I-Fibromyalgia inomgama omude wokuhamba xa kuziwa kuphando, unyango , ukuxilonga , kunye nolwazi oluntu. Nangona amaziko ophando, bobabini kunye noluntu, kubalulekile ekuqhubekeni kwethu, abayena kuphela abadlali abasentsimini.
Imibutho yokunceda isebenza kanzima emva kwemiboniso kunye noluntu loluntu ukuqhubela phambili uphando kunye nokwazisa. Iinjongo zabo eziphakamileyo zikunceda sonke siphi na imeko enzima kwaye iphosakeleyo ekukholeni ubomi obungcono. Izibonelelo eziphezulu ze-fibromyalgia e-US kunye nabanye abavela kwihlabathi jikelele zidweliswe apha ukuze ufunde kabanzi ngala maqela abalulekileyo kunye nomsebenzi obalulekileyo abenzayo ngenxa yethu.
Umbutho weSizwe weFibromyalgia
Umbutho weSizwe we-Fibromyalgia (NFA) mhlawumbi owaziwa kakhulu yi-fibromyalgia uthando e-US Kuye waba yinto ebalulekileyo emva kweMeyi ye-12 ye-fibromyalgia yeentsuku zokuqwashisa ngosuku lonke iminyaka engama-20. Kuye kwashicilela iphephancwadi iFibromyalgia AWARE kwakunye nokusingatha iinkomfa zemfundo.
Ngokutsho kwewebhusayithi ye-NFA, umbutho "uncede utshintshe izimo zengqondo nokuqonda into efana nokuhlala ne-FM." I-website yayo inikezela ubuninzi beenkcukacha malunga nemeko kunye nenkqubo eqhubekayo yokufundisa oogqirha kunye nabanye ababonelela ngempilo abaphatha i-fibromyalgia.
Iinkcukacha ngokukhawuleza kwi-NFA:
- Ekwasekwa: 1997
- Isimo sobuluntu: 501 (c) 3 engekho inzuzo
- Indawo: I-Orange, California
Izibonelelo kuwe:
- Ubulungu be-Free buquka i-eNewsletters, iintetho ze-intanethi ze-intanethi, ukuhlaziywa kophando, ulwazi malunga nezifundo ezifuna abachaphazelekayo, kunye nezaphulelo kwizinto ezithile kwi-NFA esitolo se-intanethi
Iindlela zokufaka isandla:
- Nika imali nge PayPal
- Thenga iimveliso zemfundo kunye nokwazisa kwivenkile ye-intanethi
- Yenza i fundraiser
- Uncedo ekuxhaseni imali kunye nemigudu yolwazi, kuquka neNkcazo yokuPhupha uLwesibili kunye neemeko zomhla wolwazi
- Khetha iNFA kwi-Amazon Smile
Fibromyalgia Coalition International
Kwiwebhusayithi yayo, i-Fibromyalgia Coalition International (FCI) ithi ifuna ukuba "ibhakoni yethemba kwizigidi ze-FM / i-CFS ezichaphazelekayo emhlabeni jikelele." Ixhamla iinkomfa kunye neminye imicimbi yezemfundo kwi-Kansas City kwaye ihlawula ingqwalasela eyodwa kwiindlela ezingekhoyo unyango, ezifana nokutya, ezixhaswa ngophando lwezonyango.
Iinkcukacha ngokukhawuleza kwiFCI:
- Eyilwe: 2000
- Isimo sobuluntu: 501 (c) 3 engekho inzuzo
- Indawo: I-Mission, eKansas
Isiteyithimenti soxanduva:
Injongo ye-FCI kukunika ithemba kubo bonke abantu abaneengxaki ze-Fibromyalgia ne-Chronicly Fatigue Syndrome ngokusebenzisa uphando olunzulu kunye nokunika ingxelo ngezemvelo, ezibonakalisiweyo, kunye neendlela ezisebenzayo ezijolise kwizizathu ezingundoqo.
Izibonelelo kuwe:
- Uluhlu lweqela le-fibromyalgia
- I-Directory ye-fibromyalgia yonakekelo lwempilo
Iindlela zokufaka isandla:
- Zithenga iincwadi, iiCD, kunye nemveliso yolwazi kwi-intanethi
- Ngesinye ixesha okanye iminikelo yemali eqhubekayo
- Ukunika indawo emsebenzini
- Khetha i-FCI kwi-Amazon Smile
I-Fibromyalgia kaZwelonke kunye noPhando oluPhezulu lokuPhatha
I-National Fibromyalgia & Chronic Pain Association (i-NFMCPA) ithi injongo yayo kukukhuthaza ukuxilongwa kwangaphambili, ukuqhuba uphando lwezenzululwazi ukunyanga, nokuqhuba uphando kwiindawo ezifanelekileyo ezifikelelekayo, ezifikelelekayo kunye nezithengiweyo ze-fibromyalgia. Iququzelela iphinde ikhuthaze iziganeko zeentsuku zokuqwashisa ngoMeyi 12 kwaye inikezela udonga kunye nodonga lokubhiyozela kunye nokukhumbuza inkumbulo kwiwebhusayithi yayo.
