Ukuza kwiiGrips kunye noPhephalo lwe-Ulcerative Colitis
Ulcerative Colitis Ruins Vacation My
Kwakuyi-Oktobha ka-1998, kwaye mna nomyeni wam sasihamba ukuya kwi-Disney World eFlorida. Wayesinikeza intetho kwinkomfa, kwaye ndiza kunye nokukhwela - kwaye ndibona uMickey, kunjalo.
Ngoxa sasiseDisney ndachitha ixesha elide liqhubela kwiindawo zokuhlala ngenxa yesifo samagciwane esilonda.
Ngombulelo kukuba, ndineencwadi ezapakisha ipaki nganye kakuhle. Kwiibhasi ukuya nase-hotele, ndandisoloko ndisoloko ndixakekile, ngethemba lokuba andizange ndifune "ukuya" ngaphambi kokuba sifinyelele kwindawo esiya kuyo. Kwangathi kamva mna nomyeni wam kwafuneka siphume ebhasi kwiindawo ezahlukeneyo zeendawo ukuze ndikwazi ukusebenzisa izixhobo apho. Sasinomdla, kodwa kwakunzima ukuhlala ndibuza apho iindawo zokuhlalisa ezilandelayo. Ndandicinezele ukuba ndiyichitha uhambo lomyeni wam.
Buyela Eyinyaniso ...
Xa sabuyela ekhaya, ndenze i-aphoyintimenti ne- gastroenterologist entsha. Ekubeni bekude kakhulu ukusuka kwikhooloncopy yokugqibela, walungiselela ngokukhawuleza.
Andikhumbuli nantoni na kwi-test yangempela (bulela ubuhle). Into yokuqala ndiyikhumbulayo kubonakala kwimeko yam ugqirha xa ebuyela kwindawo yokubuyisela ukuxoxa ngeziphumo zam. Wayebonakala ngathi wayebone umoya, kwaye wandixelela ukuba ikholoni yam yayigcwele iipolisi .
Kwakubi kakhulu, wayekhathazekile kukuba ndandinomdlavuza wekolon , kwaye wayeya kucebisa ukuba asebenze ngokukhawuleza. Mna, kwimeko yam yobunzima, ndakhawuleza ndaqala ukulila ndaza ndambuza ukuba wayethetha ukutyunjwa kwe-j-pouch yesibini , kwaye waqinisekisa ukuba wenza.
Wagijimela iingxelo zebhebhu, kwaye ngaphambi kokuba ndihambe siye safumanisa ukuba ii-polyps zazingekho umdlavuza.
Asekho, kunjalo. Babonisa iimpawu ze- dysplasia , enokuthi ibe ngumtshintshi womhlaza. Ikholoni yam inokuguqula umdlavuza, kwaye akunako.
Izigqibo, izigqibo
Ngoku ndikunokukhetha okunzima ukwenza. Andizange ndifune ukuhlinzwa, kodwa kwakubonakala ngathi yindlela efanelekileyo kakhulu yokusebenza, njengoko ikoloni yam ingaba nomdlavuza ezinyangeni ezintathu ezizayo. Kwafuneka ndigqibe isigqibo sokuphi uhlobo lokuhlinzwa, kwaye apho ndiza kuyenza khona.
Ndabonisana nabagqirha ababini abahlukeneyo. Babenelungelo kwizibhedlele ezahlukeneyo, kwaye babenemibono eyahlukileyo kwimeko yam. Umgogodli wokuqala ndambona wathi unokundinika i-j-pouch kwisinyathelo esinye ngenxa yobutsha bam kunye nempilo yam enye. Oku kwakuchukumisa gqitha kum, kodwa ndandingathembeki, njengoko ndandifunde inyathelo elilodwa lithatha iingozi zengxaki ezifana ne- pouchitis .
Udokotela wesibini ugqirha wancoma indlela yokunyathela. Xa uneminyaka engama-25, akukho mntu ufuna ukuhlinzwa ezimbini kwiinyanga ezintathu, kodwa ndagqiba kwelokuba ndenze. Ndandifuna ukuba le nto iyenze ngokuchanekileyo, kwaye ukuba ndimele ndinyamezele intlungu kunye nokungahambi kakuhle ukuze ndibe nobomi obungcono kwixesha elizayo, oko kwakungqinelana nam.
Isinyathelo sokuQala
Ukuze ndizilungiselele i-ileostomy yesikhashana, ndafunda yonke into endiyifumana ngayo malunga neenkqubo.
Ndadibana nomhlengikazi we- ET , kwaye wachaza ngakumbi malunga nendlela yokunyamekela i-ileostomy yami. Wakhangela isisu sam, sagqiba ekubeni i-stoma ifanele ibe isekelwe kwingubo kunye nendlela yokuphila, kwaye wayibeka ngesisu sam ngeyinki engabonakaliyo. Wandinika isampula yokumisa i-ostomy, ngoko ndiza kuyazi kakuhle. Xa ndifika ekhaya ndawunamathela esiswini sam phezu kwe "stoma", ukuze ndibone indlela eya kuvakalelwa ngayo.
Ukuhlinzwa kokuqala kwakuyi- colectomy epheleleyo kunye nokudala i-j-poch kunye ne-eyostomy yesikhashana. Ndichitha iintsuku ezingama-5 esibhedlele ndaza ekhaya ngesikhwama esigcwele imithi kuquka ne-painkillers, antibiotics, kunye ne- prednisone .
