Ziza kwamkelwa njani na?
Ngaba i-syndrome engapheliyo iphela inegama elitsha? Oku kuxhomekeka ngokubanzi malunga nokuba ubani uya kusebenzisa le entsha esicetywayo.
Ngomhla ka-Februwari 10, 2015, iphaneli yeZiko leMida licebise igama elitsha kunye neendlela ezintsha zokuxilongwa kwimeko. Kodwa abazange baveze "i-myalgic encephalomyelitis" okanye i-ME / CFS , ngoko ke iingcali zithemba ukuba ngaba isiguli siza kwamkela igama.
Ukukunika umbono othile, iphaneli yahlaziya i-9,000 izifundo zesayensi, yakuva ubungqina bengcali, kwaye yafumana ulwazi kuluntu ngaphambi kokwenza iingcebiso zayo. Emva koko kuhlanganisa ingxelo engama-235 ebizwa ngokuthi, "Beyond Myalgic Encephalitis / Chronicly Fatigue Syndrome: Ukuhlengahlengisa ukugula."
Igama elitsha
Liliphi igama? Isifo sokunyamezela, okanye i-SEID.
Amalungu ePhaneli athi eli gama lichaza into ebalulekileyo yesifo-ukungakwazi ukunyamezela ukunyamezela, nokuba ngumzimba okanye wengqondo, ebizwa ngokuba yi-malaise . Bavumelana nezigulane kunye neengcaphephe ezazisithi ngamashumi eminyaka ukuba igama elithi "isifo esingapheliyo sisifo" senza ukukhanya kwesifo esibi, abantu bahlala bevakalisa indlela abadiniweyo ngayo, ngoko kufuneka babe nayo.
Nangona kunjalo, ngokutsho kweNew York Times, ezinye iingcali zicinga ukuba ikomiti kufuneka ihlolwe ngommandla we-ME / CFS ngaphambi kokuza negama elitsha ukuqinisekisa ukuba yinto ethile isigulane esingayivuma.
Le mpikiswano iqhubekile kakhulu kwaye ixakeke kakhulu kwaye imvakalelo yokuba abanye abantu banamathele kakhulu kumagama angama-myalgic encephalomyelitis, ME / CFS, okanye i-CFS / ME.
Iphaneli ichaza ukuba, kukho iingxaki ngegama elithi myalgic encephalomyelitis. Leli gama lithetha ukuvuvukala kwinkqubo yenzwa, engenawo ubungqina obuqilileyo emva kwayo, kunye nentlungu yesisu, abayithethayo akuyiyo impawu ebalulekileyo.
Abaninzi kwisigulane besigulane bagxeke iphaneli ngenxa yokuba uninzi lwamalungu alunayo ingcali eyaziwayo ngokugula. Kwakunamalungu amaninzi anamava amaninzi ukunyanga i-ME / CFS, nangona kunjalo.
Ifuna Ukuvuyela Ngoku
Iphaneli ibonakala iyayiqonda umonakalo igama elidlulileyo eliye lenzile kwizigulana ngokunyanyisa nokunciphisa ukuguqula ubomi kunye nokugula okuthe rhoqo. Kuqala ukuqala. Kwakhona, amanye amalungu ephaneli athi akukholelwa ukuba ligama eligqibeleleyo, kodwa lilunge ngakumbi ngoku.
Izinto ezimbini zokuchazela igama ngokwalo - liquka "indlela yokusebenza," ebonisa ukuba umzimba, kunye "nesifo," abantu abaninzi baye balinda ixesha elide ukuva malunga ne-ME / CFS.
Enye ingcali ithi le ngxelo isisishwankathelo esiphezulu sobubungqina obuye wayifunda. Iphaneli yaqaphela nokuba uphando oluncinane lwenziwa ntoni kwi-ME / CFS kuthelekiswa nokuba bangaphi abantu abachaphazelayo.
Iqabane lale ngxelo liya kubeka phambili izinto ezibalulekileyo zophando zokuqhubela phambili. Okwangoku ihlaziywa ukupapashwa ngamaZiko eZiko lezeMpilo.
Kwaye kukho into enokuba yinto ebalulekileyo yile ngxelo: inqobo yokuchasana.
