Ukuba uhlala nesifo esingapheliyo (i- ME / CFS ), amathuba okuba uhamba kubantu abaninzi abacinga ukuba bayazi ukuba yintoni. Basenokuthetha izinto ezinje, "Ewe, ndicinga ukuba ndinayo, naye. Ndixakeke kakhulu ukuba ndifumane ukulala ngokwaneleyo."
Xa abantu beva igama elithi "isifo esingapheliyo sesifo," kunengqiqo ukuba bacinge ukuba yinkcazelo ebalulekileyo yokukhathala kakhulu.
Kwimiphakathi yethu yanamhlanje, abaninzi abantu baziva bexinekile ngexesha elide-ukukhathala ngenye yezikhalazo eziphezulu ezigqirha oogqirha.
Enyanisweni, kunjalo, siyazi ukuba i-ME / CFS iyinkathazo eyinkimbinkimbi kwaye inokulimaza. Xa uchazela abantu, kunceda ukugcina izinto zilula kwaye zibalise iimpawu zakho kwiimeko eziqhelekileyo.
Unokuba ufuna ukufumana inkcazo emfutshane kubantu abaninzi, kunye nexesha elide kubantu abakufutshane nawe.
Mhlawumbi indlela elula yokuchaza ukunyamezeka kwesifo sengqondo kukuba: "Kuvakalelwa kukuba ndinomkhuhlane ngawo onke amaxesha."
Uninzi lwabantu banolwazi olwaneleyo kunye nomkhuhlane ukufumana oku. Ihambisa, "andiyikhathala nje, ndiyagula ."
Ungakwazi ukucacisa ngokufutshane ngokubhala uluhlu lweempawu zakho ezinjengomkhuhlane, ezinjengamaqhwa omzimba, amafiva angaphantsi kwexesha eliphantsi, umqala womlomo, kwaye ukhululekile ukuhamba.
Nangona ukuthelekiswa komkhuhlane kubandakanya ezinye iimpawu zakho, kufuneka ufumane ezinye iindlela zokuncedisa umntu ukuba aqonde izinto ezifana nenkohlakalo yengqondo, i-malaise emva kokulandela, kunye neentsimbi / ukukhutshwa.
Ukuchaza Inkohlakalo Yobunjani
Ukucacisa inkohlakalo yengqondo yakho okanye ukungasebenzi kwengqondo, khumbula ukusebenzisa amava aqhelekileyo ukunceda.
Kuthe phantse wonke umntu uye waya kwinto ethile kwaye ayikhohliwe into enjalo, okanye ulahlekelwe umzila wabo wengcamango phakathi kwesivakalisi. Ungasebenzisa izinto ezinjalo, uze uchaze ukuba kwenzeka ntoni kuwe lonke ixesha.
Ukusebenzisa igama elithi "inkohlakalo yengqondo" rhoqo malunga nabahlobo kunye nosapho baya kubaqhelanisa nayo. Ixesha elihle elichazayo ngokwalo, kwaye inkcazo encinane (njengokuba "Ingqondo yam iyahlanjululwa namhlanje") inokubanceda baqonde iingcinga zakho zeengqondo.
Ukuchaza i-Post-Exertional Malaise
Esi sibonakaliso sinokuba nzima kunabantu ukuba baqonde. Kwomntu ongenalo i-ME / CFS, ukusetyenziswa kwandisa amandla. Yinto eyaziwayo enje into yokuba abantu bahlala bexelela umntu onokugula ukuze asebenze ngakumbi ukuze bazive bebhetele.
Ukusukela emva kokunyanzeliswa kwe-malaise kuthetha ukuba uya kuba namandla angaphantsi , kuyaqondakala ukuba abantu abayifumani.
Kwakhona, inokuhlawula ukubuyela kwenkcazo yentsholongwane, into efana nale: "Cinga ngethuba lokugqibela ugule kakhulu ngumkhuhlane (okanye u-strep throat, okanye mono) nendlela ekukukhwelisa ngayo ukuhamba phantsi izitebhisi. Yiloo nto eyenza ntoni kum-iyangikhathaza kwaye iyenze impawu zam zibi nakakhulu. "
I-post-exertional malaise yisifo esinzima ukuguqa intloko yakho, kwanaxa ujongene nayo.
Ups and Downs
Ukuba i-ME / CFS yakho ineentsimbi kunye nokukhupha, yinto enye enokudidanisa ngokwenene abantu. Ngokuqhelekileyo, abantu bacinga ngokugula njengento eqhubekayo, ngoko baninzi abafumananga indlela onokunyuka kwaye usebenze ngolunye usuku (okanye ngomzuzu) kwaye ulala ngecala elilandelayo.
Indlela engcono kakhulu ndiyifumene ukuyichaza oku: "Iimpawu ze-syndrome zexinzelelo ezingapheliyo zize zihambe, zinjani ezinjenge-multiple sclerosis."
Unokuqhathanisa iifutha zakho kwi-coaster coaster, uchaza indlela ohlala ungazi ngayo xa kuphuma umlambo olandelayo, okwenza kube nzima ukucwangcisa nantoni na. Kwakhona, bazise ukuba zeziphi izinto (ukunyamezela, uxinzelelo, njl.).
Inqaku elongezelelweyo
Ngezinye izihlandlo, unokufuna umntu ukuba aqonde ukugula kwakho kwimigqirha yezokwelapha. Nge-ME / CFS, kulula ukufumana ingcaciso kwiimpawu ze-immune-system kunye nomsebenzi we-neurotransmitter, ukuba umntu, ngaphandle koogqirha, mhlawumbi uncedo oluncinane.
Indlela elula yokuchaza into eyenziwa emzimbeni wakho yile: "I-immune system inamathele kwi-overdrive njengokuba izama ukulwa nesifo esiyingozi, kwaye igalela ubuninzi bemithombo yomzimba wam. uphendukela kuzo zonke iintlobo zezinto. "
Ungabatshela nokuba abaphandi abaninzi bathi i-ME / CFS "i-neuroimmune" okanye "i-neuroendocrine immune" yokugula ngenxa yobunzima bayo kunye nokubandakanywa kweenkqubo ezininzi.
Unayo impawu zakho ezahlukileyo, ngoko kuya kufuneka uzenze ngokwezifiso iinkcazelo zakho ukuze uvumelane namava akho. Ingcinga efanelekileyo yokucinga ngayo ngaphambi kwexesha, ngoko unokunika umntu impendulo efanelekileyo nangona ubuchopho bakho bubunzima.