Isifo sesibindi sokuvutha (IBD) sisisombululo seemeko eziyinkimbinkimbi, kwaye uphando oluphezulu lubalulekile ekuphuhliseni unyango olungcono kwizigulane. Nangona esingazi ukuba yintoni ebangela i-IBD okanye indlela yokuyiphilisa ngayo, uphando oluqhubekayo luye lwabangenisa unyango olubhetele, luncedo ngakumbi, kwaye lunike iinkwenkwezi ezinye iinkcukacha malunga nokuba zikhangele izizathu. Nangona umlinganiselo omsebenzi wenziwe, kusekho indlela ende yokuhamba, kwaye ezinye iinkalo zesifo sikaCrohn kunye nesifo sezilonda zesilonda asifundanga kakuhle okanye siqondwa kakuhle.
Izigulane ziya kuba nentshisekelo ekukhuthazeni ulwazi malunga ne-IBD kunye nokufunda indlela abanokukunceda ngayo uphando. Iindaba ezilungileyo kukuba ngoku izigulane ziyakwazi ukubandakanyeka ngokuthe ngqo, ukongeza ulwazi lwabo kwisiseko esingasetyenziselwa uphando kunye nokuphakamisa izihloko zophando.
Uphando lwe-IBD lukhuni
Ukubeka iprojekthi yophando kwi-IBD yinto enzima. Akukhona nje kuphela ubunzima obuphambili kwiprojekthi yophando, kodwa kukho ubunzima ekutholeni izigulane. Kuthatha ixesha elininzi lemizamo yokufumana izigulane kwaye zibandakanyeke kwiprojekthi. Ngoku sineenkcukacha zezobugcisa zecomputer, kodwa ulwazi ludla ngokuhlala kwii-silos ezihlukeneyo - zonke iirekhodi azifumanekanga kwindawo enye. Amarekhodi kufuneka adityaniswe kwaye ahlelwe ngendlela enokubaluleka kubaphandi. Yingakho "uphando" luhlala lwenziwa: ososayensi banokuthatha iiphando ezininzi eziye zenziwa kwisihloko esithile, kwaye uthelekise iziphumo.
Oku kuvame ukuvelisa iziphumo ezisezingeni eliphakamileyo kunephepha elilodwa lophando, kunye nezifundo ezinemiphumo ephikisanayo zinokuhlelwa ngokulandelelana ukuze zifike kwisivumelwana ngesihloko.
I-IBD Research Is Changing
Ngaphambili, izigulane bezifundo zeprojekthi zophando, kodwa abazange baxubushe ngazo malunga naluphi uphando uphando olufunekayo.
Kukho utshintsho olwandle, kwaye ngoku izigulane zibonisana xa kuziwa ekuphuhliseni iiprojekthi zophando. Kuphuhliswe amathuluzi amatsha okuya kunceda abaphandi baqonde ukuba zeziphi izigulana zifuna ukuba zifunde, kwaye uncede izigulane zibandakanyeke ngakumbi kuphando.
IBD Plexus
I-IBD Plexus yinkqubo ephuhliswa yiCrohn's and Colitis Foundation yaseMelika , kunye nenkxaso evela kwi-Leona M. kunye no-Harry B. Helmsley Charitable Trust. Yintoni okuza kuyenza le nkcukacha-siseko kukudala idatha yolwazi kwiigulane ezine-IBD. Xa isiseko sedatha sakhiwe, yonke inkcazelo yesigulane iya kuba kwindawo enye ukuba izazinzulu kunye nabaphandi bakwazi ukufikelela. Olu lwazi lunokucocwa kwaye lucwetshwe ngeendlela ezahlukeneyo, ukubonelela ubuninzi beenkcukacha kwiiprojekthi zophando.
Idatha kwi-IBD Plexus iya kufumaneka kwizigulane. Ngale ndlela, izigulana zikwajonga kwakhona idatha kunye nendlela amava abo azisa ngayo inkqubo yophando. I-IBD Plexus icwangciselwe ukunyuka kwaye isebenze ngo-2018.
Njani izigulane ezinokuthi zibandakanyeke
Iingcamango zophando oluninzi ezenziwa kwizigulane ezine-IBD ziyinto enomdla, kwaye izigulane ezininzi zifuna ukwazi ukuba zingabandakanyeka njani kwaye zongeze ilizwi labo. Indlela elula yezigulane ukuba zibandakanyeke ukubhalisa kunye neCCFA Partners.
I-CCFA Partners "yinkqubo yokucwaninga ngesigulane" esondla kwi-IBD Plexus. Kwabalandeli beCCFA, izigulane zingangena idatha yazo ukuze zisetyenziswe, ngokubanzi, kunye nedatha yesigulane yocwaningo. Akunjalo kuphela, kodwa izigulana nazo zingafumana iingxelo ezisekelwe kwidatha yazo, kwaye zibone indlela ezifanisa ngayo nezinye izigulane ezibhaliswe.
Eyona nxalenye ephambili malunga nabaQabane beCCFA, nokuba kunjalo, izigulane ziyakwazi ukuphakamisa iiprojekthi zazo zophando. Ezinye izigulane ezibhaliswe kwiCCFA Partners zingavota kwiingcamango, kwaye iziphakamiso zihlaziywa ngabaphandi. Abaphandi banokubona ukuba zeziphi izigulane ze-IBD ezixhalabele ngokwenene, kwaye zenze ngayo.
Kukho amaxwebhu amaninzi apapashwe kwi-CCFA Partners, kwaye ezininzi ziyaqhubeka ngoku.