Ndandinomhlengikazi oza kum ekhaya ukunceda nditshintshe umbane wam. Ngoko, amaxesha amathathu okuqala ndawushintsha ndafumana uncedo. Ngexesha lesithathu ndiyenzile mna kwaye umongikazi wongamela. Ndimele ndenze umsebenzi omhle ngenxa yokuba andizange ndivule iinyanga zonke ezintathu ndibe ne-ileostomy.
Kwakungelula ukuba ndiyamkele isikhwama ngenxa yokuba ndiyazi ukuba yinto yesikhashana. Ndiyifumene ibe yinto enomdla ngakumbi kunokuba iyatshitshisa okanye iyigxina (emva kweminyaka eyi-10 ne-ulcerative colitis, kwakungekho nto enokuyihlambalaza). Inxalenye eyona nto ingcono ngesikhwama yayiyinkululeko kwi-room! Ndingahamba ukuya kwintengiso kwaye ndingakhathazeki ukuba ibumbi lokugezela elikufuphi lalingamabini aphantsi, kwaye ndiya kwidemesi kwaye ndingafanele ndivuke phakathi. Umama wandithabatha ukuba ndifumane umququzelelo wokuqala kwimeko ebomini bam, kwaye andizange ndixhalabele ngesifo samagciwane esilonda. Kwakumangalisa, kwaye ukuba bekufuneka ndibe nengxowa, loo nto yayiyintengo encinane ukuba ndihlawule.
Isinyathelo sesibini
Nangona ndandinandipha ubomi, ndandifuna ukuqhubeka kwisinyathelo esilandelayo kwaye ndifumane i-j-poch yami eqhotyoshelweyo. Amava am ne-ileostomy ndibonise ukuba akuyixinzelelo kwaye iyingozi, kwaye ndingaba nobomi obuhle ukuba kufuneka ndibuyele kwi-ileostomy ngelinye ilanga.
Ndatshwenyeka kakhulu elele kwi-gurney, ndilindelwe ukuba bangithathe kumsebenzi wokuhlinzwa. Ndandiziva kakuhle, kwaye ukuzithoba kwam iintlungu zaqala ukubonakala zingenangqondo. Ukuhlinzwa kwam kwabambezeleka ngeeyure ezimbalwa ngenxa yongxamiseko. Ngombulelo, ndandidinwe kakhulu ekubandezelekeni ekugqibeleni ndalala, kwaye into elandelayo ndayazi ukuba yayingumsebenzi wokuhlinzwa. Abahlengikazi babenomdla kwaye bawenza amahlaya kangangokuba andiyi kuthuka.
Xa ndavuka ndibe nomnye umhlengikazi omangalisayo onokubuyiselwa othe wafumana intlungu yam phantsi kwangoko, kwaye ndathunyelwa ekamelweni lam. Ngokukhawuleza ukuba ndiyazi ngokwaneleyo, into yokuqala endiyenzayo kwakukukuba ndivavulwe isisu kwaye ndihlolisise ukuqinisekisa ukuba isikhwama siphelile!
Ndandibuhlungu kakhulu kunokuba emva kwesinyathelo sokuqala. Kwathatha iintsuku ezimbini iintsuku zokuvuka. Kwakuyixesha elibi, andingenanto yokutya, kwaye ndaqhubeka ngena kwindawo yokuhlambela kwaye ndizama ukuhambisa amathumbu am, kodwa akukho nto eya kuphuma. Ndaqala ukukhutshwa, kwaye ndixinezelekile kwaye ndixhalabile. Ekugqibeleni, emva kokuba ndibonakale ngonaphakade, ndakwazi ukuhambisa amathumbu am! Ngaphambi kokuba ahambe ngalobo busuku umyeni wam waqinisekisa ukuba ndifumene i-tray ye-liquids ecacileyo, kwaye kusasa ngandipha ukutya okunzulu. Ngaloo mva ndaya ekhaya.
Ikhoyo kunye Nekamva
Emva konyaka nge-j-poch, ndandisenza kakuhle kakhulu. Ndingadla nantoni na into endiyifunayo (ngaphakathi kwesizathu), kwaye ndiphantse ndibe ne-diarrhea. Ndayichitha iifologi yam malunga namaxesha angama-4-6 ngosuku, okanye nanini naxa ndihlala kwigumbi lokuvuthwa (kunye nesibhanki sam esincinci malunga neeyure ezimbini). Ukuba ndiyidla into ecocekileyo Ndingahlala ndivutha xa ndisebenzisa indlu yangasese, kodwa ayikho into efana ne- hemorrhoids kunye nokutshisa ndibe ne-UC.
Ngamanye amaxesha ndinayo into ebizwa ngokuthi 'ukuqhuma', kodwa oko akufani naxa ndine-UC. Enyanisweni, kuncinci kwengxaki ngoku ngenxa yokuba ndingayilawula, kwaye ayibuhlungu. Andizange ndenze i-dash embi kwindawo yokugcina ukususela ngaphambi kokuhlinzwa kwam kuqala.
Kwixesha elizayo, ndiyathemba ukwenza izinto endiyikwesabayo ukuba andizange ndibe nazo. Sekude ixesha elizayo, kodwa ndicinga ukuba ekugqibeleni ndiza kuba nolonwabo kunye nenkululeko kwiindawo zokuhlala.