Ukuba unayo i-lupus, uyazi kakuhle ukuba kunzima kangakanani ukulawula impilo yakho ngaphezu kobomi bakho bonke. Ngenxa yoko, usenokuziva ukhululekile, uxhalabile, okanye ucinezelekile.
Umbuzo obalulekileyo ukuphanda ukuba ngaba le mingeni ibangela ukudandatheka okanye ukuba i-lupus ithintela ingqondo kwaye ibangela iimpawu zokudandatheka.
Impembelelo yeLupus ebomini bakho
Ngo-2011, isifundo esibizwa ngokuba ngu-"Psychosocial Limitations of SLE: Impembelelo kwiQela loLondolozo lwezeMpilo" lixhaswe ngabantu base-lupus kuluntu - ukuba imingeni yokuphila ne-lupus ingakhokelela ekuvekeni kwexinzelelo kunye nokuxhalabisa.
Nangona iziphumo zinokubonakala zibonakala kuwe, isifundo esinje sinceda ekunikezeni ihlabathi ngobungqina bokuba abantu abane-lupus bathetha ixesha elide.
Njengengxenye yesifundo, abantu abangama-380 abane-lupus bahlolisiswa. Abaninzi babelana ngako, ngokuba kubo, igalelo elikhulu lokudakumba nokuxhalabangela kubangelwa zimbini izinto - utshintsho ekubonakalayo kunye nempembelelo yomzimba wesifo, ngokubambisana kunye nentlungu yomzimba. Ngaba ungazixelela?
Ukulahleka kweenwele kunye nokunyuka kwexabiso kunikwe ingxelo yokuba yizona zinguqu ezibuhlungu ekubonakalayo.
Ukulahleka kweenwele kungabonakalisa i-lupus, okanye kunokubangelwa ukutshaya ngenxa ye-lupus okanye kubangelwa ngamachiza athile asetyenziswa ukunyanga i-lupus, njenge-cyclophosphamide.
Abathathi-nxaxheba abaninzi banokubelana ngokukhawuleza ngokomzimba, njengentlungu, kubangela ukuxakeka ngenxa yokuba imingcele ithintela abantu ukuba bathathe inxaxheba kwimisebenzi okanye ukugqiba imisebenzi.
Bika ingxelo yokuba i-lupus flares igalelo ekwenzeni uxinzelelo kunye nokuxhalabisa.
Kwaye yenza imingeni ngokufumana i-inshorensi yempilo okanye ukugcina umsebenzi.
Kulula ukubona ukuba onke la mava angenza njani iimvakalelo zokunciphisa ukuzithemba, ukukhungatheka, ukwesaba, nokudakumba, nendlela ezivakalelwa ngayo ezinokubangela ukuxinezeleka nokuxhalabisa.
Ezinye iindlela I-Lupus ixhamene nokuxinezeleka
Ngakolunye uhlangothi, i-lupus inokuchaphazela ingqondo kwaye ibangele ukudandatheka kunye nezinye iimpawu zengqondo.
Kwakhona kunokwenzeka ukuba umntu sele sele enexinzelelo, uxhalabe, okanye enye imeko yempilo yengqondo ngaphambi kokuqalisa kwe-lupus. Kweminye, imingeni i-lupus izisa ingonakalisa iimpawu zempilo yengqondo eyayisele ikhona.
Kungaba nzima ukuphawula imbangela yeempawu zempilo yengqondo, kodwa kubalulekile ukuthetha nodokotela wakho malunga noko uhamba nayo.
Ukuba i-rheumatologist yakho ikrokre ukuba i-lupus ithintela ingqondo yakho, kufuneka ukuba ikunike amayeza ukuba aphathe i-lupus. Ukuba wena okanye bakholelwa ukuba iimpawu zakho zibangelwa yimingeni yokuphila ne-lupus, baya kuxubusha ezinye iindlela zokwenza unyango - njengokonyango lwentetho (ekwabizwa ngokuba yi-psychotherapy).
