I-J-Pouch Inokunika Amathuba Ngomgangatho Ophuculweyo Wobomi
Ndivame ukucelwa malunga nokuhlinzwa kwam j-poch , endiyenayo ngo-1999 eneminyaka engama-26. Ngaphambi kokuhlinzwa kwam kuqala, ndandiyika kwaye ndathetha nezinye izigulane ezazibenokutyunjwa kwe-j-pouch. Abanye abantu banokukhetha ukuba ngaba okanye bengenalo utyando: kwimeko yam kwakuyimfuneko yonyango. Utyando lwe-J-pouch ngamanye amaxesha lwenziwa kwinqanaba eli-1 okanye ngamanyathelo amathathu, kodwa amaninzi amaninzi kumanyathelo a-2, oko kukuhlinzwa endikufumanayo. Ukuhlinzwa kwam kwaqhutyelwa esibhedlele sasekuhlaleni kunye nodokotela ogqirha wendawo, owayesenza kuphela iipokotshi ezi-5 phambi kwam. Ngezantsi iakhawunti yangasese yam ngamava nge-j-pouch ukuhlinzwa, nangona ndidibanise ezinye izinto kunye nolwazi ukuze ndibe ngumthombo obanzi kulabo bacinga okanye bajongene nokuhlinzwa ukuze baphathe isifo sabo sesisu.
Iintsuku ezingazange zihlale zihlala zihlala kwiindawo zokuhlambela
Ndivuka ekuseni ukuba ndivalelwe uxinzelelo kunye nokuzaliseka kwi-j-poch yami. Uninzi lweentsasa ziqala ngale ndlela, kodwa ndiyayisebenzisa. Kukho ukungathandeki, kodwa akufani nxamnye nokukhawuleza ndive nge-colitis. Ndingayinakuyithintela loo nto, ukuba ndikhethile, nangona bekuya kuba nzima ukuya kwindlu yokuhlambela.
Iintsuku ezinezilonda zesilonda zaqala ukuba yikumemori ngeli nqanaba, njengoko ndihlala kwisigqi esitsha somzimba wam. Ukuhlinzwa kuqala (kwababini) kwakunzima: Ndiphantsi kwe-anesthesia iiyure eziliqela kwaye ndaphakama nge- ileostomy yesikhashana. Ukubuyiselwa kwangexesha elide, ndangaphandle komsebenzi kwiiveki ezi-6, kodwa kwakungabonakali kwaye ndaphucula imihla ngemihla.
Ndineqabunga elikhulu elihamba yonke indlela ukusuka phezulu kwesisu sam esiswini kwipasic yami ye-pubic, engazange iphilise njengento endiyithandayo, ngokuyininzi ngenxa ye- prednisone ndiyithatha ngaphambi kokuhlinzwa kwam.
Andikwazanga ukukhupha i-prednisone ngaphambi kwesinyathelo sokuqala se-j-poch njengoko ugqirha wam wayeyithemba: rhoqo xa sizama ukuhlahla kakhulu ukuphuma kwegazi kwilitative cervitis iya kuqala kwakhona. Ngenxa yoko, ekugqibeleni ndakwazi ukuhlawula emva kokuhlinzwa kwam. Andiyolonwabo ngotshaba ngenxa yokuba ndimncinci, kodwa ndicinga ukuba ukuphela kweentsuku zam ebhinini yintengo encinci yokuhlawula.
'I-Ostomy' ayikho iLizwi elingcolileyo
I-ileostomy ayizange ibe yinto endiyilindele. Emva kweminyaka yokulonda i-ulcerative colitis kwaye ndizibuza xa i- diarrhea iza kubetha kwaye xa ndifuna idlumbi yokulala, ngokukhawuleza, i-ileostomy yayifana nenkululeko yam kwakhona. Ndandihamba ndaza ndaza ndatshintsha i-ostomy kwesikhwama sam xa sagcwele . Andizange nditshintshe i-wardrobe yam yonke into - ndambethe zonke iimpahla ezifanayo ndenza ngaphambi kokuba ndileostomy. Ndaqala ukwandisa ukutya kwam , nangona ndandilumkele ukuba ndilandele imiyalelo yam ogqirha kwaye ndiphephe ukubola njengamantongomane okanye i-popcorn. Ndade ndaqala ukubeka isisindo, ngokokuqala ngqa ebomini bam abadala. Andizange ndibe nefuthe kwiinyanga ezi-3 ndibe ne-ileostomy yami. Andicingi ukuba ndinekhono elihle lokubambisa i-ostomy, kodwa nangona kunjalo andizange ndibe nemiba okanye iimeko ezihlazo.
