Iingcebiso zokusasaza ngokusasazela umdlavuza wakho kwi-Internet

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Kutheni Ukwabelana Ngayo Ngomdlavuza Wentlalo?

Zininzi izizathu zokuba abantu abanomdla banqwenela ukwabelana ngolwazi lwabo lomntu kwi-intanethi. Abanye abantu babelana ngolwazi malunga nokuxilongwa kwabo ukuze abanye banikeze izimvo malunga nokunyanga kwaye banikele ngolwazi olungaphezulu. Kubantu abaninzi, iindaba zentlalo zinika inkxaso ngenkxaso ngexesha lomdlavuza. Kanti abanye abantu banethemba lokuba xa banikela ngolwazi lwabo, banokunceda abanye abajongene nomhlaza.

Abantu Bafuna Ukwabelana Kodwa Ukukhathazeka Kanye Kanye

Uphando olutshanje lufumene ukuba ama-94 ekhulwini abantu baya kukulungele ukwabelana ngolwazi lwabo lwezempilo ukuze bancede abanye. Ngelo xesha, ama-74 ekhulwini ala bantu bexhalabile ukuba ulwazi lwezempilo abababelana ngalo lungasetyenziselwa iindlela ezinobungozi.

Ungabelana njani ngolwazi lwakho ukuze ufumane inkxaso engcono kunye nolwazi kwaye uncede abanye, ngelixa ukhusela ubumfihlo bakho ngexesha elifanayo? Funda kwi.

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IiNzuzo kunye neengozi zokwabelana ngolwazi ngezeMpilo kwi-Personal

Ngaphambi kokugqiba ukuba ngaba ukwabelana ngolwazi nge-intanethi okanye kungabikho ukwabelana, kuya kunceda ukujonga iintlawulo ngokubhekiselele kwiingozi.

Izinzuzo ezinokwenzeka

• Ukufikeleleka kolwazi okanye izimvo ezingenakwenzeka ukuba awukwabelani ngolwazi lwakho. Umzekelo, ukuba unomdlavuza we-ALK-positive (uhlobo lwe-lungen adenocarcinoma olulinganiselwa kuma-3 ekhulwini ukuya kuma-5 ekhulwini labantu abanomdlavuza wamaphaphu) kwaye wabelane ngolwazi oluku-intanethi, unokukwazi ukuxhuma nabanye abantu abanolu hlobo ukuguqulwa komzimba, kwaye ufunde okubanzi malunga nophatho oluvunyiweyo kunye novavanyo lweeklinikhi.
• Enye inzuzo yokwabelana ngolwazi kwi-intanethi yinkxaso yemvakalelo . Ngokomzekelo, ndivile kubantu abaninzi emphakathini womdlavuza wamaphaphu ukuba enye yemithombo yabo enkulu yenkxaso "ngabahlobo" abaye badibana ne-intanethi abafana nomdlavuza womphunga.

Mngcipheko

• Umngcipheko wengqesho . Kukho umngcipheko ukuba ulwazi olwabelana ngalo kwi-intanethi luyabonwa ngabaqeshi, kwaye lusetyenziswe ekwenzeni "isigqibo" okanye malunga nokuqeshisa kwixesha elizayo. Nangona ukuxilongwa kwakho kwedwa akunakusetyenziswa ukucwaswa ngale ndlela, sonke siyazi ukuba kukho icandelo elizimeleyo lokuqesha, kwaye ukuqonda ukuba abaqeshi besikhathi esizayo abanokufikelela kule nkcazelo kufuneka bagcinwe engqondweni.
• Ingozi yomntu . Ukuqala, umfanekiso ofuna ukuba ufunda ulwazi lwakho. Ukuba ubhala malunga nokuhlala kwakho esibhedlele, okokuqala kukukhangisa ukuba awukho ekhaya lakho.
• Mngcipheko . Gcina ukhumbule ukuba abanokuba ngabaxhasi bangekamva lakho banokufikelela kwiinkcukacha zakho. Nangona iimeko ezikhoyo ngaphambili ziyingxaki engaphantsi kwexesha elidlulileyo, kukho enye imiba yokuqwalasela. Ngaphambi kokubhala ngezinye iindlela zokonyanga ozenzayo, kwaye ngakumbi ukuba ukhetha ukuchasana neengcebiso zonyango nganoma iyiphi indlela, cinga ngoobani abanye abanokufunda ulwazi olunikezayo.

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Sebenzisa izicwangciso zobumfihlo - Khetha abaphulaphuli bakho

Ngaphambi kokwabelana ngolwazi lwakho lwezempilo oluntu kwimidiya yoluntu, khangela iimpawu zakho zobumfihlo. Ngubani ofuna ukuba uyibone ulwazi lwakho? Ngaba kukho abantu abangafanele bawubone le ngcaciso (cinga abaqeshi besikhathi esizayo, umzekelo?) Khangela le ngcaciso yeetayitile zobumfihlo be-Facebook.

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Yenza isigqibo malunga nexesha elide Uzabelana ngalo

Ngaphambi kokuba ubhale igama, cinga ngoluphi ulwazi olukhululekile ukwabelana kwimidiya yoluntu. Kunokukunceda ukuphule oku kwiintlobo ezintathu:

• Ulwazi lwakho lwekliniki - Njengeempawu zakho, ukuxilongwa kwakho, unyango lwakho, kunye neempawu zakho kunye nesiphumo.
• Ubomi bakho bemihla ngemihla - Uninzi kangakanani ulwazi olulungeleyo ukwabelana ngemisebenzi yakho yemihla ngemihla kunye nobudlelwane?
• Ubuni bakho - Oku kufaka ulwazi olunjengekheli lakho le-imeyile, isithatha esithathwe kuwe, nenombolo yakho yefowuni.

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Khetha apho Uya kubelana ngolwazi

Ziziphi iimveliso zeendaba ofuna usebenzise ngazo ukwabelana ngolwazi lwakho? Ezinye iindawo abantu ababelana ngazo ngeendlela zabo zomhlaza ziquka:

• Facebook
• Twitter
• Iibhugi zomntu
• Iiblogi ezibhalwa njengenxalenye yomnye wemibutho yomhlaza
• IiWebhsayithi
• Youtube.com
• Instagram
• Google+
• LinkedIn
• Snapchat
• Reddit

Enye into (mhlawumbi ibe yodwa), enye yomdla woluntu. Ezi zinto zifuna ukuba ube nobulungu behhala.

• Khuthaza
• INkxaso yeCancer Community
• Ukuhamba ngeCarcer

Ukukwabelana kunye nosapho kunye nabahlobo, abaninzi abantu bakhetha ukusebenzisa indawo efana neCaring Bridge:

• Caring Bridge

> Imithombo:

> Frosti, J., Vermeulen, I., noN. Beekers. Ukungaziwa ngokuchasene noBucala: Ukwabelana ngolwazi olukhethiweyo kwiiNdawo zeCancer Online. Umbhalo woPhando lwe-Internet lwezoNyango . 2014. 16 (5): e126.

> Grajales, F. et al. IziNxibelelwano zeNtlalo zeNtlalo kunye neNkqubo zeeNkqubo zezeMpilo zokuFunda: Uphando. ISikole seMida yeeNgcaciso zeSizwe. 02/04/14. http://www.iom.edu/Global/Perspectives/2014/~/media/Files/Perspectives-Files/2014/Discussion-Papers/VSRT-PatientDataSharing.pdf