Xa uxinzelelo luba yingozi
Ukuba uxinzelelo luya kuba usongela ubomi kwaye ucinga ukuzibulala okanye uzilimaze, nceda ufumane uncedo ngokukhawuleza. Shayela umnxeba wokuzibulala, njengolu (usekelwe e-US), 1-800-273-TALK (8255).
Biza nawuphi na oogqirha bakho, ingakumbi ugqirha wakho okanye umqondo weengqondo ukuba unayo. Thetha kumhlobo othembekileyo okanye ilungu losapho uze ubacele ukuba bakuyise esibhedlele.
Ukuba uwedwa, zizise ekamelweni eliphuthumayo, okanye ubize i-9-1-1 (e-US) okanye inombolo yongxamiseko kwindawo yakho.
Ukuba ukwesaba ukuba ubanjwe esibhedlele ngenxa yokuzibulala, yazi ukuba njengezibhedlele zigcina abantu kwiinkcenkceshe zonyango de ba khu seleko, inkxalabo ebalulekileyo umntu ozibulalayo yokhuseleko lwabo. Inhlalakahle yakho yinto yokuqala ephambili.
Xa ufuna iNkxaso nenkxaso yoxinzelelo
Nangona ukudandatheka, ukuxhalaba, intlungu, okanye ukubonakala kwitshintsha, ubomi kunye ne-lupus abukho ithemba. Ngokomzekelo, kwisifundo esichazwe ngasentla, abaphandi bafumanisa ukuba umntu ovakalelwa ngakumbi ekulawuleni ubomi bakhe, abadandathekile okanye abaxhalabele.
Isinyathelo sokuqala sokwandisa umlinganiselo wokulawula ophethe ubomi bakho kukufumanisa oko ulawulayo.
Umzekelo, ngelixa ungeke ukwazi ukulawula ukuba unayo i-lupus, unokulawula malunga nendlela olawula ngayo isifo. Izindlela ezininzi zokufunda ezifundayo kunye nokuzenzayo, ziphakamisa umqondo wokulawula. Okokuqala, qalisa ngeendlela ezisisiseko - gcina utyunjwa lwakho lwezonyango , thatha amayeza akho njengoko kuchazwe, kwaye ufumane inkxaso ye lupus.
Njengoko kubona ugqirha kubaluleke kakhulu ukuba unayo i-lupus, ukuba unengxaki yokuxinezeleka, ukuxhalabisa okanye ezinye iimpawu zempilo yengqondo, kubalulekile ukufuna inkxaso. Ngaphandle kokuxelela i-rheumatologist malunga neempawu zakho zempilo yengqondo, cinga ukubona umntu ongu-psychotherapist. Baza kukuphulaphula, ngaphandle kokugweba, kwaye banokukunceda ufumane iindlela zokujamelana nayo.
Kungakhathaliseki ukuba wenzani, musa ukugcina amava akho ngexinzelelo okanye ukuxhalabisa. Kukho ithemba kwaye kukho uncedo. Kukho abantu abafuna ukukuphulaphula malunga nento oye waphila ngayo. Abantu abakwii-lupus kunye nabasemagunyeni abagulayo baya kukhumbuza ukuba ithemba likhona. Zizikhokelo ezilungileyo kwaye ziya kukunceda ufunde indlela yokuphila ubomi obuhle kakhulu nge lupus. Ukufumana inkxaso kunokuba yinto ekhethekileyo yokukhetha.
> Imithombo
U-Beckerman NL, i-Auerbach C, kunye noBlanco I. Imilinganiselo yengqondo ye-SLE: impembelelo kwiqela lezononophelo lwezempilo. J Multidiscip Healthc . 2011; 4: 63-72.
I-Kivity S, i-Agmon-Levin N, i-Zandman-Goddard G, i-Chapman J, i-Shoenfeld Y. Neuropsychiatric lupus: i-mosaic yemiboniso yekliniki. BMS Medicine . 2015; 13:43.