Ngoku Lo ngumngeni wobazali
U-Emma, uSophie, kunye noZoe Dunn bathathu bazalwa ngaphambi kokuqala ngo-2000. Bangezithulu kwizidakamizwa ze-ototoxic kunye nezimpumputhe ngenxa yokuziphendulela kwexesha lokuqala, kodwa babengenakho ukuphazamiseka kwengqondo ngaphandle kokulibaziseka. Xa amantombazana ebeneminyaka emi-5 ubudala, abazali babo baxubusha ngobomi babo njengentsapho ephila nale mingeni. Nali ibali labo ngoomama uLiz no-stepfather uGeorge Hooker.
Iintlanzi ziLahla amehlo
U-Emma, uSophie, noZoe Dunn bazalwa ngaphambi kokuba, kwiiveki ezingama-25. U-Sophie wayelinganise i-1 i-3 i-ounce, i-Zoe yayilinganisa i-1 i-6 i-ounces, kunye no-Emma belinganisela i-1 kwimizuzu yesi-5. Bonke abathathu baba yimfama kwiingxaki ezinxulumene ne-Retinopathy ye-Prematurity (ROP). Ngethuba le nto amantombazana eneminyaka emibili ubudala, beye basebenzisa iROP. USophie uyimfama. Ubona imibala kunye nemilo kwaye naye unombono we-tunnel. U-Zoe ubona ukukhanya okwaneleyo ukufumana iifestile. UEmma akabona nto.
Iintathu zokuLawula ukuLawula
Baye balahlekelwa ukuva ngenxa ye-anticomycin ne-gentamicin antibiotics ezazisenziwa xa zihlala kwiNICU. Iziyobisi zazisetyenziselwa ukunyanga i-sepsis ecetywayo. Amachiza amabini xa asetyenziswa kunye nokwandisa ukutshatyalaliswa komnye.
Baphantse balahlekelwa ukuva kwabo xa bebaneminyaka engama-20 ubudala. Kuze kube lelo xesha babenze inkqubela phambili kwaye bayeza kuqala ukuhamba.
Baye bethetha amazwi afana nekomityhi kunye nomama. Kodwa ngaphandle kwebala elihlaza okwesibhakabhaka, bavele bajikezela phantsi emzimbeni kwindawo yokukhulelwa baze baqala ukuhamba ngemoto ngenxa ye-vertigo. Iidotoxic izidakamizwa zonakalisa iisuniti zeenwele kwi-cochlea, leyo eyabangela ukungazithulu. Zonakalisa neenwele ze-vestibular. Ngenxa yomonakalo obonakalayo, amantombazana ayenobungozi obunzima kwaye abakwazanga ukubeka iintloko zabo.
"Baye bangathembeki ngeli xesha.Bonke bebanamathele ngokwenene kwaye bebengayi kuphinda baxhamle." Baya kukhwankqiswa xa uwathabatha phantsi, babehlala bebonakala bephelile. aphinde abuye abuye abuye abuye abuye aphephe ukuziphatha kwabo. "
Iintombi zifumana iimpembelelo
Xa abathathu bebaneminyaka emibini ubudala, bafumana izimpembelelo ze-cochlear . Kule minyaka engama-5 ubudala, uSophie wayenqanaba leelwimi elineminyaka engama-22 ngelixa i-Zoe no-Emma babe malunga neenyanga ezili-10 ekuphuculweni kolwimi. Bonke babe ne-Nucleus 24 cochlear implant. Ziva iintetho ezininzi.
"Isizathu sokuba u-Sophie uphumelele kakhulu kukuba uyimpumputhe ngokusemthethweni kunokuba uyimpumputhe ngokupheleleyo. Umbono wakho unceda ukunika intsingiselo ukuvakala. Ngokomzekelo, ukuba uva isandi esicacileyo uze ubone umnyango oguqulayo uze udibanise le mibini. Kuthetha ukuba umntu uthetha xa umnyango uphahlaza, unako ukucacisa ukuba umnyango awubalulekanga kwaye uyayilungisa, kwaye uphulaphule ngakumbi umntu othethayo. "
Kulo gumbi okwangoku, umntu unokuva umtshini wecala, umoya omshushu, umoya omshushu, i-radiyo, iimoto ezingaphandle, kwaye uqhuba ingxoxo. maxesha.
Umngeni u-Zoe no-Emma kukuba bawubona ngeminwe yabo. "
Abazali bancedisa ukuba bahlule izandi ngokuzivocavoca malunga nantoni na echaphazelayo. Ukubanceda bahlalutye ingxolo yangemuva, bawathabathe kumoya omoya-moya kwaye bavumele ukuba bakuve ingxolo njengoko beziva ukuba umoya uvela kuyo, bavumele ukuba bathinte umnqamlezo njengoko uwisa izambatho. Kuba nzima xa bechaphazela izinto ezahlukeneyo ngexesha elifanayo.
Isishwankathelo, ulindele kukuba onke amantombazana anokufumana izixhobo zokuthetha; Sifanele sibancede bahlele ihlabathi labo kuqala.
Iintombi ziFundiswa
Ezi zintathu zifundiswa ngomlomo nangendlela yezandla.
Abazali batyikitya kwaye bathetha yonke into ngaphakathi kwenkqubo yabo. Ba nethemba lokuzibandakanya kwixesha elizayo kodwa bakholelwa ukuba amantombazana aya kuhlala esichazela esikolweni.
Amantombazana adlala amancinci
Kule ngxaki ebomini babo, abathathu abazange badlale ngokusesikweni nabanye abantwana kwaye babedlala ngokungaqhelekanga kunye nomnye. U-Sophie uya kuhleka aze abe nemihlali xa ebona odade bakhe bezama into entsha, kodwa yile nto. Bayazi omnye nomnye baze badle isonka esinye, babambe izindebe zomnye kunye nemithwalo, kodwa oko kwakukuloo nto.