Iimpawu zokuxilonga
Uluntu lwesigulane luye lwaqhubeka luchukumisa ukuba i-US ithathe into ebizwa ngokuba yiCanada Consensus Criteria.
Isinyathelo esifanelekileyo, ngoko ke, ukuba imigaqo-nkqubo entsha isakhiwe, kodwa ayifani ngokufanayo, oko.
Imigaqo-nkqubo entsha ibandakanya:
- Iinyanga ezili-6 ezinzima, ukungazinzi okuchaziweyo kunye ne-postexertional malaise kunye nokungabonakali kokulala ;
- Iingxaki zeengcamango okanye ukunyamezelana komzimba (ukuxakeka kwemvelo) .
Uninzi loogqirha baye bakhononda ukuba inkcazo yeCDC, esetshenziselwa ukuxilonga abantu ukususela ngo-1994, ingakwazi ukuqonda abantu abanezinye izizathu zokukhathala okude, kuquka ukudandatheka. Lezo zithethe zaziquka iinyanga ezintandathu zokunyamezela, ukungazinzi okuchaziweyo kunye neempawu ezine okanye ngaphezulu kwoluhlu olubandakanya zonke iinkqubo ezintsha ngaphandle kokunyamezelana komzimba.
Nangona kunjalo, kunokwenzeka, phantsi kweemfuno ze-CDC, ukuxilonga i-ME / CFS ngaphandle kweminye impawu yeempawu zokugcina ukugcina ukhathala.
Ukwamkelwa kweNgxelo
Ukuphikisana kwexesha elide kwaye i-ME / CFS ifake izigulane kunye nabaphandi ngokubhekiselele kurhulumente kwiminyaka emininzi. Nangona le ngxelo kunye nepaneli eyivelise ngokuqinisekileyo ayifanelekanga, kufuneka ndizibuze ukuba nantoni na iya kukukholisa bonke abantu abanenja kule mpi. Ndikrokrela ukuba abanye baya kuqhubeka bewamkela ngenye indlela kungakhathaliseki ukuba.
Ndiyathemba ke, ukuba abantu abaneleyo baya kwamkela igama elitsha ukuba singagcina sishiya emva kokunyaniseka kwesifo esingapheliyo kunye nokufundisa kwakhona uluntu malunga nesimo esiyiyo esi sigulo.
Ngaphezu koko, ndiyathemba ukuba uluntu lwentlalo luya kuqonda inani lophando kunye nobuchule obuye bahamba ekuqulunqeni le ngxelo baze bazamkele nantoni na esiyibiza ngokuba yimeko ebonakalayo yenyama. Iindlela ezintsha zokuxilonga bhetele zibalaselisa iimpawu eziphambili zesifo kwaye zingakhokelela ekuxilongeni kunye nokucwaninga okuthe tye. (Emva kwakho konke, kwiminyaka embalwa edlulileyo siye sabona ingcaciso engaphantsi kwama-20, okungenani ezintlanu zazo zisemdlalweni .)
Ukuba le ngxelo kunye neqabane layo inokukwenza konke oku kunye nokukhokelela ekuthandeni intshisekelo yophando, iya kuhamba ixesha elide ekuphululeleni izikrwe zokulwa kunye nokuphucula imbono yabantu abaphila nale meko.
Imithombo:
Ngaphandle kwe-Myalgic Encephalomyelitis / Isifo Sokunyamekela Isisigxina: Ukuhlengahlengisa ukugula. ISiko leMpilo, iNational Academy of Sciences. NgoFebruwari 10, 2015. Wonke amalungelo agcinwe. Kufumaneka: NgoJanuwari 2016.
Cohen, Jon. Ukufumana isifo esingapheliyo sokukhathala, i-hello SEID. I-Science insider, i-American Association yoPhuhliso lweNzululwazi, ngoFebhuwari 10, 2015. Wonke amalungelo agcinwe. Kufumaneka: NgoFebruwari 2015.
Tuller, David. Isifo sokunyamezela esingapheli sithola igama elitsha. I-New York Times, ngoFebruwari 10, 2015. Wonke amalungelo agcinwe. Kufumaneka: NgoFebruwari 2015.