Ukutshintsha i-ileostomy yam isebenzi ngokuphindwe kabini ngeveki yaba yinxalenye yesimiso sam. I stoma yam yaba yinye inxalenye yomzimba wam. Kwakubonakala kungenangqumbo, ukuba ndicinga ngale nto. Emva kwakho konke, i-stoma iyincenye yesisu sakho, kwaye yayingaphandle komzimba wam! Kodwa, oku kungukuhlinzwa okwamvumela ukuba ndiphile, ngethemba lokuba ixesha elide kakhulu. Ngaphandle kwayo, i- dysplasia kunye namakhulu ama- polyps atholakala kwikolon yam inokubangela umdlavuza wekolon kunye nesiphumo esibi nakakhulu.
Umnesi wam entrastomal (ET) wamangalisa . Ndadibana naye phambi kokuhlinzwa kwam kuqala, kwaye wancedisa ukubeka ukufakwa kwam stoma. Kwiimeko ezingxamisekileyo, i-stoma ingafakwa apho ugqirha ecinga ukuba kuya kuba ngcono, kodwa ndenelungelo lokuba nexesha elithile lokulungiselela. Umantanami kunye no-nurse bendibuza malunga nendlela yam yokuphila kunye neentlobo zeengubo endizimbetheyo, kwaye sagqiba kunye ndawonye ukuba ndibeke phi i-stoma. I-Anatomy idlala inxaxheba ekumiseni i-stoma - ndixelelwe ukuba imizimba yabantu kunye nezihlunu zahlukile kwaye ngezinye iinkqubo i-stoma ayikwazanga ukufakwa kwindawo apho isiguli esithandayo.
Kwimeko yam, izinto zenzeke kakuhle, kwaye umhlengikazi wam kunye no-ET wasebenzisa iSharpie ukuphawula indawo ephambili kum esiswini sam stoma yam.
Ukuhamba "Ngokuqhelekileyo" kwakhona
Xa ndilungele isigaba sesibini se-j-pouch ukuhlinzwa (ukuthatha-phantsi, okanye ukuguqulwa kwe-ileostomy), ndandinomdla kakhulu ngokungena ekutyikitheni. Ndaziva ndikhululekile! I-ileostomy yayingenanto enkulu! Ngaba ngokwenene ndifuna ukuhamba ngenye i-operesheni kunye nokubuyiselwa? Kodwa inyaniso, ukuhlinzwa okwesibini kwakungekho ndawo kufuphi nangoko njengowokuqala, kwaye ixesha lokubuyisela lalifutshane. Ndangaphandle kwimizuzu e-2 kuphela kwaye ndandifuna imfuno encinci yamachiza. Into ebalulekileyo kakhulu isetyenziswa kwi-j-poch entsha. Ewe, kwafuneka ukuba "ndiyithinte" kangangeentsuku ngosuku, kodwa oko kwakungandikhathazi nhlobo. Ndiyazi ukuba abantu abaninzi banenkxalabo yokuya kwindawo yokuhlambela emva kwamaxesha emva kokuhlinzwa kwabo kunokuba ngaphambi kokuhlinzwa kwabo, kodwa kwimeko yam ayiyi kuba yinkinga. I-ulcerative colitis yayibonakala ibe nzima, kwaye nangona ngexesha lokubuyiselwa kwindlela yokuqala yokuhlinzwa, ndandiziva ndingcono kunokuba ndenze xa i-colitis iyona yayona.