Abazali Abajongene Nemiqobo Yemihla ngemihla
ULiz noGeorge bathi ngosuku ngalunye lusebenza ngamaxesha angama-24 omsebenzi onzima. Iimfama eziziimfama azilala kakuhle, ngoko zisoloko zilala ubusuku obugcwele. Ixesha lokutya lithetha ukutshiza rhoqo kunye nokucoca. Ababini babo babengakabikho ukuqeqeshwa ngamanzi. Bafuna ukubukela ukukhusela ukuhamba kunye nokuwa, ngakumbi kuba abanako ukuxelela abazali babo ukuba kukho into ehlungu okanye indlela abavakalelwa ngayo. "Ngale ndlela, kuninzi kunokuba neentsana. Ndixhalabise kakhulu malunga nokuhlangabezana nazo zonke iimfuno zabo. kunzima kakhulu ukufumana inzuzo encinane. Iindawo eziphakamileyo ziphezulu kwaye i-lows ayikho ngaphantsi. "
"Ukuba ne-deafblind triplets iza kulala ubusuku bonke kwaye ndiyazi ukuba andizange ndenze ngokwaneleyo. banabantwana abathathu abavayo ukuba ndibe nako iminyaka emihlanu ehlukeneyo ukuze ndinike enye yazo yonke into abayifunayo kule minyaka yophuhliso. Asiyiyekekisi kwaye kwaye senza inkqubela phambili kodwa iqhubekayo. kwizikhewu apho ndingenako. "
Usuku Lwabazali Oluhlobo
- Ekuseni: " Ndivusa malunga ne-7 kwaye ndivavanya iimpendulo zabo ze-cochlear kwaye ndibeka iibhetri zabo kwiipakethi zabo. Emva koko ndivusa amantombazana ngokugubha iminyango yabo. bawaxhaphaze amazinyo baze balungise izinwele zabo, ndibahambe phantsi ngaphantsi kwelinye, ndibabeke etafileni apho befumana isidlo sakusasa. Baya esikolweni ngoMsombuluko ukuya kuLwesihlanu uninzi lwemihla. Ndinebhizinisi lam endikwenzayo ukusuka ekhaya ngelixa sele behamba. Amantombazana ahlala eklasini lawo kwaye anomfundisi omnye kunye nama-paraprofessionals amabini. Bathabatha amantombazana ngokusebenzisa [inkqubo yokufunda] egxininisa kwisiganeko. "
- Ngentsasa: Iingcali ze-Private (OT, PT, ST) tyelela iintsuku ezine kwiveki. Baphuma ngaphandle ukuba imozulu ihle. Iintsana ezincinci kwindawo yokuhlala zihlala ziphela. Baye bahlulwa indlu ngo-7 ntambama ukuze badle njengentsapho.
- Ukutya isidlo: Baya kuthatha ixesha labo bedla isidlo sakusihlwa. Amantombazana akwazi ukuthatha izixhobo zawo, kodwa athambekele nje ukuwaphonsa phantsi emva kokuluma.
- Ixesha lokulala: Bahlamba ndawonye ngo-8: 30 ebusuku, abathandayo. Baya kulala malunga ne-9 ebusuku. U-Emma uhlala ephakamileyo kwaze kwaba phakathi kobusuku emva koko uSoe uvuka ngo-3: 30 ekuseni
- Ngeveki : Ngeveki, bachitha ixesha elide ngaphandle. Bane-trampoline encinci, ihashe eligubungelayo kunye namanye amathoyizi. Abazali bajikeleza imisebenzi yabo nganye iyure njengekhosi yesiphaluka.
Omkhulu udade unceda
Abahoki banentombi endala, uSara. "Sibiza uSara umntwana ongabonakaliyo." Uhlala emkhatsini wengxabano ixesha elide.Siyamkhuthaza ukuba adlale kunye noodade bakhe xa sithatha zonke izingane endaweni ethile, uncedisa ukukhokela enye yazo.Ufake i-diapers, iikomityi, kunye nezinto ezincinci abazifunayo.Ndibanceda ndibajonge epakini. Uthanda ukulungisa zabo iinwele. "
Abazali abanengxaki yokuzilahla
Ukuthelekisa ukukhulisa abantwana be-deafblind ukuya kwiintsuku zikaHelen Keller , ubugcisa bezinto zokuvalelwa kunye neemplantshi ezichanekileyo kunika ngokuqinisekileyo abantwana abanokufikelela kwiindawo zabo. Abazali bathi, "Ubomi bukaHelen Keller bubonakalise ukuba abantu abayizithulu bangafunda kunye negalelo kuluntu. Yenza umehluko omkhulu kwindlela abantombazana abafundayo ngayo."
Abafuna abaPhicothi
AbaHokhi bafuna imali yokuhlawula abachaphazelekayo kubantwana babo. Umntu onjengo-Annie Sullivan, owayesebenza kunye nentsha yaseHelen Keller. Ukuphuhlisa ulwimi olwaneleyo kunye nokungazithembi kuxhomekeke kuncedo lomntu oncedisayo.
Intsapho yabonakaliswa kwi-"Dkt Phil" ngo-2007 no-2010. Baye bakwazi ukusekela isiseko kunye nokuphakamisa imali yokukhupha ummeli, nangona babenzima ukufumana enye emva kweminyaka emibini ngenxa yemicimbi yokufudukela kwamanye amazwe. Baye besihloko sesibini seencwadi, kubandakanywa "IziThulu kunye neziThathu eziMfama."