Iinkcukacha ngokukhawuleza kwi-NFMCPA:
- Eyasungulwa: 2008 (njenge-CURE FM, yaba ngu-NFMCPA ngo-2010)
- Isimo sobuluntu: 501 (c) 3 engekho inzuzo
- Indawo: Logan, Utah
Isiteyithimenti soxanduva:
UMbutho weSizwe weFibromyalgia & Chronic Pain Association udibanisa izigulane, abenzi bomgaqo-nkqubo, kunye nokunakekelwa kwempilo, uluntu, kunye nolwazi lwezenzululwazi ukuguqula ubomi ngokubonelela ngemiboniso, ukuxhasa, uphando, kunye nemfundo ye-fibromyalgia kunye nezifo ezingapheliyo. Ikwabonelela ngeendaba ezitsha zophando kunye nemigudu yokukhuthaza.
Izibonelelo kuwe:
- Uluhlu lwezixhobo zokukhubazeka kunye nomsebenzi
- Uluhlu lwezibonelelo zemicimbi yabadala
- Uluhlu lwemithombo yezemali yokugula okungapheliyo
- Articulos en Espanol
Iindlela zokufaka isandla:
- Nika imali
- Thenga i-t-shirts okanye izesekeli kwivenkile ye-intanethi
- Khetha i-NFMCPA kwi-Amazon Smile
I-National Fibromyalgia Partnership, Inc.
Injongo ye-National Fibromyalgia Partnership (NFP) kukusasaza ulwazi kunye nokuqonda kwe-fibromyalgia kunye nokudibanisa nabantu abaneli meko ukuya kumthetho, ngokwezemali nakwezinye izibonelelo zoncedo. Ipapasha iphephandaba lekota elibizwa ngeFibromyalgia Frontiers kwaye likwazisa ngolwazi malunga nezifundo ezifunayo abathathi-nxaxheba.
Iinkcukacha ngokukhawuleza malunga neNFP:
- Eyilwe: 1992
- Isimo sobuluntu: 501 (c) 3 engekho inzuzo
- Indawo: Linden, Virginia
Isiteyithimenti soxanduva:
Ukwenza ulwazi oluchanekileyo lwezonyango, ulwazi lolwazi lwekhwalithi kwi-fibromyalgia ekhoyo kubulungu bethu, ootitshala bezempilo, kunye noluntu jikelele.
Izibonelelo kuwe:
- Ulwazi malunga nesifo sengqondo se-myofascial (imeko eqhelekileyo yokuqhawula)
- Ulwazi malunga neenkonzo zezemali kunye nezentlalo
- Uluhlu lwezixhobo zamadoda kunye nezingane ezine-fibromyalgia
- Articulos en Espanol
I-American Chronic Pain Association
Umbutho we-American Chronic Pain Association (ACPA) unikeza "inkxaso yontanga kunye nemfundo kwizakhono zolawulo lweentlungu kubantu abaneentlungu, iintsapho kunye nabahlobo, kunye nabaqeqeshi bezempilo." Ikuncede ukuseka amaqela amanqaku angamaqela e-ACPA e-US, Canada, Great Britain, nakwamanye amazwe.
Ngelixa lithe ngqo lombutho ojoliswe kwi-fibromyalgia, abantu abane-fibromyalgia banokuzuza kwiqela leenkxaso, ulwazi kunye nokukhuthaza. Kwakhona unencwadana ebizwa ngokuba yi -Chronicle.
Iinkcukacha ngokukhawuleza kwi-ACPA:
- Eyilwe: 1980
- Isimo sobuluntu: 501 (c) 3 engekho inzuzo
- Indawo: Pittsburgh, Pennsylvania
Izibonelelo kuwe:
- Uluhlu lweqela lokuxhasa ubuhlungu obungapheliyo
- Qala iqela lokuxhasa kwindawo yakho
- Ulwazi malunga neemeko ezininzi zentlungu, unyango kunye nezixhobo zokulawula ubuhlungu
Iindlela zokufaka isandla:
- Nika imali nge PayPal
Imibutho yamazwe ngamazwe
Ngaphandle kwe-US, imibutho yoncedo eninzi isebenza nzima ukwenza ngcono ubomi babantu abaneli meko. Ezinye zazo zi:
- I-International Myopain Society
- I-European Network ye-Fibromyalgia Associations
- Fundacio nge-Fibromialgia I la Sindrome de Fatiga Cronica (Spain)
- AFIBROM (Spain)
- I-Fibromyalgia Action UK
ILizwi
Kwabo banako ukunikela, unokufumana ummkeleli ofanelekileyo wakho wokupha. Kwabo abanako, mhlawumbi unokufumana ezinye iindlela zokunceda okanye ukukhuthaza le mibutho. Kungakhathaliseki ukuba, unokukwazi ukuzuza ngokuthe ngqo kwiinkcukacha kunye neenkonzo ezibonelela zona, ngokungekho kwintlawulo engathanga ngqo esiyifumanayo sonke kwimigudu yabo.
Ngaphezu koko, iminikelo kwimibutho yokunceda njengalezi ingenza izipho ezilungileyo kubantu bakho ebusweni obungapheliyo okanye banokusebenzisa njengendlela yokukhumbula umntu olwa ne-fibromyalgia ngexesha lobomi babo. Ungabhala kwakhona iminikelo yokuzinikela ekuthandeni kwakho. Kodwa, ngaphambi kokuba unikele kunoma iyiphi inhlangano encedisayo, qinisekisa ukuphanda okokuba uyazi ukuba imali yakho iyayichitha indlela ofuna ngayo.