Abaninzi bethu bayazi okanye banokucinga, ukuhluthwa kunendlela yokuphazamisa abaninzi balabo bafumene isifo. Ubomi bunzima ngokwaneleyo, kodwa xa kuphazanyiswa ngxinxathela, kuya kuba nzima nakakhulu. Ngaphezu koko, ukuxhwaba okunokwenzeka kunokwenzeka naphi na okanye nangaliphi na ixesha nokuba ngaba umsebenzi, kwindlela engasesikolweni okanye esikolweni. Kwabaninzi abanokuhluthwa, ukuvakalelwa, ukukhathazeka, kunye nokuzithemba kuya kuba yinto eqhelekileyo - zonke ezifuna unyango kunye neyeza ngaphandle kweyeza.
Ngethamsanqa, ababoneleli abanempilo kwilizwe lonke bayazinikela ekuncedeni abantu abanesithuthwane, kubandakanywa oogqirha bezobugcisa. Iziphumo zophando eziphambili zibonisa ukuba i-Studio E: Iprogram ye-Arthritis ye-Arthritis ye-Epilepsy, inkqubo yeprogram yonyango yoxilongo exhaswa yi-Epilepsy Foundation kunye nenkampani yezobisi i-Lundbeck, inokunceda ukukhulisa ukuzithemba kwabo bahlanjululwe.
Kuyintoni ukuxhwala?
Igama elithi seizure lithathwe kwiLiLatini igama elithi sacire elisho "ukuthatha ifa," into ebonakalayo ebonakalayo yile nkqantosi okanye iindidi zezifo. Emva kwakho konke, ukuhluthwa kunomkhuba ongathandeki wokuthatha kunye nokushiya ixhoba lexeshana kwaye likhuselekile. Phantse izigidi ezintathu zaseMerika zifunyaniswa ukuba zihluthe.
Abantu abanesifo sokuhluthwa bafumana ama-seizures aphindaphindiweyo (inkcazo ecacileyo: ezimbini okanye ngaphezulu ezingenakukhuselwa). Kukho iintlobo ezahlukahlukeneyo zokuhluthwa kwesifo sokuhluthwa okubonakalayo ngeentlobo ezahlukeneyo zokuthintela kunye nezobomi okanye izizathu.
Ngokubanzi, ezi zithintelo zingabalwa njengezigxininiso okanye zivela kwisiqephu esinye se-cerebral hemisphere, okanye ngokubanzi kwaye zibandakanya amanethiwekhi amaninzi e-neural asasazwa kuzo zombini i-hemispheres ze-cerebral.
Isilwanyana esifanelekileyo sokuthwala i-prophylaxis sichaphazela yonke into yokubamba ingozi ngaphandle kwemiphumo emibi.
Enyanisweni, nangona kunjalo, kwiindawo ezininzi, iziyobisi zithintela ukuxhatshazwa kweminye imiphumo emibi kakhulu. Izidakamizwa ezisetyenziselwa ukuphatha isithuthwane ziyahlukahluka ngokuxhomekeka kohlobo lokubanjelwa kwabantu.
Ngaphakathi I-Studio E: Iprogram yoLwazi lwe-Epilepsy
I-Studio E iprogram yecala ye-6 ukuya kweyibhozo efumanekayo kubo bonke abantu abanesifo sokuhluthwa kwababantu abanezifo ezinzima. Iiseshoni zokugqibela iiyure ezintathu ngeveki kwaye ziyafumaneka kubantwana kunye nabantu abadala. Okwangoku, i-Studio E inikwe kwiidolophu ezingama-49 kunye nezicwangciso zokwandisa iminikelo ngo-2015.
I-Studio E abathathi-nxaxheba basebenzisa ubugcisa ukusebenzisana nabanye kwaye bavakalise. Amajelo afumaneka afaka ama-pastels, amaphepha, amapende, kunye nobumba lobumba. I-Studio E isebenzisa imodeli evulekileyo yentetho, kwaye ekupheleni kwiseseshoni nganye, abathathi-nxaxheba bayabelana baze baxoxe ngomsebenzi wabo. Abagqirha bezobugcisa abaneesitifiketi zenkosi bafundisa abathathi-nxaxheba ukuba benze ubugcisa kwaye bakhuthaze ukwabelana okuvulekileyo. Esinye isifundo se-Studio E siphethwe ngabathathi-10 ukuya kwabali-12.
Ulwaphulo lwezobugcisa yintsimi yokufunda ekhulayo, eyayibuvulindlela kuma-1940 nee-1950. Ngaphandle kokuhluthwa, unyango lwezonyango lusetyenziswe ukunceda abantu abanezinye izifo kunye nezimo ezahlukeneyo. Iintlobo zobugcisa bezobugcisa zininzi kwaye ziquka:
- Ukuphuhliswa kwezakhono zobuntu
- Isombululo seengxabano
- Ulawulo lokuziphatha
- Ukuzimela ngokuzimeleyo
- Ukunciphisa uxinzelelo
- Ukujamelana
- Ukubambisana nabanye
- Imfundo yezobugcisa
"Ulwaphulo lobugcisa luyinkqubo yokwenza ubugcisa kwintsebenziswano yokwelapha," kusho uLacy Vitko, okhokela umququzeleli wezobugcisa kwiSpilepsy Foundation kunye ne-Studio E ochwephesha. "Ingasebenza kwiindlela ezininzi. Njengazo nayiphi na intsimi, kukho izikhokelo ezahlukeneyo zobuchwephesha ezisetyenziswayo. ... Inkqubo ye-Studio E yinkqubo enkulu yobugcisa-njengendlela yokwelapha. "
I-Studio E yaqala ngo-2010 yaye iguquke ngokuhamba kwexesha. "Sifuna ngokwenene ukuba iqela likwazi ukuxhuma omnye nomnye ...
ukwakha ukuzithemba kwabo ... ukufumana uxhotyiso oluthile ngokusebenzisa ukwenziwa kobugcisa. "Siye safumanisa ukuba ukuxhamla [kubambiswano] kuye kwaba yinto ebalulekileyo kwenkqubo eyenza abantu baqhube phambili."
