Iimpawu kunye neZonyango zokwelapha kwi-Carpenter Syndrome

I-carpenter syndrome yinxalenye yeqela leengxaki zokuzalwa ezibizwa ngokuba yi-acrocephalopolysyndactyly (ACSP). Iziphazamiso ze-ACPS zibonakaliswa yimicimbi enekrele, iminwe, neenzwane. Ngezinye iinkqubo ukubizwa nge-Carpenter syndrome kuthiwa yi-ACPS uhlobo II.

Iimpawu kunye nezibonakaliso ze-Carpenter Syndrome

Ezinye zezona zibonakaliso eziqhelekileyo ze-Carpenter syndrome ziquka amanani e-polydactyl okanye ubukho beminwe okanye iminwe eyongezelelweyo.

Ezinye iimpawu eziqhelekileyo zibandakanya i-webbing phakathi kweminwe kunye nephezulu ephakamileyo yentloko, eyaziwayo njenge-acrocephaly. Abanye abantu abanengqondo engaphelelekanga, kodwa abanye abane-Carpenter syndrome bahlala kwiindawo eziqhelekileyo zobuchule beengqondo. Ezinye iimpawu ze-Carpenter syndrome zingaquka:

Ukongeza, abanye abantu abane-Sypenter syndrome bangaba:

Ubuninzi beCpenter Syndrome

E-United States, kukho ama-300 kuphela awaziwa ngamagciwane e-Carpenter syndrome. sisifo esiqhelekileyo; Ukuzalwa oku-1 kwezigidi ezi-1 kuchaphazelekayo.

Isifo esiphezulu se-autosomal.

Oku kuthetha ukuba bobabini abazali kufuneka bachaphazele iigeni ukuze baphumelele eso sifo kumntwana. Ukuba ngaba ngabazali ababini abanezifo zengqungquthela abanomntwana ongabonakali iimpawu ze-Carpenter syndrome, loo mntwana usengumphathiswa weejeni kwaye unokuyidlulisela xa iqabane lakhe linalo.

Indlela I-Carpenter Syndrome efunyanwa ngayo

Ekubeni i-Carpenter syndrome yintlupheko yesifo somzimba, usana luzalwa nalo. Ukuxilongwa kusekelwe kwiimpawu ezingumntwana, ezifana nokubonakala kwekhayi, ubuso, iminwe kunye neenzwane. Akukho vavanyo lwegazi okanye i-X-ray efunekayo; I-sypentrome ye-Carpenter ixilongwa kuphela ngenxa yokuhlolwa komzimba.

Unyango

Unyango lwe-Carpenter syndrome incike kwiimpawu umntu azinayo kunye nobunzima besimo. Ukuphelelwa kwintsholongwane kunokufuneka ukuba kukho isifo senhliziyo esisongela ubomi. Ukuhlinzwa kungasetyenziselwa ukulungisa i-craniosynostosis ngokuhlukanisa amathambo angenangqondo ngokungaqhelekanga ukuvumela ukukhula kwentloko. Oku kufuthi kwenziwa kwinqanaba ukususela ebusaneni.

Ukuhlukana kokutshitshiswa kweminwe kunye neenzwane, ukuba kunokwenzeka, kunokubonelela ngokubonakalayo ngokuqhelekileyo kodwa kungekhona ukuphucula umsebenzi; Abantu abaninzi abane-Carpenter syndrome bazama ukuzisebenzisa ngezandla eziqhelekileyo zokuxhatshazwa koko emva kokuhlinzwa.

Ulwaphulo olusisigxina, usebenze, kunye nentetho lunokunceda umntu ngeCpenter syndrome afinyelele kwisakhono sakhe esiphambili sokuphuhlisa.

Imithombo:

ILayibrari yeSizwe ka-US yamayeza. "I-Sypentrome yeSpenter." 2007

U-Kleppe, S. "I-Carpenter Syndrome". I-National Organisation for Disorder Disorders , 2015.