Iindaba zeThemba, amandla kunye nokuPhila
Ndiyazi xa ndifunyanwe nomhlaza, kwaye nangona ezinye iintsapho kunye nabahlobo bafumene unomdlavuza, ndathuthuzela njani ukuva iindaba zabanye ababejamelene nemingeni efanayo. Wonke uhambo olunomdlavuza luhlukile, kodwa ezininzi iimbuzo ezifanayo, iimvakalelo, ukwesaba, kunye necandelo elihle, "iinqununu zesilivere," zikwabelana ngentambo efanayo.
Kutheni le Ndaba Zomdlavuza Weengculaza Zithuthuzela?
Ukuva amabali kwabanye kungabakhuthaza ngeendlela ezininzi:
- Unokuziva ungcini. Ngokusoloko ndamangalisa ukuba bambalwa abantu abanomdlavuza wamaphaphu badibana nomnye umntu onomdlavuza wamaphaphu. Ngokungafani nomhlaza wesifuba ochongiweyo ngesigxina sepinki nje-malunga nantoni kwi- ribhoni ukuya kubaxhamli, umhlaza womphunga awubonakali. Kodwa ukungabikho kombala kukudukisa. Umdlavuza womlenze yiyona nto ibangela ukuba ukufa komhlaza kubasetyhini kunye nabasetyhini e-United States.
- Unokujamelana nehlazo lomdlavuza wamaphaphu uyazi ukuba awodwa. Kungakhathaliseki ukuba utshaya okanye cha, amazwi okuqala kubantu abaninzi xa ufunda malunga nokuxilongwa kwakho komhlaza uyaba buhlungu: " Ude utshaya ixesha elingakanani? " Ukwazi nje ukuba abanye baye baphathwa ngendlela eyahlukileyo kunezo, umzekelo ngomhlaza wesibele, thu thuzela.
- Unokufunda indlela abanye abaye bafumana ngayo ithemba nakwiemeko ezimbi kakhulu.
- Uyakwazi ukufunda indlela abanye abafumene ngayo intsingiselo ekuxilongeni kwabo, kwaye ngezinye izihlandlo le nto ivule iindlela ezintsha zokudala, ukukhula kunye nokomoya.
- Kungaba isikhumbuzo sokuba uhambo lomhlaza wonke umntu luhlukile. Kutheni oku kunceda? Njengomdlavuza womhlaza, ndandisoloko ndiva abantu abanentsingiselo enokuthi bachaze uhambo lwam ukuya kwelinye. Akunakho kuphela okukwenza uzive ungacaciswanga, kodwa uyazixabisa zakho iingcamango neemvakalelo zakho.
- Nangona kungengena endaweni yeengcebiso zeqela lakho lokunakekelwa kwezempilo, ngamanye amaxesha abantu bafunda ngamathambo amatsha, okanye iindlela ezingcono zokulawula nokuhlangabezana neempawu zomhlaza.
Imithombo yeendaba
Kukho imibutho emininzi eye yabhalwa amabali abantu abaphila nomhlaza wemiphunga, abathandekayo babo kunye nabanakekeli. Kukho abantu ababelana ngamabali abo aqhubekayo ngebhulogi, ngokuvumela abanye ithuba lokuba bathi "ewe - omnye umntu uvakalelwa ngaloo ndlela!" Ndazihlanganisa ezinye zam intandokazi apha. (Ukuba ndilahlekile intlangano yakho, iblogi, okanye ibali lakho kwi-intanethi, nceda ndithumelele i-imeyile ukuze ndiqinisekise ukuba abanye bayifumana kwakhona.) Kodwa ngaphambi kokuba ndiqale, ndandifuna ukuxelela ibali lomhlaza elibaluleke kakhulu kum. kwaye enye ndihamba nayo xa ndithetha nabantu abanomdlavuza. Kwabhalwa ngumhlobo wam uAlison Doyle, isiKhokelo sethu kuPhando lweJob:
Iindaba zeThemba
I-Lung Cancer Alliance inikeza "Iindaba zeThemba" - indawo apho unokufunda khona amabali eqela eliqela labantu abaphila nomhlaza wemiphunga, kwaye phu laphule into eye yabancedisa ukuba basinde - baze baphumelele. Ukuba unomdla, uyamenywa ukuba uthumele i-imeyile ibali kubo uze uthethe ngezifundo zobomi kunye neentsingiselo ozifumene eluhambweni lwakho ukuza nomhlaza.
Ukufunda la mabali babuyisela ezininzi iinkumbulo zam kokuqala ukufunyaniswa. Ukutshatyalaliswa kokuxilongwa. Ubunzima bokukwamukela oku kuyenzeka ngokwenene kuwe, kungekhona omnye umntu.
Kukho amabali okufana nokuba unjani kwisilingo sekliniki kwisilwanyana esitsha - kwaye ekufundeni ibali lomntu omnye ngomdlavuza we-ALK-positive ndiqinisekile ukuba abaninzi baya kufumana isikhuthazo xa beva umzekelo wokwenene wendlela yokuphila Unonophelo lwezokwelapha lwenzeka kumdlavuza wamaphaphu. Kukhuthaza kwakhona ukuva amabali abantu abaneengqungquthela eziphezulu zamaphaphasi (njengesigaba se-3B kunye nesigaba se-4) abaphila kunye neenyanga ezikhulayo, iminyaka, nangaphezulu kweminyaka elishumi ngaphaya kweliphi inani eliza kuqikelela.
Abanye abantu bathetha ngokutshatyalaliswa (kunye nokunyaniseka) wokuphucula umdlavuza wamaphaphu njengongabhemi. Nangona kuqhelekile - iipesenti ezingama-20 yabasetyhini abanomdlavuza wamaphaphu abazange bavume - kubonakala ngathi umfanekiso wesizwe uhlukile.
Into engenakuphikiswa kukuba ukuba nomdlavuza wamaphaphu utshintsha abantu. Abanye abantu bayabelana nomdlavuza wemiphunga. Abanye bakhula ngokomoya. Kwaye abanye abantu bathatha imisebenzi emitsha njengophawu lwe-watercolor ( ubugcisa bonyango lomdlavuza sele bufumene ukuba luncedo.) Kwabanye abantu, ukuhlala njengokuba bazi ukuba baya kufa bayabavumela ukuba baphile ubomi ngokuzeleyo. Ukufunda le mabali ngokuqinisekileyo kwamenza ndixabise umzuzu ngamnye.
- Iindaba zeThemba
Ezinye iindaba malunga neLung Cancer
Kukho ezinye iindlela ongayiva ngayo amabali uze wabelane nawe ngomdlavuza wamaphaphu. Abanye abantu babhala iiblogi malunga nohambo lwabo. Khangela enye yezi bhulogi zomhlaza wamaphaphu asebenzayo Amacandelo enkxaso yesifo somhlaza kunye noluntu lenkxaso yindlela enkulu yokuxhuma nabanye. Kukho neencwadi ezivulela iwindi ebomini babantu abanomdlavuza wamaphaphu nabanonophelo babo. Enye yeenqwenelekayo yiThupha leKhansela: Umbono woMncedi kwiSihlalo soMgibeli nguCynthia Siegfried oxelela ibali lakhe ukuba kunjani ukuba nomntu onomthandayo ngomhlaza wemiphunga.
Imithombo:
Lung Cancer Alliance. Fi kelelwa ngo-08/07/15. http://www.lungcanceralliance.org/
LUNGevity. Fi kelele 11/02/14. http://events.lungevity.org/site/PageServer