyawo zakho ezivuvuzayo kwiingcathulo zakho uze uthathe isikhwama sakho, esibonakala sithe sandiba nzima.
Ekugqibeleni usuka kuloo moya. Akukho nto isiNgesi (okanye nayiphi na ulwimi onokuyiqonda).
Ku-2: 00 ntambama kwaye wonke umntu ubonakala eyazi apho aya khona ngaphandle kwakho. Awulangalele iiyure ezingama-36. Ilanga lijikeleza, kwaye yonke into iyakhanya kwaye iphakamisa kakhulu.
Ngoko makhe sijonge indlela ozivakalelwa ngayo ngeli xesha:
- Uphelile kakhulu kangangokuthi uvakalelwa kukuba unesiqhwala kwaye unesifo sezulu.
- Udidekile-awuyazi kakuhle ukuba ungaphi okanye apho ufuna ukuhamba khona. Uyazi ukuba uya kuwujonga ekugqibeleni, kodwa ngoku, izibane zikhanyayo kwaye izandi ziphakame kakhulu.
- Imilenze yakho iminyene, kwaye iinyawo zakho zinezibilini zokungalali kwaye zibuhlungu ezicathulweni zakho zibanzi kakhulu.
- Udinga ukucima kakubi kodwa ungazi apho iindawo zokuhlambela khona.
- Ushushu kakhulu kwengubo enxibileyo, kuba awufuni ukuyenza nayo.
- Isikhwama sakho sinzima kwaye sinzima kwaye uziva ubuthathaka ukuba ungayithwala. Emva koko umxube uphula kwaye ufuna ukukhala.
Kulungile, vula amehlo akho. Lo mzuzu. Nguyo MS .
Iingcamango Zokugqibela
Ndine-teary encinane ekupheleni kwalo mboniso. Noko ke, ndothuka kukuba, uninzi lwabaphulaphuli bam. Ndicinga ukuba wonk 'ubani unokuqonda malunga nokuba ugula kangakanani na ekupheleni kwendiza yendiza yelizwe lonke xa usadingeka uhambe ngendlela engaziwayo. Andizange ndibacele ukuba bacinge ngobomi kwisihlalo sabakhubazekile okanye bazinike ii-injections imihla ngemihla. Kwakhona ndingazange ndikhuphuke apho ukuba ndiwanike intetho malunga nendlela i-MS indibulele ngayo yonke imihla okanye ndithetha ngesimo "sam sinokwenza". Ndandifuna nje ukunika ingcaciso encinane kwindlela ndiziva ngayo imihla ngemihla.
ILizwi
Amava, iimpawu neemvakalelo malunga nokuba ne-MS zihlukileyo kumntu wonke. Ukuba unayo i-MS, mhlawumbi ungongeza iinkcukacha ezingenakuthathaka "kumboniso" wam okanye ukudala eyakho imeko efanelekileyo. Ukuba awunayo i-MS, kodwa umthandayo uyabenza, babuze indlela abazivakalelwa ngayo-ngokwenene bazive-ixesha elininzi. Impendulo yabo ingamangalisa.
Kwakhona, ingongoma yalo msebenzi ayizange izuze kubaphulaphuli bam (okanye nabani na ukufunda oku ngoku). Kwaye kukuthetha ngento ebaluleke kakhulu ebomini bam. Kwakungenxa yokwenza uxhumano nabanye abantu malunga nale nto ebizwa ngokuba yi "MS," nokuba kwakungomzuzwana nje.
> Ehlelwe nguDkt. Colleen Doherty, ngo-Agasti wesi-2, 2016.