Kwiminyaka yakhe nge-Studio E, uVitko uye wabona inzuzo enkulu. "Ndibone ukutshintshwa kweso senzeke. Ndibonile abantu beza bodwa, bezolile, kunye negobolondo yabo ... kodwa njengoko beqala ukusebenzisa izixhobo zobugcisa baze baqale ukuxoxa nabanye abantu malunga noko kwenzekayo kwimifanekiso yabo, kwaye baqala ukuvula, ekupheleni kwezi sibhozo iiveki abayena bantu abafanayo. Zitshintshiwe. Ndiyibona ixesha kunye nexesha kwakhona, kwaye ndiyivile kuyo yonke i-arthritists yelizwe lonke ... "
UJill Gattone, umphathi wokukhuthaza uLundbeck osebenzisana neSiseko seSpilepsy ukulawula inkqubo ye-Studio E, uye waphelelwa yimpumelelo kwenkqubo. Uyabona abantwana abancinci beza kungabikho badibana nomnye umntu onesithuthwane nokufumana abanye abahlobo kumachiza afanayo okanye abajongene nemingeni efanayo. Kwakhona ubonakala ebantwini abadala beeseshoni aze abe ngabahlobo basemhlabeni bonke abadibana nekhofi kunye neminye imisebenzi yentlalontle.
"Uphando lukhulu, kodwa ezo ntlobo zamabali ziyasiphoqa ukuba siphucule kwaye sandise inkqubo," kusho uGattone.
Uphando kwi-Studio E
Iziphumo ezivela kwisifundo sokuhlola isifundo se-Studio E zikhuthaza. Phakathi kwabangama-67 ababhalisile kwinkqubo, i-Studio E ibonakala ikhulisa ukuzithemba njengokuba ilinganiswe yi-Rosenberg Self-Esteem Scale (RSES). Ngokuthe ngqo, ukuzithemba kungachazwa njengemvakalelo yokuzihlonela kunye nokukwazi ukukwenza izinto kunye nabanye. Ngaphezu koko, abathathi-nxaxheba babeyithandayo i-Studio E, kwaye i-attrition okanye i-drop out out rate yaphantsi.
Amanqanaba omgangatho wobomi, kuquka ukuqhuba nokuqhuba umsebenzi, nawo ahlolwe ngokusebenzisa i-questionnaire ehlukeneyo; Nangona kunjalo, akukho phuculo lucetyiswa kwimisebenzi enjalo yokuphila kwansuku zonke (mhlawumbi ingqiqweni kuba ubugcisa abukwenzi ngokuqhuba okanye ukuqeshwa).
UGattone uthi: "Ukuhluthwa yi-stray disorder. Unomdla-nxaxheba okanye abantu abanesithuthwane kuzo zombini iziphelo zengqungquthela.Abanye banokuchaphazeleka kakhulu ngenxa yokuhluthwa kwabo, apho [nabanye] kuchaphazela ubomi babo ngendlela encinci. Ngamanye amaxesha abantu abanesithuthwane ... banokuziva becala kakhulu. ... Ngamanye amaxesha kunzima ukuba baphume baye basebenze benze izinto kuluntu, oko kuya kuchaphazela ukuzithemba. kwindawo yoluntu ... kwaye kunokulimaza ukuzithemba. "
Ukukhangela phambili, abaPhandi be-Studio E banethemba lokuqhubela phambili ukuphonononga ubugcisa njengonyango kubantu abanesithuthwane, kwaye isilingo sokulawula ngokungahleliyo sisemsebenzini. Bathemba ukuba uphando olongezelelweyo kwi-Studio E luya kunceda utyando lwezobugcisa bokuthintela ukuxhamla lube lukhokelo lobungqina obuninzi. Nangona kunjalo, ukusuka kumbono, i-Studio E iye yanceda abantu abaninzi ukuba bathuthuke bazive bebhetele, bafumane abahlobo, bajamelane, kwaye bafunde okungakumbi malunga nobugcisa.
Imithombo:
Lowenstein DH. Isahluko 369. Ukuxhatshazwa nokuXhwala. Ku: Longo DL, Fauci AS, Kasper DL, Hauser SL, Jameson J, Loscalzo J. eds. Imigaqo yeHarrison ye-Medicine yangaphakathi, i-18e . New York, NY: McGraw-Hill; 2012.
Inkcazo ebizwa ngokuthi "Impembelelo yoLwaphulo lwezobuGcisa boBugcisa kwi-Self-Esteem kunye noBomi boBomi kubantu abaneSpilepsy" nguJM Buelow, uLR Vitko noJM Gattone abanikezele kwintlanganiso yonyaka ka-2014 ye-American Epilepsy Society kunye nexhaswa yi-Epilepsy Foundation kunye neLundbeck, LLC.