Ekuqaleni, ukuhamba kwam isilwanyana nge-j-poch yami kwakumanzi kwaye, inyaniso iyatshelwa, ibuhlungu . Batshisa. Kodwa ndafunda ngokukhawuleza ukutya okukuphephe: ukutya okunesonka, ukutya okuthosiweyo, amaninzi amaninzi, i-caffeine kakhulu. Ndinezinye iindlela ezininzi zokugcina intlungu kunye nokutshisa ubuncinane: ukusebenzisa i-barrier cream kwi-bottom of my, usebenzisa i-wipe ezimanzi endaweni yephepha langasese, nokutya ukutya okunokukhupha isitofu sam, njengebhotela okanye iitata. Ugqirha wam wandinika izikhokelo ezimbalwa malunga nalezi zinto, kodwa ezinye zazo ndazifunda ngetyala kunye nephutha, kuba wonke umntu uhlukile uma kuziwa ekudleni. Kwathatha ixesha lokuba isikhumba sam soloko siphume kunye nokutshisa ukuyeka. Emva kokufumana ukutya kwam phantsi kokulawula, i-stool yam yaqalisa ukuqina, kwaye ndandisendlini yokuhlambela ngaphantsi. Enyanisweni, nanini na xa ndibona ugqirha wam ogqirha ubuza ubuninzi beentshukumo zokuba ndineentsuku, kwaye ngokunyanisekileyo andiyikulandelela.
Ukunyakaza kwimizimba yam kunomdla, kodwa ndiye ndiziva ndihlazekile. Utyando ndilondolozile ubomi bam, nangona latshintshe i-anatomy yami ngonaphakade. Ukuba ndiyinyamekele ngokutya kwam ndiyakwazi ukuba nama-stops, kodwa mna ndisoloko ndingayilumkanga ngokutya kwam. Ndine-ulcerative colitis iminyaka eyi-10, ngamanye amaxesha ndingaphili nto ngaphandle kwe-gelatin kunye nomhluzi, (kunye nakwixesha elithile elikhunjulwayo kwiiveki ezimbini, esingekho nto, kungekhona namanzi) kwaye ngoku ndikwazi ukutya ukutya, ukutya kwangempela, kwakhona, andifuni ukuzithoba kumtya kunye nokutya okunomdla. Ndineemida - andizange ndiyidle isaladi ngamantongoma okumele ilandelwe yi-popcorn chaser - kodwa ndiyakonwabela ukutya amaninzi namhlanje ukuba andizange ndandicinge ukuba ndiyidle kwisilonda sam sesilonda.
Kodwa Ngaba Lo "Uphilo"?
Abantu badla ngokuthetha ngo-j-pouch ukuhlinzwa njengento "yokunyanga" yesilitis. Andiyiva ngathi le ngcaciso echanekileyo. Ukutshatyalaliswa kwequmrhu elibalulekileyo lingaqwalaselwa njani "unyango"? Kwimi, unyango lwaluya kukuphilisa intlungu nokupheliswa kweempawu. Ixesha elizayo le-j-poch yami ayisaziwa kum. Ndingaba ngenye yezo zakha inkuchitis : imeko engacaciswanga kakuhle ebangela iimpawu ezinjengomkhuhlane kunye nesifo sohudo. I-Pouchitis isoloko iphathwa ngeprobiotiki kunye namachiza omzimba, kodwa ibuye ibuye ibuye ibuye. Ugqirha wam ongenakuqinisekiswa ukuba ndingasayi kuba neengxaki ezinokubakho ezinjengezithintelo okanye ezinye iimeko ezingaphezulu kwamathumbu ezinokungena kunye nezifo zesibindi (IBD) njenge- arthritis .
Ipilo
Ndiyazi indlela yam ukusuka kwi-ulcerative colitis ukuya kwi-j-pouch ibe yinto elula kakhulu. Oku ndiyakubonisa ubuchule beqela lam eligqityiweyo, kodwa kwanokuzimisela ukulandela imiyalelo yam ogqirha kwileta. Ndidibane nabanye abaninzi abonwabileyo neengxowa zabo, kodwa ndidibane nabanye abaye balahlekelwa iifenki zabo kwiipokitis eziphindaphindiweyo, okanye ngenxa yokuba oko kwafunyanwa ukuba yi-ulcerative colitis kwakugqityiwe ukuba yinto yesifo sikaCrohn. Ndiyazazi abanye abafumana iingxaki zentsebenziswano ezifana nezifo. Abanye abesifazana abaneengxowa ze-j bafumana ukuzala kwabo bachaphazelekayo. Kukunzima ukwazi ukuba unyango luya kuthintela nawuphi na umntu othile, kodwa kwimeko yam, yonke into ibe yinto engcono.