Crohn's & Colitis Foundation

by Amber J. Tresca

Iqela leNgcaciso Kubantu Abanobuhlungu Bokugula

EUnited States, iqela elikhulu elingenanzuzo-mali linika inkxaso kunye nolwazi kubantu abanezifo zesibindi (IBD) kunye nabaxhasi babo yiCrohn's and Colitis Foundation, ebizwa ngokuba yiSiseko. Eyasungulwa ngo-1967, i-Crohn's & Colitis Foundation ixhaswa ngemali, iququzelela iinkqubo zemfundo, kwaye inika inkxaso kwizigulane nge-IBD, iintsapho zabo, kunye noogqirha abaphatha abantu abahlala ne-IBD.

Abaqambi beCrohn's & Colitis Foundation

ISiseko saqala ukuba ngowama-1967 njenge-National Foundation ye-Ileitis ne-Colitis. Yayisungulwa ekuqaleni ngu-Irwin M. noSuzanne Rosenthal, uWilliam D. noShelby Modell, no-Henry D. Janowitz, MD. ("Ileitis," ekuthethwa ngoku ixesha elidlulileyo, lisetyenzisiweyo kuba ngelo xesha, yiloo nto eyayisetyenziselwa ukuchaza isifo sikaCrohn.) USuzanne Rosenthal wafunyaniswa nesifo sikaCrohn ngo-1955. Yena kunye nomyeni wakhe u-Irwin, I-Modells, kunye noDkt Janowitz, baqulunqa inhlangano yokuqala engenzi nzuzo ezinikele ekuncedeni abo bahlala ne-IBD kunye neentsapho zabo.

I-Suzanne yavelisa i-template kumaqela okuxhasa abantu ngaphakathi kwabo bantu abane-Crohn's disease kunye ne-ulcerative colitis, ekugqibeleni basasaza imbono kwizahluko ze-Crohn's & Colitis Foundation kulo lonke ilizwe. ISiseko sabuyiselwa njengeCrohn kunye neColitis Foundation yaseMelika, eye yahlaziywa kwiCrohn's & Colitis Foundation ngo-2017, elaliquka ukusetyenziswa kwe logo entsha kunye nokusekwa kwindlela eyahlukileyo yeqela.

Ukuxhaswa kweeDola eziNgciniweyo

I-Crohn's & Colitis Foundation ayitholi mali kwi-government, kodwa ixhaswa ngokupheleleyo ngamalungu ayo angama-50,000 ayingxenye yeesahluko ezingama-40 ngaphesheya kwe-United States kunye nezibonelelo ezivela kwishishini. Iimali ziphakanyiswa kwiintlobo ezahlukahlukeneyo zengingqi neyelizwe, kubandakanywa nezithandwayo ezithandwayo zithatha iiNyathelo kunye neCandelo leMingeni yokuhamba kunye neziganeko zokuhamba.

ISiseko libika ukuba i-82% yazo yonke iminikelo efunyenweyo isetyenziselwa "uphando, imfundo kunye nenkxaso." Ukususela ngo-2011, iCrohn's & Colitis Foundation yachitha i-$ 43.5 yezigidi kwiinkonzo eziphambili kwiinjongo, ukwabiwa ngemali ngale ndlela ilandelayo:

Iinkonzo zeeNkqubo: 81.8%
Inkxaso: 8.0%
Ulawulo: 10.2%

I-Crohn's & Colitis Foundation Publications

I-Crohn's & Colitis Foundation ivelisa iimpapasho ezininzi, kubandakanywa iphepha lezonyango elihlaziyiweyo labalandeli, elihambisa i-2500 abaqeqeshi bezempilo abachaphazelekayo kunyango lwabantu abahlala ne-IBD. Ezinye iincwadi ezimbini ezibalulekileyo ziquka i- Take charge , epapashwa kabini ngonyaka ukupapashwa kwama-50,000, kwaye ngaphantsi kwe-Microscope , epapashwa kabini ngonyaka ukupapashwa kwama-80,000.

Imveliso yeCrohn & & Colitis Foundation Digital

GI Buddy. Enye yeminikelo eyenziwa yiSiseko yenza ikhululekile kwizigulane zokusetyenziswa yi- GI Buddy . I-GI Buddy yindlela yokuba izigulane zilandele unyango, iimpawu, kunye nezidlo, kwaye zivelise igogi nezinye iingxelo.

Partnership CCFA. Esi sixhobo se-intanethi sisetyenziswe ngabasebenzisi abangaphezu kwe-14,000 abanesimo se-IBD. Abasebenzisi beCCFA abasebenzisanayo banokufaka ulwazi olusisiseko malunga neempawu zabo kunye nokuphila kakuhle kwaye ngokuphindaphindiweyo bafumana amashadi kunye negrafu ukubona apho imeko yabo nganye iwa khona ngokumalunga nabanye abasebenzisi abathathe uphando olufanelekileyo.

Abathathi-nxaxheba banokubonisa iingingqi zophando ezivotelwa ngabanye abasebenzisi abanomdla ekuboneni ezo ngcamango zibandakanya uphononongo lophando. Izazinzulu ezibandakanyekayo kwinkqubo zinokusebenzisa iziphakamiso zokwakha izifundo zophando.